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Restless Legs Syndrome

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Yellow Card Scheme Reporting of Augmentation and Impulse Control Disorder on dopamine agonists

Joolsg profile image
13 Replies

I filed a Freedom of Information request to the UK MHRA to find out how many adverse drug effects are recorded against Ropinirole, Pramipexole and Rotigotine for each of the last 5 years. Very depressingly there have been only 22 reports for both Augmentation and ICD for ALL DAs over the last 5 years.

We know that is complete nonsense. We get a person from the UK suffering augmentation at least once a week on here. That's 52 x 5 reports that should have been made.

No wonder doctors don't believe patients! Doctors will continue to prescribe these dangerous drugs unless and until EVERYONE files a report.

This is why it is ESSENTIAL that anyone affected by Augmentation or ICD on dopamine agonists MUST file a report.

It's not too late.

If you've been affected or know anyone who has- here is the link. Please, please complete asap.

If you belong to any other help groups- please share the link below.

bnf.nice.org.uk/medicines-g...

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Joolsg
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13 Replies
Kaarina profile image
KaarinaAdministrator

This is now a pinned post.

Kaarina profile image
KaarinaAdministrator

Heh! You added a similar posting entitled Yellow Card Scheme Reporting three years ago which is still a Pinned Post. It can be kept there a little longer as there are 74 replies which was encouraging.

GaryHB profile image
GaryHB

Done

Joolsg profile image
Joolsg in reply toGaryHB

Thanks

Gmc54 profile image
Gmc54

I've been off Pramipexole now for several years. I can't remember the last time I took them. I suspect they will need that info. Not sure if my experience of this drug will now count.

Joolsg profile image
Joolsg in reply toGmc54

Every report counts. I actually reported via Yellow Card Scheme AND the USA FDA report.

Restlessginger profile image
Restlessginger

HI there, clicked on the link and I presume its the first link you see which is the yellow card link you want us to complete?

Joolsg profile image
Joolsg in reply toRestlessginger

Yes. You fill out a report for Ropinirole or Pramipexole or rotigotine.And you describe augmentation. That the drug made RLS worse. More severe. Started earlier in day or spread to other body parts.

Or if ICD- you describe the problem.

Restlessginger profile image
Restlessginger in reply toJoolsg

All done

Tryffan1 profile image
Tryffan1

What do I type in rhe box. It will not accept 'ropinerole ' Thanks

Joolsg profile image
Joolsg in reply toTryffan1

You click on the blue link which takes you to adverse effects. Then the yellow card heading appears. You type in Ropinirole as above. It works for me.

Text
ziggypiggy profile image
ziggypiggy

Nice Joolsg. One would think doctors should report side effects of medication into appropriate databases. I'm sure big pharma would never allow it. I wonder if fhe US has an equivalent reporting system.

Joolsg profile image
Joolsg in reply toziggypiggy

Yes it does. FDA. I live in the UK but reported augmentation via FDA and the Yellow Card Scheme.

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