Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

21,483 members • 15,160 posts

All posts for October 2023

Won a legal case - advice

hi everyone, just wanted to let you know that after 2 and a half years with my case being handled by medical negligence solicitors, it has now settled in my...

hi everyone, just wanted to let you know that after 2 and a half years with my c...

Snoops112233

•7 months ago

17 Replies

Consultation with Prof Walker - says it's not RLS...

Curious consultation with Prof Walker (who apart from being 20 minutes late was very kind and attentive. Recommended if you can get through to his......

Curious consultation with Prof Walker (who apart from being 20 minutes late was ...

howbeit-abroad

•7 months ago

7 Replies

Iron tablets - difference?

I’m based in the UK and am currently taking Ferrous Fumerate (switched from Ferrous Sulphate) to try to increase ferritin levels. My Ferritin levels had gone...

I’m based in the UK and am currently taking Ferrous Fumerate (switched from Ferr...

Bowie4eva

•7 months ago

33 Replies

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Oral iron regimen

I had an iron infusion (Newcastle uk) last December which put my serum ferritin up from 37 to 237, and helped considerably. However, it has gradually slipped...

I had an iron infusion (Newcastle uk) last December which put my serum ferritin ...

Edengirl58

•7 months ago

20 Replies

Buprenorphine / Gloucestershire or nearish

Does anyone living in Gloucestershire Uk know of a Dr / Neurologist that is happy to prescribe Buprenorphine for Ropinirole withdrawal ? My Gp wont ....

Does anyone living in Gloucestershire Uk know of a Dr / Neurologist that is happ...

Huntingleroy

•7 months ago

12 Replies

update

I am now on 15mg norspan patch, this is keeping the leg at a bearable level. I still have to fight the tugging and pulling 24/7 but it is not so severe that I...

I am now on 15mg norspan patch, this is keeping the leg at a bearable level. I s...

Hidden

•7 months ago

2 Replies

Pramipexole, Mirtazapine and RLS

Hi,I suffered from RLS for 12yrs, but never took any medications. Earlier this year after discovering I had ferritin of 18, a short course of iron supplements...

Hi,I suffered from RLS for 12yrs, but never took any medications. Earlier this ...

Purdy_123

•7 months ago

13 Replies

pragabalin

thank you Sue for your advice on Pragabalin, my doctor has now increased my dose to 150mg which is a lot better, I have been on this dose for 7 days. I have...

thank you Sue for your advice on Pragabalin, my doctor has now increased my dose...

Hublot

•7 months ago

55 Replies

Gluten free anyone?

Just met my 2nd cousin who also has RLS like me. She is convinced going gluten free has stopped her RLS....I'm not sure about gluten but does anyone else think...

Just met my 2nd cousin who also has RLS like me. She is convinced going gluten f...

Allyp69

•7 months ago

25 Replies

Shaving down pills

Hi everyone, my mum who I’ve written about a lot here (80, restless legs along growth a whole host of other issues ) has perked up no end since getting her on...

Hi everyone, my mum who I’ve written about a lot here (80, restless legs along g...

Boldgirl45

•7 months ago

6 Replies

4.10 a.m. and up again!

I am soo tired of this ! I said that I hate to moan and I really do but I'm in such pain and so tired and my toes and leg's hurt! How's that for a moan ?! I...

I am soo tired of this ! I said that I hate to moan and I really do but I'm in s...

Danni54

•7 months ago

6 Replies

coming off Pramipexole and Ropinorole

I recently posted about my experience of cold turkey coming off Pramipexole and received so much advice and knowledge, thank you Sue, I was put on ropinorole,...

I recently posted about my experience of cold turkey coming off Pramipexole and ...

Coldandtired

•7 months ago

25 Replies

RLS returned after taking Duloxetine

Had RLS for many years, associated with Fibromyalgia. Having taken Amitriptylene, Nortriptyline , Pregabalin for my Fibro, my RLS has been under control....

Had RLS for many years, associated with Fibromyalgia. Having taken Amitriptylene...

Fra3021

•7 months ago

3 Replies

Pregabalin and REM/Deep Sleep

Hi, I am taking Pregabalin for my PLMD. I do not have RLS so I only take Pregabalin before my sleep. With Pregabalin, I can sleep, but when I check my sleep...

Hi, I am taking Pregabalin for my PLMD. I do not have RLS so I only take Pregaba...

Ganadaramabasa

•7 months ago

4 Replies

Copper water vessels

Copper water has health benefits, I don't know if they can help with augmentation, I suspect that it can. Place water in clean polished copper vessels over...

Copper water has health benefits, I don't know if they can help with augmentatio...

RLSSCARER

•7 months ago

14 Replies

Blue lotus

Blue lotus tea is a natural benzodiazepines it can help with sleep my partner is going through augmentation and she did get sleep last night after having a...

Blue lotus tea is a natural benzodiazepines it can help with sleep my partner is...

RLSSCARER

•7 months ago

1 Reply

CBD oil

does anyone with RLS use or have used CBD oil?

Moretravel1

•7 months ago

9 Replies

Does anybody know about Baclofen for RLS ?

I have been quiet for a few week's when my Ferritin levels were at 14 so a new Dr. put me on to Iron Sulphate and the level went up to 134 so they are wanting...

I have been quiet for a few week's when my Ferritin levels were at 14 so a new D...

Danni54

•7 months ago

16 Replies

Alternatively this information may be helpful

Hi here is some information that might be useful black strap molasses for iron Moringa for iron and sleep with many nutrients Mangosteen for anxiety and...

Hi here is some information that might be useful black strap molasses for iron ...

RLSSCARER

•7 months ago

Be the first to reply

Terahertz Therapy

Terahertz Therapy Blower/wand is a new technology is affordable and very helpful for RLS sufferers, it can make a massive difference, my partner love the warm...

Terahertz Therapy Blower/wand is a new technology is affordable and very helpful...

RLSSCARER

•7 months ago

2 Replies

Augmentation Video

I came across this video on Dr. Christopher Earley's profile page on John Hopkins Neurology website. They have reformatted their website, but much of his...

I came across this video on Dr. Christopher Earley's profile page on John Hopkin...

DicCarlson

•7 months ago

89 Replies

Ropinirole?

I'm 40 and have suffered restless legs now for about 10 years. Unsure if its noteworthy but i suffered with epilepsy from the age of 28 - 38 and was taking...

I'm 40 and have suffered restless legs now for about 10 years. Unsure if its not...

Nightmare1234

•7 months ago

31 Replies

Getting somewhere 🤞

Well from not impressed to impressed in one easy movement. Post my appointment with Doctor Jose Thomas I was finally able to see a GP at our surgery, not with...

Well from not impressed to impressed in one easy movement. Post my appointment w...

HipHop1972

•7 months ago

9 Replies

Vagus Nerve Stimulation for RLS

https://pubmed.ncbi.nlm.nih.gov/37846650/ An interesting study on Vagus Nerve Stumulation on 15 drug resistant RLS patients showed significant improvements in...

https://pubmed.ncbi.nlm.nih.gov/37846650/ An interesting study on Vagus Nerve St...

Joolsg

•7 months ago

12 Replies

total iron blood work

I recently got my blood work done. I am a bit confused as some numbers looks”normal”, 1 low and 1 high. Iron is 15.13 (N) Unsaturated iron binding capacity...

I recently got my blood work done. I am a bit confused as some numbers looks”nor...

Lespenney

•7 months ago

9 Replies

Upcoming surgery

I recently had cataract surgery on one eye. It was successful, but my surgeon told me afterward that it was very difficult. My RLS kicked in under sedation...

I recently had cataract surgery on one eye. It was successful, but my surgeon to...

MountainWanderer

•7 months ago

24 Replies

Memory problems and Cognitive decline

Thank you to you all for being such a supportive community. I am currently taking Tramadol and Pregabalin for my rls. Together with Trazadone I am having a...

Thank you to you all for being such a supportive community. I am currently takin...

GaryHB

•7 months ago

21 Replies

Iron and sleep

Moringa is loaded with iron and many healthy vitamins and minerals, no other plant in the world gives more nutrients than moringa, organic black strap molasses...

Moringa is loaded with iron and many healthy vitamins and minerals, no other pla...

RLSSCARER

•7 months ago

Be the first to reply

Update

So, I've finally stopped taking the ropinirole - last taken 2 weeks ago having reduced very gradually. Now taking 150mg pregabalin and that's been fine until...

So, I've finally stopped taking the ropinirole - last taken 2 weeks ago having r...

Firenze1

•7 months ago

3 Replies

What is known about Lorazepam long term use, does it only help with insomnia for a few weeks?

I'm interested in knowing if Lorazepam is OK for long term use, does it ween off and stop working for insomnia months later, does long term use worsen symptoms...

I'm interested in knowing if Lorazepam is OK for long term use, does it ween off...

RLSSCARER

•7 months ago

11 Replies

Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

All posts for October 2023

Won a legal case - advice

Consultation with Prof Walker - says it's not RLS...

Iron tablets - difference?

Oral iron regimen

Buprenorphine / Gloucestershire or nearish

update

Pramipexole, Mirtazapine and RLS

pragabalin

Gluten free anyone?

Shaving down pills

4.10 a.m. and up again!

coming off Pramipexole and Ropinorole

RLS returned after taking Duloxetine

Pregabalin and REM/Deep Sleep

Copper water vessels

Blue lotus

CBD oil

Does anybody know about Baclofen for RLS ?

Alternatively this information may be helpful

Terahertz Therapy

Augmentation Video

Ropinirole?

Getting somewhere 🤞

Vagus Nerve Stimulation for RLS

total iron blood work

Upcoming surgery

Memory problems and Cognitive decline

Iron and sleep

Update

What is known about Lorazepam long term use, does it only help with insomnia for a few weeks?

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