Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

22,053 members • 15,851 posts

All posts for October 2023

switching meds

I have really bad RLS. I took pramiprexole and had every side effect. I went through augmentation and went through horrible withdrawal. I did try gabapentin...

I have really bad RLS. I took pramiprexole and had every side effect. I went thr...

senders

•10 months ago

2 Replies

best anesthesia for knee replacement surgery ?

Greetings… I experienced my first struggle with daily RLS after 2 emergency gallbladder surgeries in 2021. My RLS lasted 10-12 horrible months post op… a...

Greetings… I experienced my first struggle with daily RLS after 2 emergency gal...

Friend7

•10 months ago

4 Replies

magnesium

Can anyone advise when is the best time to take magnesium? I currently take Ferrous Fumarate in the morning on an empty stomach with a glass of orange juice....

Can anyone advise when is the best time to take magnesium? I currently take Ferr...

NJB71

•10 months ago

5 Replies

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40 years of RLS

I started with RLS about 40 years ago. Over the past 15 years, it has been diagnosed as severe.I have tried all of the dopamine drugs, none worked except for...

I started with RLS about 40 years ago. Over the past 15 years, it has been diagn...

Trish8433

•10 months ago

41 Replies

Having trouble getting help from Doctor

Hi I'm new here, only finding this site recently. I have had RLS for years though it was usually one night here and there but over the past few weeks has...

Hi I'm new here, only finding this site recently. I have had RLS for years thou...

AndyBK201

•10 months ago

21 Replies

update

Well the acupunture doesn't seem to be helping at this stage, have stopped it and trying reflexology and Low level laser therapy. The GP put me on 20mg Norspan...

Well the acupunture doesn't seem to be helping at this stage, have stopped it an...

Hidden

•10 months ago

2 Replies

Anyone tried Kava?

Just wondering if anyone has tried Kava for Restless Legs?

Jezee

•10 months ago

6 Replies

Reintroducing DA at a low dose?

What is the current thinking around taking a low dose of a dopamine agonist in conjunction with another RLS medication? I took pramipexole ten years ago and...

What is the current thinking around taking a low dose of a dopamine agonist in c...

Hidden

•10 months ago

22 Replies

Probiotic to increase GABA and reduce glutamate

For those of you who are interested in the GABA / glutamate balance and its contribution to RLS / PLMD, here is an article that discusses the use of a...

For those of you who are interested in the GABA / glutamate balance and its cont...

Hidden

•10 months ago

8 Replies

is it restless leg syndrome or fibromyalgia

hi everyone, I’ve had intense pain for over 40 years in my legs when I lie down , I’ve been diagnosed with ME and then Fibromyalgia who knows what or which it...

hi everyone, I’ve had intense pain for over 40 years in my legs when I lie down ...

Hidden

•10 months ago

13 Replies

Iron infusions

Hello, I am writing on behalf of my 87 year old mother, who suffers greatly from RLS. These are her blood test results, showing low saturation and high total...

Hello, I am writing on behalf of my 87 year old mother, who suffers greatly from...

floydpink

•10 months ago

12 Replies

REM sleep, being clear.

Hoping one of the experts can pull me through tech terms and sites that are "inaccurate". I am now convinced though unconfirmed rem sleep. No one has told me...

Hoping one of the experts can pull me through tech terms and sites that are "ina...

Spurdog1

•10 months ago

10 Replies

Could my iron supplement be causing weight gain?

I have been gaining weight despite being very careful in what I eat since starting my gentle iron supplement. A google search has come up with very mixed...

I have been gaining weight despite being very careful in what I eat since starti...

Hectorsmum2

•10 months ago

3 Replies

RLS 2 oclock

Dear friends, I am taking pregabaline now for 5 weeks , 25 mg more every few days. Now at 150 mg. I came of pramipexol this summer, it was horrible! Now I...

Dear friends, I am taking pregabaline now for 5 weeks , 25 mg more every few day...

Mipilimi

•10 months ago

6 Replies

Pregabalin side effect – mental health

Hello everyone, To start with some positives: a big thank you for your advice and support a few months ago. It gave me the confidence to ask the GP to...

Hello everyone, To start with some positives: a big thank you for your advice ...

RiversofLondon

•10 months ago

34 Replies

Missing video

Previously earlier this year I seen a video from a neurologist or it was on the restless leg syndrome foundation website, it was a video explaining to get this...

Previously earlier this year I seen a video from a neurologist or it was on the ...

RLSSCARER

•11 months ago

7 Replies

Antipsychotics causing restless brain, Antidepressant causing restless sleep

If you can't love someone at their worst, you don't deserve to love them at their best. I meet a woman suffering catatonia and RLS in a psychiatric hospital,...

If you can't love someone at their worst, you don't deserve to love them at thei...

RLSSCARER

•11 months ago

6 Replies

How to escape Augmentation?

I only learnt about Health Unlocked and its efforts on RLS through RLS -UK and this is my first post. I have suffered from RLS for several years and various...

I only learnt about Health Unlocked and its efforts on RLS through RLS -UK and t...

davchar23

•11 months ago

61 Replies

New research: Aripiprazole, a Novel Option in the Management of Restless Legs Syndrome (2023)

A new paper reporting a small case series of 4 patients who got relief from low dose aripiprazole (abilify ) after augmentation that was resistant to other...

A new paper reporting a small case series of 4 patients who got relief from low ...

Avart

•11 months ago

4 Replies

RLS expert in Denver

Anyone know of an RLS expert in Denver area?Thanks folks, Chris

climber54

•11 months ago

4 Replies

Headaches with pregabalin

Hi I've been on pregabalin for 4 weeks now but I've started getting extremely bad headache about an hour after taking it, has anyone else had this and does it...

Hi I've been on pregabalin for 4 weeks now but I've started getting extremely ba...

Rangers52

•11 months ago

18 Replies

Dipyridamole?

Hello, As anyone here tried dipyridamole to treat RLS? This article looks promising:...

Hello, As anyone here tried dipyridamole to treat RLS? This article looks promi...

Mikatrap

•11 months ago

12 Replies

How to taper ropinirole when taking 4x/day

My 87 year old mother (who also has Parkinson's) currently takes ropinirole 4 times a day. I have started tapering the ropinirole (with her neurologist's...

My 87 year old mother (who also has Parkinson's) currently takes ropinirole 4 ti...

Quiddle

•11 months ago

3 Replies

update -reducing ropinerole

Update on my husband, he is down from 8 mg to 4 mg ropinerole daily and about to transition to a lower amount again. Has been lowering it down .25 mg every 2-3...

Update on my husband, he is down from 8 mg to 4 mg ropinerole daily and about to...

Sandalsforever

•11 months ago

2 Replies

Neurologist in Dallas-Ft. Worth, TX area who treats RLS.

Sue (or any of you who regularly post answers on HealthUnlocked) do you know the names of a couple of neurologists in the Dallas-Ft. Worth area of Texas who...

Sue (or any of you who regularly post answers on HealthUnlocked) do you know the...

robertff3401

•11 months ago

7 Replies

All new to me!

I came across this group by sheer accident I wasn’t looking for advice re the medication I was taking but after reading the posts I’m now worried about it all....

I came across this group by sheer accident I wasn’t looking for advice re the me...

Apricottoby

•11 months ago

6 Replies

Increasing pregabalin / gabapentin

I regularly see advice here to the effect that pregabalin (and by extension gabapentin?) needs to be given at least three weeks to establish whether it’s...

I regularly see advice here to the effect that pregabalin (and by extension gaba...

Hidden

•11 months ago

2 Replies

Good news and bad news

I said I'd update the forum with my efforts to get an iron infusion. I'll start with the bad news which is that the neurologist at Newcastle has said they...

I said I'd update the forum with my efforts to get an iron infusion. I'll start ...

Munroist

•11 months ago

11 Replies

Not impressed

Doctor Jose Thomas who specialises in Sleep Disorders and RLS wrote to my GPS surgery after my consultation with him in Cardiff on the 27th September The...

Doctor Jose Thomas who specialises in Sleep Disorders and RLS wrote to my GPS su...

HipHop1972

•11 months ago

19 Replies

coming off Pramipexole

my doctor has ordered me the amount of Pramipexole he wants me to take to stop completely Pramipexole. Right now .75 mg of Pramipexole at night, with...

my doctor has ordered me the amount of Pramipexole he wants me to take to stop c...

Moretravel1

•11 months ago

16 Replies

Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

All posts for October 2023

switching meds

best anesthesia for knee replacement surgery ?

magnesium

40 years of RLS

Having trouble getting help from Doctor

update

Anyone tried Kava?

Reintroducing DA at a low dose?

Probiotic to increase GABA and reduce glutamate

is it restless leg syndrome or fibromyalgia

Iron infusions

REM sleep, being clear.

Could my iron supplement be causing weight gain?

RLS 2 oclock

Pregabalin side effect – mental health

Missing video

Antipsychotics causing restless brain, Antidepressant causing restless sleep

How to escape Augmentation?

New research: Aripiprazole, a Novel Option in the Management of Restless Legs Syndrome (2023)

RLS expert in Denver

Headaches with pregabalin

Dipyridamole?

How to taper ropinirole when taking 4x/day

update -reducing ropinerole

Neurologist in Dallas-Ft. Worth, TX area who treats RLS.

All new to me!

Increasing pregabalin / gabapentin

Good news and bad news

Not impressed

coming off Pramipexole

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