Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

21,483 members • 15,160 posts

All posts for December 2019

Where do I go from here?

Hi everyone, I‘m back looking for advice again before seeing my doctor. A quick update: weaned myself off Ropinirole after augmenting which was horrendous. I...

Hi everyone, I‘m back looking for advice again before seeing my doctor. A quick...

Scattypatty

•4 years ago

19 Replies

Sheffield

HAs anyone had any dealings with or treatment at the Royal Hallamshire hospital in Sheffield the adult Neurological department for sleep studies and restless...

HAs anyone had any dealings with or treatment at the Royal Hallamshire hospital ...

Hoochybaby

•4 years ago

28 Replies

Strange coffee relief

It’s been quite sometime since I’ve posted. I went through hell to wean off of the 0.75mg dose of pramipexole. Managed to stay off for approximately 2...

It’s been quite sometime since I’ve posted. I went through hell to wean off of ...

Moonpen

•4 years ago

10 Replies

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“Theraworx” (magnesium sulfate) vs Magnesium Oil (magnesium chloride)

Hi, since there are many people that have posted concerning having muscle spasms, muscle twitches (fasciculations) or muscle cramps, I would like to tell about...

Hi, since there are many people that have posted concerning having muscle spasms...

GrandMAptm

•4 years ago

3 Replies

Fda warning - Gaba and pregabalin.

FDA Alert - FDA Warns About Serious Breathing Problems with Seizure and Nerve Pain Medicines Gabapentin (Neurontin, Gralise, Horizant) and Pregabalin (Lyrica,...

FDA Alert - FDA Warns About Serious Breathing Problems with Seizure and Nerve Pa...

Madlegs1

•4 years ago

22 Replies

Any help appreciated!!

When I was 18 (I’m now 20), I was diagnosed with RLS. I’ve had the same excruciating pain that lasts all night and has me in tears all night for as long as I...

When I was 18 (I’m now 20), I was diagnosed with RLS. I’ve had the same excrucia...

paigepatess_

•4 years ago

9 Replies

Can you stop taking baclofen at home .does everyone have withdraw

Does everyone go threw withdraw

Asheffield

•4 years ago

Be the first to reply

Should I be concerned about getting off baclofen

I am scared to wing.down I take about 8 20mg a day how long does the withdraw how long does it take

I am scared to wing.down I take about 8 20mg a day how long does the withdraw ho...

Asheffield

•4 years ago

1 Reply

Restless Legs and Medication

I have recently read that some antibiotics can cause restless leg syndrome. I know that being diabetic can also cause these very unpleasant sensations. I...

I have recently read that some antibiotics can cause restless leg syndrome. I k...

RoadRunner44

•4 years ago

2 Replies

New Visit to Neurologist

My legs have been going crazy recently. When I get a bad attack, my left leg which has a knee replacement can be so painful as well as restless. I also have a...

My legs have been going crazy recently. When I get a bad attack, my left leg whi...

Scottie99

•4 years ago

4 Replies

A family curse!

Hello all. I am new to this site but not new to Restless Legs Syndrome. Unfortunately it has passed down the generations which a Consultant Neurologist found...

Hello all. I am new to this site but not new to Restless Legs Syndrome. Unfortun...

Hidden

•4 years ago

9 Replies

Gluten

Does gluten affect RLS?

1234kids

•4 years ago

10 Replies

My GP said "What's Augmentation?"

So I went to see my GP today, I armed myself with my RLS book and printouts and told him about my awful symptoms and that I wanted to come off ropinerole and...

So I went to see my GP today, I armed myself with my RLS book and printouts and ...

rls-insomniac

•4 years ago

29 Replies

Pregabalin

Hoochybaby

•4 years ago

11 Replies

EARLS patient survey presented at European RLS Study Group (EURLSSG) Conference

Last year, I invited users of this page to take part in the European Alliance for RLS (EARLS) Patient survey, the findings of which were presented at the 2019...

Last year, I invited users of this page to take part in the European Alliance fo...

Daragh

•4 years ago

1 Reply

My RLS is 99% better and I've been able to nearly stop my Gabapentin

I've had RLS for about 10 years. To the point where I feel like I will lose my mind if I have to live another 10 years like this. I'm in my 50s. .. and NO I...

I've had RLS for about 10 years. To the point where I feel like I will lose my m...

dragonlylover

•4 years ago

18 Replies

Trazodone, RLS, and pregnancy

Hi all! Hope everyone is well. I posted about my pregnancy and rls struggles a couple of days ago and just wanted to update and ask some questions and hear...

Hi all! Hope everyone is well. I posted about my pregnancy and rls struggles a ...

Emmarielee

•4 years ago

8 Replies

Insomnia on Targin?

Hi, I have tried Targin (also called Targinact) twice now and both times it took me about 4 hours to get to sleep. (I had a similar experience on Tramadol)....

Hi, I have tried Targin (also called Targinact) twice now and both times it took...

Hidden

•4 years ago

13 Replies

New member, question about iron and rls

Hello, hope someone can help me, I've been given ferrous sulfate tablets 200mg three times a day as I have rls symptoms and a ferritin level of 27. I was just...

Hello, hope someone can help me, I've been given ferrous sulfate tablets 200mg t...

V1974

•4 years ago

3 Replies

80 ice cold baths - UPDATE

Two months ago I started and tomorrow I will grit my teeth for the last time. I have managed one a day, occasionally two but not often 😳. They have become...

Two months ago I started and tomorrow I will grit my teeth for the last time. I...

Tuccatoo

•4 years ago

25 Replies

Gabapentin

Hi all I've had a setback with my fight against pramipexole I've been taking Gabapentin for a week now and suddenly yesterday became aware of white spots/lumps...

Hi all I've had a setback with my fight against pramipexole I've been taking Gab...

Hoochybaby

•4 years ago

5 Replies

Hello fellow RLS/ PLM sufferers

Hi all I am new to here and only been a sufferer for 2 years ( worst 2 years of my life) hats off to anyone that has had this condition since birth! I have...

Hi all I am new to here and only been a sufferer for 2 years ( worst 2 years of...

Natalied1

•4 years ago

4 Replies

Hi! New here and pregnant.

Hey everyone. I just found this site during my nightly rls marathon and I'm so incredibly thankful to find a community of people that I can fight this battle...

Hey everyone. I just found this site during my nightly rls marathon and I'm so i...

Emmarielee

•4 years ago

37 Replies

Gabapentin with Ropinirole

I have been through 2 different neurologists over the last 10 years, as they keep moving elsewhere. I ended up seeing a PA, who of all things, recommended that...

I have been through 2 different neurologists over the last 10 years, as they kee...

wcp2008

•4 years ago

9 Replies

Optimism, anyone?

Correct me if I’m wrong, but I remember that around 2017 there was a flutter of medical optimism following some research and discoveries. Adenosine was said...

Correct me if I’m wrong, but I remember that around 2017 there was a flutter of...

rkatt

•4 years ago

15 Replies

RLS linked to Increased Suicide Risk

The Fall (Autumn) edition of the US RLS foundation magazine contains an article on increased suicide risk for RLS sufferers. This confirms the study carried...

The Fall (Autumn) edition of the US RLS foundation magazine contains an article ...

Joolsg

•4 years ago

23 Replies

New, recently diagnosed

Hello, I’ve just joined as I wanted tips etc on dealing with RLS. I’ve beem to my doctors many times over the years with a prickling crawling sensations in my...

Hello, I’ve just joined as I wanted tips etc on dealing with RLS. I’ve beem to ...

Monty321

•4 years ago

2 Replies

Friend took my story to his doctor

Friend of mine went to the doctors today he has struggled with RSL but never taken any meds , just all the natural alternatives hot water bottles , magnesium...

Friend of mine went to the doctors today he has struggled with RSL but never tak...

Shumbah

•4 years ago

3 Replies

Pramipexole

I am in a war with pramipexole it really is a battle and I feel I'm being tortured. I was on .78mg per day but now I have knocked off the .26mg pramipexole I'm...

I am in a war with pramipexole it really is a battle and I feel I'm being tortur...

Hoochybaby

•4 years ago

7 Replies

Reminder regarding Neural link

The trustees of RLS-Uk have asked for this to be posted: https://mailchi.mp/de94047e228b/neuro-pledge-supporter-3803161?e=63b8df67d6

The trustees of RLS-Uk have asked for this to be posted: https://mailchi.mp/de94...

martino

•4 years ago

1 Reply

Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

All posts for December 2019

Where do I go from here?

Sheffield

Strange coffee relief

“Theraworx” (magnesium sulfate) vs Magnesium Oil (magnesium chloride)

Fda warning - Gaba and pregabalin.

Any help appreciated!!

Can you stop taking baclofen at home .does everyone have withdraw

Should I be concerned about getting off baclofen

Restless Legs and Medication

New Visit to Neurologist

A family curse!

Gluten

My GP said "What's Augmentation?"

Pregabalin

EARLS patient survey presented at European RLS Study Group (EURLSSG) Conference

My RLS is 99% better and I've been able to nearly stop my Gabapentin

Trazodone, RLS, and pregnancy

Insomnia on Targin?

New member, question about iron and rls

80 ice cold baths - UPDATE

Gabapentin

Hello fellow RLS/ PLM sufferers

Hi! New here and pregnant.

Gabapentin with Ropinirole

Optimism, anyone?

RLS linked to Increased Suicide Risk

New, recently diagnosed

Friend took my story to his doctor

Pramipexole

Reminder regarding Neural link

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