Gabapentin : Hi all I've had a setback... - Restless Legs Syn...

Restless Legs Syndrome

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Gabapentin

Hoochybaby profile image
5 Replies

Hi all I've had a setback with my fight against pramipexole I've been taking Gabapentin for a week now and suddenly yesterday became aware of white spots/lumps on my arms and legs they didn't itch or pain but reading the literature that comes with the tablets skin problem are one of the side effects and can be a serious condition effecting the internal organs liver etc. I saw my gp today and was told to stop the Gabapentin immediately and I was prescribed a steroid cream to apply twice a day. I was also told not to reduce further for the time being the pramipexole dosage. This us obviously a set back but I've no alternative at the moment.

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Hoochybaby profile image
Hoochybaby
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Lapsedrunner profile image
Lapsedrunner

How about codeine...apologies if you’ve already talked about it, I haven’t looked back through your posts.

You can buy it combined with paracetamol (Cocodamol) in the UK or it can be prescribed on its own.

Oh NO! Sorry to hear about the setback. I haven't heard of the white spots in relation to gabapentin.

There are other explanations for white spots on arms and legs.

Obviously I don't know what your white spots look like, but I noticed I had some white spots in July.

I noticed shortly after I had a bone scan which entailed having an injection of a radioactive isotope. I was radioactive for a day or so! At first I thought might be a result of this, but I believe it was just a coincidence. I never connected them with gabapentin, I have been taking it since August 2018 and the spots have since disappeared without me stopping the gabapentin.

The most plausible reason for my white spots, I concluded was a fungal infection. I can't recall what I treated them with, but within a week, they'd gone.

medicalnewstoday.com/articl...

Your GP is right to be cautious, but it would be a shame if you have been prevented from benefiting from gabapentin for no good reason.

I read that white spots due to gabapentin occur on the lips or in the mouth, not arms or legs.

More exactly "sores, ulcers, or white spots on the lips or in the mouth"

mayoclinic.org/drugs-supple...

drugs.com/sfx/gabapentin-si...

Allyp69 profile image
Allyp69

That's why I have never taken any meds for RLS...very hard....😕

in reply to Allyp69

No meds. Wow that’s impressive.

Can you sleep though? If I didn’t take anything I wouldn’t sleep a wink.

Apparently my RLS is severe ( according to King’s) so I don’t think I have much choice.

Good for you if you can cope without them .

Allyp69 profile image
Allyp69

Well perhaps my RLS isn't as bad as yours but when I get it...at night normally...I have to either get up and move about or if late, go to bed....only meds I take is Valerian...but have had RLS for nearly 50 years but not every night. In the UK I was never offered meds....hope you finally get some help...🤔

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