Sleepless nights: My restless legs seem... - Restless Legs Syn...

Restless Legs Syndrome

21,483 members15,160 posts

Sleepless nights

frank1942 profile image
5 Replies

My restless legs seem to be all consuming usually they startaround 5.00 in the afternoon,they start sometimes in thegroin area or in my calfs,on a bad night i have to move and walk,its so bad you find it impossible to consentrate on anything,working on the comptor or watching a film is impossible.some nights its like being a zombie,your body needs to stop and sleep your brain says no way.getting used to the short nights and no sleep

Written by
frank1942 profile image
frank1942
To view profiles and participate in discussions please or .
5 Replies
Madlegs1 profile image
Madlegs1

Information required.

What medications are you taking, for how long? And dosage?

Joolsg profile image
Joolsg

Ditto everything Madlegs has asked. I’ll bet you’re on Ropinirole or pramipexole.

Frank, you have my sympathy, I recognise your description, feeling like a zombie with your brain craving sleep, but your body not alllowing it.

The intensity of your symptoms and the earliness in the day when they start does suggest an issue with your medication. If that's the case, then there are solutions.

That's why the other's are asking for some detail.

jiniejinx27 profile image
jiniejinx27

I have had restless legs for over 20yr my daughter also has it i found mine got worse after gastric surgery i take ropinorole gabapentine and nefopam i also take iron 3times a day and magnesium 1gram but I am up through the night can't even sit down got to March on the spot lately I have been falling a sleep standing up so have had black eyes bruised and battered got neurologist in October so hope he has some idea of the sleep deprivation i am suffering

in reply to jiniejinx27

Hi, your problem, specifically insomnia, may be in at least part due to Ropinirole. Dopamine Agonists are renowned for causing generalised restlessness, (as distinct from the "restlessness" in RLS. ). Insomnia is a side effect of Ropinirole.

Paradixically, you may find reducing your Ropinirole improves your sleep.

What doses are you taking?

You may also like...

An almost totally sleepless night

reasonably felt with the RLS kept me awake all night. Well last night at 7 I took one codeine and 2...

Another sleepless twitchy night!

Having my 4th night with no sleep, have a mum with Alzheimer's to look after and at wits end. Doctor

Gabapentin and sleepless nights

Gabapentin. At present on600 mg nightly. Heavy head and hardly any sleep. Is this normal. Need to...

Sleepless night :(

RLS is bad. Im so sorry for that. I have had RLS really bad the past week, every night my legs...

Sleepless nights

in my arms, I get it in the daytime but also at night which is horrendous, I work full time on my...