RSL is making me depressed: Hi after... - Restless Legs Syn...

Restless Legs Syndrome

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RSL is making me depressed

Lolabear1 profile image
25 Replies

Hi after watching the program on rls I realised I wasn't the only one,so when I sit and rest usually about 8 my legs start like electric shocks that build up in my thigh then shoot down my leg which get worse when I go to bed,my partner said I kick all night wear holes in the bed sheets ect,so I can't go out to the cinema ect as when I relax it starts,I am now on anti depressants as it's making my life hell and I can't cope with the sleepless nights, so is there any cure or help I cam get?

Thanks jamie

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Lolabear1
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25 Replies

Hi Lolabear this is the criteria for RLS, irlssg.org/diagnostic-crite... It also sounds like you are suffering with plmd, periodic limb movement disorder, which happens while you are asleep. What is the name of your anti-depressant and most can actually make RLS worse. There are no cures, only treatments which can give relief, look at the treatments for RLS on rls-uk.org

Lolabear1 profile image
Lolabear1 in reply to

Hi thankyou for your advice I'm on sertraline 50mg for 5wo months now but I have had rsl for years

in reply to Lolabear1

Sertraline is a Selective Serotonin Reuptake Inhibitor (SSRI). SSRIs are known to exacerbate RLS symptoms.as Elisse mentions.

This could be creating a vicious circle for you, RLS causing depression, antidepressant making RLS worse, RLS making depression worse and so on.

SSRIs are also a standard treatment for insomnia as part of a mental.health problem, but are of little value for insomnia due to RLS.

Whoever prescribed you a SSRI knowing you have RLS and, apparently, not prescribing an appropriate effective RLS medicine was doing you no favour.

As Jools says, a more effective medication would be Pregabalin or Gabapentin. These are also particularly good for RLS sufferers with PLMD, which you have.

Although it might seem counterintuitive, I think you may benefit from stopping the Sertraline. Along with Pregabalin this would improve your RLS, help.you sleep better and hopefully lift your depression.

Do not stop.it suddenly if you decide to do that, you have to lower the dose gradually.

If your depression is part of a mental health problem, antifepressants, in the longer term are not a good solution. They should be used short term only. It would be much better to seek psychological therapy. Talking therapies can be useful and a CBT or Mindfulness programme even better.

Graham3196 profile image
Graham3196 in reply to

There are things you can do to fix your RLS other than drugs. I will send you some info tonight

in reply to Graham3196

Thanks Graham, I'm not sure why you're saying this to me, but Lolabear might appreciate it.

Graham3196 profile image
Graham3196 in reply to

Sorry I must have clicked on the wrong "reply" button

johannasuar profile image
johannasuar in reply to Graham3196

I’m very interested in what else besides drugs help RLS, I’ve had it for 10 years now and I take Tramadol

Joolsg profile image
Joolsg

A better option would have been to test your blood. Raising serum ferritin and serum iron should be the first step, then checking for triggers like anti histamines and Benadryl.

As Elisse has advised, read the links and check the name of the anti depressant- most cause RLS or make it worse ( but most doctors don’t even know this).

First line meds treatment now is pregabalin- it stops RLS and helps sleep.

You may relieve your RLS by raising iron and avoiding triggers.

Read EVERYTHING you can on this site as the more you know, the better the results you’ll get.

Sara_2611 profile image
Sara_2611

Hi

it looks like Elisse has given you the links to point you in the right direction ,I can only suggest that you check them out & see if theyre any help to you

Good luck to you.

Casscass1 profile image
Casscass1

There are medicines that can make RLS better. Definitely see a sleep doctor if you can and try them! They will check your blood for iron levels before prescribing anything which is the correct course.

lower1 profile image
lower1

Hello. I find my RLS is better if I always sit up totally straight, especially in the evenings.

marigold60 profile image
marigold60 in reply to lower1

Yes I find that too. If my rls comes on before pills begin to work I get up from sofa and sit up straight on a hard chair. It seems to originate from the base of my spine when it comes on and doing this, maybe changing posture works

lower1 profile image
lower1 in reply to marigold60

I don't take any medication. There is a posture I take and hold, and it relieves it within about 3 mins. This involves pressure across the base of the spine, and I also believe

this is where mine originates from. Very interesting that you also sit up straight,

and I would also recommend sitting on something firm.

Dakota13 profile image
Dakota13 in reply to lower1

Thank you for mentioning this. I hadn’t heard of it before. I will definitely try it.

lower1 profile image
lower1 in reply to Dakota13

No harm in always having a good posture. Marigold60 also finds this helpful, so

have a read of theirs.

WendyBea profile image
WendyBea in reply to lower1

Yes, me too. I also like a rocking chair as it provides movement and distraction.

lower1 profile image
lower1 in reply to WendyBea

That is interesting. At least some of us can manage the symptoms.

WendyBea profile image
WendyBea in reply to lower1

Well....”manage” is a matter of degree. Some days, nothing helps, as we all know.

johannasuar profile image
johannasuar in reply to WendyBea

Ha, I didn’t know sitting up straight helped others, I thought it was just me, but like you said, it depends on the day, if the RLS kicks in before the meds, I’m doomed for about two hours and I just have to walk it out regardless of the time of night.

Lolabear1 profile image
Lolabear1

Thanks everyone,my doctor has not got a clue about any of it and has fobbed me off for years,and if it wasn't for that documentary I wouldn't of known it wasn't just me

Mijmijkey74 profile image
Mijmijkey74 in reply to Lolabear1

Where was the documentary on? BBC/ITV/CH4/Netflix etc?

WendyBea profile image
WendyBea

So sorry you were feeling all alone in this, and with an unsympathetic doctor, too. All of the above advice is good and what I've been told. I'm now trying a TENS machine in hopes of getting off some of my meds. It's only the first day, so there's nothing to report yet. I noticed the comments about sitting straight. If I'm reclining in my Lazy-Boy chair and the RLS starts up, I've sometimes noticed placing my feet flat on the floor and sitting more erect also helps, as does a rocking chair, as it supplies movement but is a bit relaxing, too.

Poundpup69 profile image
Poundpup69

Howdy Mr Jamie an sleepless partner

MY bf saI'd same thang bout me kicking him at night

Neupro sticker made just for this an Made only for this?

I put where the side part of my speedo goes?

I'm a hairy guy an is only spot I'm not fuzzy

Have suffered this Fer years

Longer then the 15 he's been wit me..?

I cannot say enough bout this

1st night I wore it no problems since

I forget it's on now..?

It last on. Me least 3 er 4 days.

I'm on the 6 mg patch..

I wish you an your partner warm fuzzy dreams..

Redrls profile image
Redrls

Go to doctor. Thwy cam lesson the rls problems!

Ert223 profile image
Ert223

Oh boy antidepresents ...there is one antidepressant that works on the dopamine receptors if your on the ones that effect the serotonin levels in your brain it might make your rls worse. Psychiatrist know nothing about RLS...When they put me in the Nut House from depression the idiots gave me a new Serotonin reuptake inhibitor the pain in my legs was the worse I HAVE EVER HAD IN MY LIFE. They were telling me i did not have RLS i told them here is the number of my Neurologist give him a call and tell him what it is I have. They were saying I was on to much Norco...Well they thought i was a drug addict and it was there job to save me from myself. What the fuck. They actually think I like being on any of this shit. All I know is if I did not have relief for RLS I would definately put a bullet in my brain. Check the antidepressant your on...it can make RLS a lot worse.

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