Posts - NRAS | HealthUnlocked

NRAS

36,600 members • 45,218 posts

All posts for August 2018

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I was quite surprised when my RA nurse told me not to Join any RA forums! I could understand it if Fife NHS ran a group of some sort, but they don’t and when...

I was quite surprised when my RA nurse told me not to Join any RA forums! I cou...

JanetMaryBishop

•6 years ago

53 Replies

Hives

I’m very new to all this and just waiting a hospital appointment to come through. My blood results came back as strongly suggesting RA could be the problem,...

I’m very new to all this and just waiting a hospital appointment to come through...

Juliehh73

•6 years ago

32 Replies

Steriods

i have been on steriods for about 8 ish years. Have tried a few times giving them up , I am trying again I normally take 5 mg a day and am reducing them by...

i have been on steriods for about 8 ish years. Have tried a few times giving the...

Jillyanne

•6 years ago

28 Replies

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kidney trouble

hi I am on humira and other meds I dont know if its normal to have trouble with kidney infections. it got so bad once I had septic

hi I am on humira and other meds I dont know if its normal to have trouble with...

Hurtalot

•6 years ago

6 Replies

NRAS Group Meetings Next Week

Dear All Please find details of the NRAS Group meeting taking place next week. For more information please visit our website www.nras.org.uk/groups. NRAS...

Dear All Please find details of the NRAS Group meeting taking place next week. F...

Kim-NRAS

NRAS•6 years ago

1 Reply

Happy Friday everyone

I am home

Hidden

•6 years ago

10 Replies

No health insurance

Hello to all, I'm new here And wanted to see if anyone could point me in the right direction, I lost my health insurance and I can't afford to pay for the Dr....

Hello to all, I'm new here And wanted to see if anyone could point me in the rig...

crystalkile

•6 years ago

12 Replies

Sorry I’ve been quiet!!

Remember when I first posted when I said I wanted to do the trip of a lifetime to Disneyland Paris? As my partner had got a big tax rebate and it’s was my one...

Remember when I first posted when I said I wanted to do the trip of a lifetime t...

Hels1989

•6 years ago

22 Replies

Thought it was time to formally introduce myself ☺️

I have been following you all since about Christmas. I am a 53 year old lady and was diagnosed with RD when I was 25, it was initially treated as Lupus. I...

I have been following you all since about Christmas. I am a 53 year old lady and...

Lulumae

•6 years ago

22 Replies

Best Painkillers?

Hi All I hope your all ok - at least it’s Friday! I am struggling with pain at the moment having been put on Leflunomide to try with my Abatercept and after...

Hi All I hope your all ok - at least it’s Friday! I am struggling with pain a...

sjhewitt42

•6 years ago

21 Replies

Patient Association request for participants on Biological Biosimilar survey and focus group in Birmingham

As many of you will be aware NRAS has been working with NHS England Biosimilars programme board and continues to be the patient voice of those living with RA...

As many of you will be aware NRAS has been working with NHS England Biosimilars ...

Clare-NRAS

Partner•6 years ago

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Baricitinib and Methotrexate

Hello everyone, I’ve not posted for sometime but just wondering if anybody here is on a combo of Baricitinib and Methotrexate. I’ve just started this combo...

Hello everyone, I’ve not posted for sometime but just wondering if anybody here ...

Luthien66

•6 years ago

9 Replies

Plaquenil and RA

Reply to Plaquenil. I took it for over 20 years. I believe it was the cause of my gastro (IBS) problems, I Had to go off because I failed my eye field of...

Reply to Plaquenil. I took it for over 20 years. I believe it was the cause of m...

padunnivan

•6 years ago

6 Replies

Quinoric

I’ve been taking Quinoric tablets twice a day for 14 weeks and have been suffering with daily stomach cramps . Some days they are very brief and others they...

I’ve been taking Quinoric tablets twice a day for 14 weeks and have been sufferi...

Nanabrodie

•6 years ago

10 Replies

pip

Hi I was diagnosed just over a year ago with RA I will be starting my 4th biological treatment in a week or 2, the other 3 didn't work for me, I'm going to...

Hi I was diagnosed just over a year ago with RA I will be starting my 4th biolog...

jeniren

•6 years ago

9 Replies

Guided steroid injection into hip

Hi, Im going in as a day patient on Monday to have a guided steroid into my left hip. Ive had absolutely no information on this apart from being told to arrive...

Hi, Im going in as a day patient on Monday to have a guided steroid into my left...

Hidden

•6 years ago

20 Replies

Always hungry

I started on Benepali last March and am always hungry. I have put on ten pounds! has anyone else found this or am I just being greedy?

I started on Benepali last March and am always hungry. I have put on ten pounds!...

vonniesims

•6 years ago

13 Replies

Helpful products from Lidl released Sunday

Following on from earlier threads about bathing and the gadgets some people use, it seems Lidl were listening (ha ha, as if!) and are bringing out a range of...

Following on from earlier threads about bathing and the gadgets some people use,...

MissMinto

•6 years ago

6 Replies

My decade long date with #Rheum

After 10 years, #Rheum and I have separated. My rheumatologist confirmed that all indicators suggest she’s left me (for now). I’ve been off meds for 2 years....

After 10 years, #Rheum and I have separated. My rheumatologist confirmed that al...

dreds

•6 years ago

7 Replies

Any tips on how to deal with steroid hunger?

I'm in the first week of my 4 week course and don't want to gain weight :(

Savannahseger

•6 years ago

10 Replies

Upper respiratory tract infection.

Unfortunately I picked up a nasty cough virus, stopped my metojet and Benapali but it didn't clear. Two weeks later after many hours of sleepless nights...

Unfortunately I picked up a nasty cough virus, stopped my metojet and Benapali b...

Mall

•6 years ago

1 Reply

Still unwell!

Hi guys Hope well here I am 6 months later and still unwell had scans on most parts of my body awaiting one on my tummy and a colonoscopy. So far nothing has...

Hi guys Hope well here I am 6 months later and still unwell had scans on most p...

Denise64

•6 years ago

24 Replies

UPDATE re CIMZIA & Infection

So did ring, gp called back & I saw her at 11.15 . Took all my vitals and as I had taken paracetamol temp was normal despite feeling super rubbish ( It was...

So did ring, gp called back & I saw her at 11.15 . Took all my vitals and as I h...

MAHGS

•6 years ago

4 Replies

Newly diagnosed

Hi I’ve found this site sort of by accident when looking for support groups, I have just been diagnosed with RA, I also have fibromyalgia. The RA diagnosis has...

Hi I’ve found this site sort of by accident when looking for support groups, I h...

ChrissieR

•6 years ago

8 Replies

HUMIRA - First one done!

I was diagnosed with RA coming up to one year ago and started off on MTX, then added Hydroxychloroquine and Sulfasalazine. I have laughed and cried reading...

I was diagnosed with RA coming up to one year ago and started off on MTX, then a...

MDEC66

•6 years ago

11 Replies

Methotrexate woes

I started back on MTX 0.4ml weekly (injection). Also am on plaquenil 200mg twice daily and Rituxan infusion. Last infusion was in May. I don’t think my MTX is...

I started back on MTX 0.4ml weekly (injection). Also am on plaquenil 200mg twice...

ilovemyhubby

•6 years ago

3 Replies

Be positive

Hi everyone ,haven't been on for a while ,been a bit under the weather but hope this finds you all in good spirits.I really just wanted to say that although...

Hi everyone ,haven't been on for a while ,been a bit under the weather but hope ...

Magymay

•6 years ago

14 Replies

slipped rib/ Tietze syndrome?

Hi there , i have talked about this problem before and it has raised its nasty head again. Can anything be done to treat it , i have googled but I would like...

Hi there , i have talked about this problem before and it has raised its nasty h...

weathervane

•6 years ago

8 Replies

Home assessments 😬

Morning My first post so excuse any mistakes... I have someone from DWP/ ESA visiting me on Friday morning, I’m not sure if it’s the same person or two...

Morning My first post so excuse any mistakes... I have someone from DWP/ ESA vi...

tangem

•6 years ago

21 Replies

Ditched by my Rheumy

Haven't posted for a while, but I have been reading everyone's posts. I had an appt with my rheumatologist and I got a call saying he doesn't need to see me...

Haven't posted for a while, but I have been reading everyone's posts. I had an a...

Someonesmother

•6 years ago

24 Replies

Posts - NRAS | HealthUnlocked

NRAS

All posts for August 2018

Forums

Hives

Steriods

kidney trouble

NRAS Group Meetings Next Week

Happy Friday everyone

No health insurance

Sorry I’ve been quiet!!

Thought it was time to formally introduce myself ☺️

Best Painkillers?

Patient Association request for participants on Biological Biosimilar survey and focus group in Birmingham

Baricitinib and Methotrexate

Plaquenil and RA

Quinoric

pip

Guided steroid injection into hip

Always hungry

Helpful products from Lidl released Sunday

My decade long date with #Rheum

Any tips on how to deal with steroid hunger?

Upper respiratory tract infection.

Still unwell!

UPDATE re CIMZIA & Infection

Newly diagnosed

HUMIRA - First one done!

Methotrexate woes

Be positive

slipped rib/ Tietze syndrome?

Home assessments 😬

Ditched by my Rheumy

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