Be positive: Hi everyone ,haven't been on for a while... - NRAS

NRAS

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Be positive

Magymay profile image
12 Replies

Hi everyone ,haven't been on for a while ,been a bit under the weather but hope this finds you all in good spirits.I really just wanted to say that although these illnesses are very difficult to endure ,I find that seeing others struggling to get around and do normal things is humbling in a way ,it may sound silly but when you realise others are still making an effort to get out there and get on with life you don't feel so alone.I saw an old lady the other day walking with a little trolley and she was nearly bent in two ,but she was smiling ,I thought ,I must make more of an effort because if she can do it so can I ,I bought a second hand treadmill the next day and if I can do ten minutes of gentle walking each day I'll be at least trying .I've also had a good look at my duet and tweaked a few things,hopefully I'll lose a few pounds and feel better .I have till next September to look my best for my daughters wedding so I have something to work towards ,hope you are all staying positive and feeling good ,wish me luck🏃💃🙌🏃

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Magymay profile image
Magymay
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12 Replies
Jarme profile image
Jarme

Magymay,

Thank You for the breath of fresh air! That made my day! Very true!

petalnumber2 profile image
petalnumber2 in reply to Jarme

Yes I gree very refreshing and helpful.

I have always had a strong determination to achieve whatever I want to do, but never more so than since being diagnosed with RA. I recently had a big flare and was more or less household for several weeks. Neighbours and friends were very kind and helpful, but though I knew it was best for me to rest at the time, I still pushed myself to do things which I wanted to do !! So, my thoughts are do what you can to stay independent and enjoy a normal lifestyle, but rest when your body needs it's energy to get you better.

Take care everyone xxx

medway-lady profile image
medway-lady

Wishing you luck and a posh hat too..... lol x

Magymay profile image
Magymay

Hi Ajay I'll just keep at it with a positive outlook and do my very best ,one step at a time 😁pardon the pun 😁

Damaged profile image
Damaged

Good for you! It is so important to keep moving . I have started walking 🚶‍♀️ a few weeks ago. After you push past the pain and fatigue you do feel so much better . I am now walking more than 20 kilometres a day. It is very challenging in this heat wave but still better than rain. I know from experience, being old and all , that the key is changing your internal dialogue. Rather than focus on what I could not do. It took weeks to build up some stamens but I am truly amazed at how well it has gone.

Hang in there and never give up. A little determination can go a long way. I hope the wedding is amazing 😉Congrats

Magymay profile image
Magymay in reply to Damaged

That's brilliant your doing so well ,I hope I can keep it up and keep getting better and better ,It's a case of not wallowing in self pity and just going for it rather than thinking about it ,thanks for support ,it means a lot 😉

3LittleBirds2 profile image
3LittleBirds2

Good for you!! Thank you for your words of wisdom...you’re absolutely spot on!! So many times...I’ve forced myself to go out walking but so glad I did it as it does lift your spirits and make you feel better! Even a little way goes a long way! 😊

Glad you’ve got positive hat on magymay, after your awful time at tribunals etc: don’t let those buggers drag you down. It’s a very up n down disease I find and I do try n appreciate good days 😀 Best one for me was 2 old guys in 80s in post office bragging about how old they were (lol) and one said ‘yep, every day’s a bonus’ so that’s my mantra now. Lost my mum earlier in year so it kind of hones up what’s really important in life for you even if we have got this shitty disease that no-one ‘gets’ but us. Enjoy your lovely wedding, and the food (I can’t lose weight but blame the drugs, ha!) buy a fab hat 😄x

Gnarli profile image
Gnarli

Hi Magymay. Thank you. Your post has cheered me so much. It's all to easy to become negative and miserable when suffering nasty diseases like ours. We should celebrate being alive far more often.

J

Magymay profile image
Magymay in reply to Gnarli

Well my dad passed away 5 years ago and he had RA ,I suffer from PsA so just hoping none of my offspring get it .No point in wasting time letting it being you to breaking point although I know it can ,but trying to keep positive is the best way forward ,

petalnumber2 profile image
petalnumber2

We don't know each other Magymay, but I would also like to add my blessings to you for your forthcoming wedding. I hope the sun shines for you and enjoy your happiness. Xxx

Magymay profile image
Magymay in reply to petalnumber2

Thanks so much ,it at least gives me something to focus on that's going to be good ,hope your well and good to have you on board petal 😉

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