Posts - NRAS | HealthUnlocked

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All posts for August 2017

Do meds really stop working?? Or is it that our condition has worsened so they can't keep up??

Hi all I read this here a lot. Never sure whats really going on when we(including me)say...My medication isn't working well anymore, or indeed stopped...

Hi all I read this here a lot. Never sure whats really going on when we(includi...

Deminem

•7 years ago

18 Replies

CBD? Morning all you knowledgable people

Hi, I went ahead & bought CBD oil on advice of peps on here. I can't take painkillers so was feeling a bit desperate. I've never taken cannabis or smoked it so...

Hi, I went ahead & bought CBD oil on advice of peps on here. I can't take painki...

Caza

•7 years ago

77 Replies

Clay heat packs

Hi :) I have used my clay heat pack for several years now. Or rather, I've had two. My forward thinking mum bought two when she saw some but unfortunately...

Hi :) I have used my clay heat pack for several years now. Or rather, I've had t...

Beckywood89

•7 years ago

6 Replies

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Methotrexate is making my life hell!!!!!!

After having test after test and having MTX decreased to 7.5 my Alt results are still raised. GP called and asked me to stop MTX immediately !!! Mtx has been...

After having test after test and having MTX decreased to 7.5 my Alt results are ...

Doughnut61

•7 years ago

12 Replies

Kitten Therapy

Hi, I had been doing pretty bad with the MTX recently and have had no energy to do things and no positivity or go. Has anyone else had this happen and any...

Hi, I had been doing pretty bad with the MTX recently and have had no energy to...

Jj01994

•7 years ago

6 Replies

Hydroxychloroquinine sulfate

A few years ago I was prescribed Plaquenil (manufactured by Sanofi) , when these were no longer produced I was prescribe Quinoric, but found that I could not...

A few years ago I was prescribed Plaquenil (manufactured by Sanofi) , when these...

Paulinaann

•7 years ago

10 Replies

Popsmith1874

Has anyone heard from Popsmith1874 at all? Just thinking that I haven't seen him on here for a while, and was going through a really rough patch last time he...

Has anyone heard from Popsmith1874 at all? Just thinking that I haven't seen him...

Mhairi54

•7 years ago

7 Replies

PMR Progress

As we all know, PMR has results in many lifestyle changes. I believe it is a wake up call to put the brakes on and change direction. Since June, I sold my...

As we all know, PMR has results in many lifestyle changes. I believe it is a wak...

Sandy1947

•7 years ago

2 Replies

Grinding crackling popping in neck

Hi all, I'm still trying to find out some answers for my sister who is having trouble with her neck! A lot of crunching popping crackling etc does anyone know...

Hi all, I'm still trying to find out some answers for my sister who is having tr...

Jezzerie6

•7 years ago

13 Replies

Leflunomide?

Hello all! I met my rheumatologist yesterday and really like him. He started me on 20mg of Leflunomide. I don't see that medication very often on the...

Hello all! I met my rheumatologist yesterday and really like him. He started...

cheshcat

•7 years ago

35 Replies

Uncertain

Good Afternoon Everyone, As I lay in bed, with again no motivation, feeling exhausted whenever I take my Methotrexate the night before.. my legs are so achy,...

Good Afternoon Everyone, As I lay in bed, with again no motivation, feeling exha...

Olmettig

•7 years ago

7 Replies

CT SCAN OF BOWEL

I had this done on Tuesday. The actual scan itself wasn't that bad. The radiographers and nurses were lovely. The big issue for me was the prep before. You...

I had this done on Tuesday. The actual scan itself wasn't that bad. The radiogra...

Nettac

•7 years ago

21 Replies

High Cholesterol and RA

Hello everyone, Two years ago I was diagnosed with erosive RA. I was a competitive elite endurance athlete most of my life. I've never smoked and was never...

Hello everyone, Two years ago I was diagnosed with erosive RA. I was a competiti...

Lucy11

•7 years ago

24 Replies

Was doing so well............

Good morning to you all. Yesterday hubby took me to town as i needed some multi-vitamins and i got my walk done while out. Anyway coming home we drove over a...

Good morning to you all. Yesterday hubby took me to town as i needed some multi-...

sylvi

•7 years ago

22 Replies

Nervous

not slept well for last couple of nights my hand is killing me. Im sat here worrying about my son getting his GCSE results today and as typical teenager he's...

not slept well for last couple of nights my hand is killing me. Im sat here worr...

lynz1983

•7 years ago

5 Replies

Low sodium

Morning blood test came back with low sodium do you think could possibly be related to taking MTX? I'm doing another blood test today fingers crossed they come...

Morning blood test came back with low sodium do you think could possibly be rela...

Selbel

•7 years ago

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Rheumatologist visit and steroids plus knee support

I saw my rheumatologist today and he thinks the Humira I started at the end of June can take 6 to 12 months to work. I told him I was trying to reduce my...

I saw my rheumatologist today and he thinks the Humira I started at the end of J...

Bailybiscuit

•7 years ago

11 Replies

Upper leg weakness

I have a huge problem with the muscles in my upper legs. I find it so difficult to get upstairs, walk up a hill and getting up from the floor if I bend down. I...

I have a huge problem with the muscles in my upper legs. I find it so difficult ...

LesleyH

•7 years ago

12 Replies

Sticky blurry eyes

I've been taking Methotrexate for rheumatoid arthritis for 3 months.I've now begun to experience sticky blurry eyes!Has antone else had a problem similar?

I've been taking Methotrexate for rheumatoid arthritis for 3 months.I've now beg...

Hidden

•7 years ago

17 Replies

Letter from consultant confirming what I know - I have RA in my knees

So we all know the saga I've been having and that I put a PALs complaint in that got an immediate response. Well true to his word the consultant sent a letter...

So we all know the saga I've been having and that I put a PALs complaint in that...

Helzbells

•7 years ago

2 Replies

Hi I am Rebecca with RA

Hi My name is Rebecca, I have RA with an anti CCP 92, positive ANA of 360 homogenous and my inflammation markers and other bloodwork oddly normal. Does...

Hi My name is Rebecca, I have RA with an anti CCP 92, positive ANA of 360 homog...

Gorettispeghetti

•7 years ago

4 Replies

Hand pain

I have AS, and have a lot of peripheral symptoms. I was started on 15mg MTX which did wonders for the pains. About a month ago hand pains among others...

I have AS, and have a lot of peripheral symptoms. I was started on 15mg MTX whic...

Runrig01

•7 years ago

9 Replies

Help my Pain go away?

My name is Debbie I have been suffering with RA for the last 3 years. I am currently on Hydroxyquine and Oral Morph. I am in severe pain in my lower back,...

My name is Debbie I have been suffering with RA for the last 3 years. I am curre...

DMJ64

•7 years ago

6 Replies

Changing drugs

Hi, after saying about stopping Methatrexate I have been taken off it because of the side affects. However I may be starting Leflumide but can't see consultant...

Hi, after saying about stopping Methatrexate I have been taken off it because of...

Pamak

•7 years ago

21 Replies

NRAS Group Meetings Next Week

Dear All Coming to you a couple of days early... Please find details below of the NRAS Group meetings taking place next week. NRAS Group Meetings— Week...

Dear All Coming to you a couple of days early... Please find details below of t...

Kim-NRAS

NRAS•7 years ago

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Paid overnight research - London

NRAS has approved the following post Richmond Pharmacology are conducting paid overnight blood collections for patients with Rheumatoid arthritis...

NRAS has approved the following post Richmond Pharmacology are conducting paid ...

EmmaS-NRAS

NRAS•7 years ago

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Hands up who has been happy with Healthcare at home/HAH?

So far I am happy with HAH, I started getting the delivery of meds last year. Before this I used to pick up from the hospital. Reason being that apparently...

So far I am happy with HAH, I started getting the delivery of meds last year. B...

Deminem

•7 years ago

40 Replies

RA & Crohn's (cross posted)

Changed Diet - 6 week mark (Crohn's and RA) About 6 weeks ago, I drastically changed my diet, in an effort to try to limit my Crohn's symptoms. My diet is...

Changed Diet - 6 week mark (Crohn's and RA) About 6 weeks ago, I drastically ch...

Hobbits

•7 years ago

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Which is worse for you, waiting for the next flare or the flare itself?

I find this waiting is making me nuts. I am not I'll enough to tolerate being inside and yet suffer extreme fatigue. My CRP is low, mobility is reasonable and...

I find this waiting is making me nuts. I am not I'll enough to tolerate being in...

Damaged

•7 years ago

2 Replies

Bruising

Having being on MTX and Benepali for 2 years and having monthly blood tests, I have noticed bruising over the past 3 weeks, this does not seem normal for me...

Having being on MTX and Benepali for 2 years and having monthly blood tests, I ...

Jackadoodle

•7 years ago

4 Replies

Posts - NRAS | HealthUnlocked

NRAS

All posts for August 2017

Do meds really stop working?? Or is it that our condition has worsened so they can't keep up??

CBD? Morning all you knowledgable people

Clay heat packs

Methotrexate is making my life hell!!!!!!

Kitten Therapy

Hydroxychloroquinine sulfate

Popsmith1874

PMR Progress

Grinding crackling popping in neck

Leflunomide?

Uncertain

CT SCAN OF BOWEL

High Cholesterol and RA

Was doing so well............

Nervous

Low sodium

Rheumatologist visit and steroids plus knee support

Upper leg weakness

Sticky blurry eyes

Letter from consultant confirming what I know - I have RA in my knees

Hi I am Rebecca with RA

Hand pain

Help my Pain go away?

Changing drugs

NRAS Group Meetings Next Week

Paid overnight research - London

Hands up who has been happy with Healthcare at home/HAH?

RA & Crohn's (cross posted)

Which is worse for you, waiting for the next flare or the flare itself?

Bruising

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