Hi I am Rebecca with RA

[Gorettispeghetti]

Hi

My name is Rebecca, I have RA with an anti CCP 92, positive ANA of 360 homogenous and my inflammation markers and other bloodwork oddly normal.

Does anybody else have a positive ANA?

My back and hips are ravaged with pain. Oddly, finger and toes are fine😇 my ankles are always swollen and owie.

Question, I've been on plaquinil and prednisone that's seemed to help. But anytime I tried Methotrexate, Enbrel or Humira I had hives and nausea badly and had to stop. Now I'm on Xeljianz and am suffering gas ( flatulence) badly. Has anybody else experienced this with Xeljianz?

Also, I have severe pelvic dysfunction which I was told is not RA related. Anybody else?

Thanks😇

[Gnarli]

Hi and welcome to the gang you never wanted to join. I'm truly sorry you have this foul disease but in finding this forum you have found probably the best, most supportive, caring, informed and downright lovely bunch who know what it's like. Wishing you better

Jan

[Lesley_1]

I am on Xeljanz but haven't had flatulence? I have orange pee though from the sulfasalazine

[Radiogirl]

Hi Rebecca. Welcome!! I, too, have recently been diagnosed with RA. My rheumy initially started me on Sulphasalazine a couple of months ago. I just saw him again last week and he started me on Prednisone 5mg and Xeljanz ER. I just took my first pill today as he was waiting for a supply of one month samples. He said by one month we should be able to see if it's working.

The warnings on the literature attached to the bottle are pretty scary. But I guess they are the same for all of the autoimmune disease meds.

I also just started Nuctyna for pain which isn't really helping much. I tried to get my doctor to up my dosage which is at the lowest dosage, but no go. I just started taking the lowest dosage of Cymbalta for both pain and depression. Too soon to tell on that one.

Wishing you the very best in getting some fast relief. Hugs and blessings to you. ☺

[Olmettig]

Hi Rebecca,

I also have been recently diagnosed, about 8 weeks ago. Such a frustrating disease. My RF factor was 259, and It came back positive with RA. Some of my other results appeared normal, which frustrates me, because I am always like, do I really have this.

But, my symptoms have worsen since I have been on Methotrexate, I am in constant pain in my legs, hips. My hands periodically flare up, my ankles do swell but I have to say my thighs always have this weird, burning, tingling sensation that is aggravating and most uncomfortable.

I am praying this is a bad flare that I can get under control, because as I am told, this gets worse, before it gets better. But this website has helped me tremendously with advice, positivity and most of all support. I will find out more soon, when I return to the doctor next month. You are not alone and if there is anything I can say, is try and find that inner strength we all have inside us to fight.

Thinking of you!!!