I started noticing bruises on my then 18 month old baby after his immunisation. After his immunisation I kept taking him to Dr with worry about petechia rash. The Dr advised me it would go. I put it off and told myself they will go given his age.
The bruises went over time but he got more but then he got bruises on his bottom and back. I knew he had not hurt himself as I had been with him 24/7 for over a week as I was on holidays with him and had full supervision. That is when I knew something was wrong. I took him to the Dr and told him the bruises on him were coming from nowhere.. I felt silly to say I had not heard of getting bruises for no reasons. I demanded answers. He then requested a blood test. I was extremely nervous but his platelet count was at 32. We went to emergency and spoke to paediatritions. They were going over him asking if he has vomited, blood in his gums, poop and nose. Checking if his lymph nodes were swollen, spleen and asking a million other questions. I felt the symptoms related to lekemia, so I asked as they seemed relieved then they told me they had to rule that out first. The drs also told me the red cells or white are usually affected with lukemia..i was relieved but had no idea what I was facing. They told me my son has itp. I had no idea what that was. He started having regular weekly blood tests, but his platelets have dropped from 32, 22, 20, 18, 15, 11. I have been in tears cause I don't know what's next, when they reach nothing. They have told me they won't start treatment because he doesn't have nose bleeds, gum bleeds or stool bleeds. I was so angry they wouldnt start treatment and was angry they were waiting for it to get to nothing...like a test puppy bit they explained the treatments and that bone marrow testing would have to be first to rule out lukemia as the steroids can mask Lukemia. The treatments are only temporary and won't cure itp they advised me. That treatment can be much worse than the disease itself. They advised me they think his case is viral and can heal on its own. My boy had a bump to his head and was was taken to hospital but had to be transferred. The bump was quite minimal however it's huge to him due to his platelets. We are now considering a helmet for him as this was a big scare and we had to stay at hospital and so obs every two hours, he had a drip hooked up and much more. It's was awful to watch him go through. Any tips or ideas on how to keep him safe? This is breaking my heart!