What's the worst thing about Fibro... - Fibromyalgia Acti...

Fibromyalgia Action UK

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What's the worst thing about Fibro...

10 Replies

Looking out the window, to see what you could have been!

This really play's on your mind as an old single man!

10 Replies
Dinkie profile image
Dinkie

I prefer to turn it around and think of the positives. I’ve found lots of new friends on here. I know I can no longer compete with my dogs but I’ve taken on stewarding at shows and volunteering so I am still involved. I may not be able to walk much but as I am so much slower I actually see things which would otherwise go unnoticed. My toddler grandsons certainly appreciate granny stopping at every twig, snail, puddle etc.

I could do without the pain as all of us could but I could be worse off.

Chin up.

in reply toDinkie

I have only 2 hours a day where I can converse with another person. The rest my brain is too tired and starts to get irritated by people and therefore makes mistakes and causes offence.

This has been caused by being an experiment for the so called Doctors of our society. I was used as a guineau pig then neglected so as to take pills too long and damage my brain. There has been no recourse to the NHS and now I suffer on my own.

You have no idea how I feel!

Dinkie profile image
Dinkie in reply to

It must be hard but there are many of us on our own and suffering. I’m not trying to make light of anyone’s struggles. For myself I have an awful lot to contend with but for sanity sake I try to see the positive in life. Is there no community outreach where you could join a group for a couple of hours. I know covid has made everything more difficult but there must be something locally that would not make you feel so isolated.

Our local community church offers lots of outings/courses which are not religious and just offer single people the chance to mix. Surely it’s worth investigating if you feel alone.

Bewitch profile image
Bewitch in reply to

Sir, I hear you. I can’t imagine how you must feel. I am thinking you have been treated unfairly and struggle with isolation, frustration and despair for your life as it is now. It is hard to feel positive and I won’t insult you by offering futile advice. I can’t fix you. When you say ‘see what you could have been’ I understand the feeling of having your future hopes denied you through no fault of your own. It seems harder for you to move forward without the support of a spouse or partner. My thoughts are seeking out support where you can - GP, family, friends. What do you think?

in reply toBewitch

@ Bewitch:

Thanks for that, I hear everyone on this forum. I feel their pain as I'm a very empathic and stupid Man. If I had very little empathy I would not be on here. I drop in and out of forums because it's impossible to live with your own pain and help others as well when your like me.

I have no Doctor to speak to. I have no family tat has an ear that I can speak to. I have no friends that have an ear I can speak to.

Reason: They don't understand or empathise with the pain. Right now my pains an 8/10. Nothing works except ranting..

Dinkie profile image
Dinkie in reply to

Nobody minds us ranting on here as long as it’s not a personal assault on someone trying to help. We all need to rant occasionally.

The sheer fatigue

Kitten-whiskers profile image
Kitten-whiskers

You can always come and chat to us, when you are feeling lonely.

Worst thing about fibro for me - is the fact that a bit of stress makes it all so much worse,

how can you not be affected by stress in this world and how can you sleep when your in such pain and feeling horrible.

It's never to late to make new friends, or maybe having pets, they are such good company

in reply toKitten-whiskers

Everyone tells me to get a dog? I’m considering 2 Scottish terriers. They’ll be company for each other as well as eye!

Kitten-whiskers profile image
Kitten-whiskers in reply to

How lovely

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