Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

59,795 members • 66,878 posts

All posts for July 2024

Worn out

I am a carer for a man who is bed ridden 24 7 unless I get him out of bed for his exercise . He was supposed to be going to a care home for a rest for 2 weeks...

I am a carer for a man who is bed ridden 24 7 unless I get him out of bed for hi...

Africanmonkey

•1 month ago

20 Replies

What you can do.

HI 1 make a tool box to hold your information. Buy a big book called Fibromyalgia & Chronic Myofascial Pain Syndrome a survival manual Devin Starlanyl...

HI 1 make a tool box to hold your information. Buy a big book called Fibromyal...

dellydog

•1 month ago

3 Replies

Carbamazapine help!

Hello peeps, I’m in terrific pain in my mouth and face, doc thinks could be Trigeminal neuralgia. Honestly feels like Jaw is splitting at hinge. Anyone else on...

Hello peeps, I’m in terrific pain in my mouth and face, doc thinks could be Trig...

Lovecavatese

•1 month ago

21 Replies

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Can anyone help

hi had fibro now for about 6 years used to be on smitryptylene but came of that. I’ve been getting constant headaches and fuzzy feeling on my head. Any advice...

hi had fibro now for about 6 years used to be on smitryptylene but came of that....

Bar123ney

•1 month ago

14 Replies

Pleased to say and also an easy way to explain Fibro

hey all I think this is my first post on here, but for a couple of years I have taken great comfort from you all that post. It’s made me feel less alone and...

hey all I think this is my first post on here, but for a couple of years I hav...

Winnie123xxx

•1 month ago

10 Replies

Social prescribing

Hi has anyone had help from a social prescriber, and how can they help me with fibro and other things because my doctors at the moment arent very good and...

Hi has anyone had help from a social prescriber, and how can they help me with f...

fibrogirl41

•1 month ago

11 Replies

How long can flare ups last?

Hi,I was diagnosed with Fibromyagia in 2015. I have had afew flare ups which lasted afew days but have had a flare up 2wks ago. Visited Gp who suggested...

Hi,I was diagnosed with Fibromyagia in 2015. I have had afew flare ups which las...

Nanna2023

•1 month ago

11 Replies

Just wondering if anyone else is experiencing this too?

Hello everyone, I hope you are having a better day. I’m not sure if this is a fibro thing or something else? I’ve had fibro and CFS/ME for over 30+yrs but this...

Hello everyone, I hope you are having a better day. I’m not sure if this is a fi...

Sarahvit

•1 month ago

12 Replies

Exercise anyone?

Hi, I have just turned 29 (In June). I was diagnosed with Fibromyalgia in November 2021. I have today thought I would start 20min light exercise for mobility...

Hi, I have just turned 29 (In June). I was diagnosed with Fibromyalgia in Novemb...

JessFM

•1 month ago

15 Replies

prednisolone and fibro

Hi all , I have been put on prednisolone for a flare of my polymyalgia rheumatica recently and it’s really helping with my Fibro . Now I know it’s not really...

Hi all , I have been put on prednisolone for a flare of my polymyalgia rheumatic...

Molliesmamma

•2 months ago

16 Replies

Crying sometimes and worrying about jobs...

Hello no need to reply im just ranting, i dont know why i keep crying sometimes and worrying about getting a job i am trying the hospital and places near me...

Hello no need to reply im just ranting, i dont know why i keep crying sometimes ...

fibrogirl41

•2 months ago

14 Replies

What the chuff

Arrrggghhh, What the chuff, I have been trying to go to the hairdressers for some time now, I really need a trim and colour, What with the silvers poking...

Arrrggghhh, What the chuff, I have been trying to go to the hairdressers for s...

Debsdelight72

•2 months ago

15 Replies

Looking for Physio or Personal Trainer in Edinburgh Area with Training or Experience Working with Clients Who Have Fibromyalgia

Greetings all, I am in the Edinburgh area, have fibromyalgia and am looking for a physio or personal trainer who has experience working successfully with...

Greetings all, I am in the Edinburgh area, have fibromyalgia and am looking for ...

MommaK75

•2 months ago

4 Replies

Flare after tooth out. No tooth fairy!!!

I had a tooth out in bits and pieces on Friday. Then Saturday a bad flare kicked off🤔How are all my Fibro friend's doing in this v changeable weather ? I feel...

I had a tooth out in bits and pieces on Friday. Then Saturday a bad flare kicked...

Smilesalot

•2 months ago

7 Replies

Medication.

After going to the doctor's yesterday I was told that if you are on amitriptyline it can cause dementia, has anyone else been told this. I'm quite concerned as...

After going to the doctor's yesterday I was told that if you are on amitriptylin...

Chancechance

•2 months ago

24 Replies

Blue badge

Hi all, Just posting as i am nervous about having my blue badge assessment tomorrow. My main anxiety over this......... that i will have a reasonable day and...

Hi all, Just posting as i am nervous about having my blue badge assessment tomor...

Sal87

•2 months ago

10 Replies

Sorry can't spell.

Has anyone become naff at something they were good at before Fibro? I used to be really good at spelling, And now??? 💩💩💩💩💩 I'm actually very...

Has anyone become naff at something they were good at before Fibro? I used to b...

Debsdelight72

•2 months ago

44 Replies

feeling down

A months ago my mobility was not very good struggling to walk far ,so after a chat with physiotherapist and watching a new treatment ideas for fibromyalgia.i...

A months ago my mobility was not very good struggling to walk far ,so after a ch...

Thornthorpe

•2 months ago

10 Replies

Just wondering ……

For years I’ve noticed that I bruise easily. I’ve found bruises on myself for no reason or that I can’t remember hurting myself in that place. So I was...

For years I’ve noticed that I bruise easily. I’ve found bruises on myself for no...

Gulfstream_Maggie

•2 months ago

10 Replies

Tips for Managing/Improving Symptoms/Working Full-Time?

Hi everyone! So I might be starting a new full-time job and I would really love if you could send me all of your tips for anything and everything that has...

Hi everyone! So I might be starting a new full-time job and I would really love ...

ExploringPanda

•2 months ago

7 Replies

leg pain

hi I’ve been suffering with really bad calf cramp and spasms for around a year now doctors put me on pramapexole for restless legs. I used to feel it on and...

hi I’ve been suffering with really bad calf cramp and spasms for around a year n...

Paula1jj

•2 months ago

25 Replies

Who else struggles to stay awake during the day?

When I'm active and moving around, I don't feel tired at all. However, the moment I sit down, it's like my body takes it as a signal to shut down. Sometimes, I...

When I'm active and moving around, I don't feel tired at all. However, the momen...

LucyW75

•2 months ago

9 Replies

There's Hope.

Thankyou to everyone who as replied to me. Nothing is easy to do. So I appreciate all the advice . Hopefully after Thursday getting help from citizens advice....

Thankyou to everyone who as replied to me. Nothing is easy to do. So I appreciat...

Taylor68

•2 months ago

Be the first to reply

Telephone PIP assessment tomorrow

Hey Fibro family 👋🏼 Hope everyone is doing as well as can be 😊 and for those who are having a bad day, I'm sending lots of hugs to you all 🤗🤗🤗🤗 So I...

Hey Fibro family 👋🏼 Hope everyone is doing as well as can be 😊 and for those...

misspicky82

•2 months ago

19 Replies

Can't cope with fighting the care system

I have autism, mental health,seizures and fibro.I have been having carers coming to my flat for several years. I had a crisis early this year resulting in...

I have autism, mental health,seizures and fibro.I have been having carers comin...

kettlejug

•2 months ago

11 Replies

FND and scared of future.

Hi, haven't posted for a very very long time. I have CFS/Fibromyalgia and now FND. I'm so scared of my future as I know I will not be able to continue working....

Hi, haven't posted for a very very long time. I have CFS/Fibromyalgia and now FN...

Arlo31

•2 months ago

13 Replies

P I P decision

Hi, any advice please , to help my decision for PIP. Its just been turned down. I have osteoarthritis and fibromyalgia now for over 20 years, I applied as a...

Hi, any advice please , to help my decision for PIP. Its just been turned down....

Taylor68

•2 months ago

19 Replies

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

All posts for July 2024

Worn out

What you can do.

Carbamazapine help!

Can anyone help

Pleased to say and also an easy way to explain Fibro

Social prescribing

How long can flare ups last?

Just wondering if anyone else is experiencing this too?

Exercise anyone?

prednisolone and fibro

Crying sometimes and worrying about jobs...

What the chuff

Looking for Physio or Personal Trainer in Edinburgh Area with Training or Experience Working with Clients Who Have Fibromyalgia

Flare after tooth out. No tooth fairy!!!

Medication.

Blue badge

Sorry can't spell.

feeling down

Just wondering ……

Tips for Managing/Improving Symptoms/Working Full-Time?

leg pain

Who else struggles to stay awake during the day?

There's Hope.

Telephone PIP assessment tomorrow

Can't cope with fighting the care system

FND and scared of future.

P I P decision

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