Hi, haven't posted for a very very long time. I have CFS/Fibromyalgia and now FND. I'm so scared of my future as I know I will not be able to continue working. I'm again signed off work as my job (NHS) is to stressful and harming my body. (Consultant has said so) Will I be made to medically retire? I'm nearly 54. My husband works and carers for me. (Even writing that sentence makes me feel sad) We can't afford to lose money! Will I get support from benefits? I get PIP already. My body is broken and now my heart. I'm 54 and feel like I'm ready for the knackers yard. So much worry and stress which is obviously not good for my conditions. I never thought I'd be in this situation so broken and in constant pain with this now stupid FND. (Functional Neurological Disorder)
I'm waiting for the next saga in my life to unfold. ( Sorry I sound so gloom and doom guys) It's just exploding in my mind/thoughts all the time.
Recently had to have an operation on pinkie due to FND as brain didn't send message I was holding carving knife and nearly chopped it off.
Fractured elbow as legs have way.
On housing list for lower floor living and no help.
Vicki
Written by
Arlo31
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Morning Vicki. Ive just seen your message & just had to reply with a bit of support my love. I had a similar situation back in 2010 after falling ill out of the blue in 2008.. It was finally diagnosed as a severe auto immune disease initially Showing as severe uncontrolled asthma, which was terrifying, esp as living alone as newly divorced.
It wasnt long before work were onto me re attendance & i was forced to apply for Ill Health Retirement, which broke my heart. I also was worried sick that i wouldnt be able to afford my mortgage on my little flat, and so many other things, like how was i going to cope with just life itself. I was so bad I dare not look to my future, as i felt i didnt have one. 14 years later, somehow Im still here. Beyond all expectations, Im more stable but still far from well, & thats how its going to be. All i can say is BE KIND TO YOURSELF, & go easy on yourself. This isnt your fault. All you can do is take things a day at a time. Im in Jersey, Uk, so not under NHS or the DWP ( if that s correct.. I mean benefits etc) There may well be changes because of your deteriorating health, but just accept all the support you can get, & im sure they arent going to let you lose your home, or they will find you something more suitable. I know these things dont happen overnigjt & are a huge worry. You must focus on yourself, & coping with your so painful condition. Make sure you get all the medical help you need and deserve. The situation will settle, and this will help you cope.
🌹Thank you Rose,Such kind words you have written ❤️
Really appreciate you taking time for me.
Unfortunately there is no support in my area for FND and my gp is and has been great.
Just feel angry that I've worked my adult life and now because my husband is still working im going to be penalised because of his income in not being able to claim benefits. We are not wealthy just working class with no luxuries, which will be see us further in debt now.
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