Blue badge

[Sal87]

Hi all, Just posting as i am nervous about having my blue badge assessment tomorrow. My main anxiety over this......... that i will have a reasonable day and they will then refuse it.

On bad days I struggle to walk far without pain. I also have the issue of getting out the car. I am not over weight, i just cant twist my body to get out of normal spaces. I keep getting costochondritis. So painful and feel bruised for days . Have unfortunately hit a few doors trying to get in and out and the movement sets it all off again.

I tend to go shopping late and park a long way away from shops to ensure no one parks next to me. Trouble is, it hurts to walk the distance and that late in the evening, i have little energy.

I just have no faith that they will understand. They will get me to walk 5 meters and then say no.

I just want to live a reasonably normal life. Why dont people understand this? I have never asked for any other help. Even financially. I am doing everything i can to help myself including acupuncture once a week £55 per session! I would not ask if i didnt think i needed.

I am fearful if not being understood.

[Dizzytwo]

Hi Sal, may I make a suggestion. Make a copy of what you have just written here and hand it to the person doing the assessment. That's what I would do .Good luck 👍

Momo

[Sal87 in reply to Dizzytwo]

Think i better take some of the emotion out of it first lol!

I feel better already just for posting this.

I will post back on here tomorrow with how i think it went. Hopefully i will be proven wrong. Even if i am refused one, i just dont want to come across another person who thinks they understand when they dont.

I am going to run my life, NOT fibro!

[Dizzytwo in reply to Sal87]

Good for you 👍 xx

[Della30]

pls leave it the way it is don’t take any emotion out it is important. Whomever (if they know their job or role) assesses you has to assess u at your worst hv the knowledge that there r good n bad days n things are often unpredictable. Blue badge scheme is different in every borough in some boroughs your diagnosis shd be enough. When did it become like applying for PIP? I hope you get it. Keep the emotion pls💕

[Sparkimoore]

Surely they're reasonable about this.. If it was me, id say all this to the assessor. Have you got any medical letters confirming this? If they say no, you can always appeal & get a letter from your Gp and/or consultant & send it in.. Good luck. Its absolutely clear you need this & its an absolute life saver for me, as so many places i couldn't even think of going cos of the parking.. Im in Jersey, so we are assessed differently, just by application form & drs input & they were really sympathetic to me, but then im knackered anyway!!😱😱😸😸😸Good luck. Please let us know.

Id say, if you tell them what youve written here, you will be fine.. theyre meant to be there to help, after all..

Rose

[Yassytina FMA UK Volunteer]

I hope your assessment went well today, let us know how you got on , and hope it was not too bad xx

[geminilady]

Dont take anything out of what you have written here. Its almost exactly what i wrote on my application form. I stated that i had suffered for 10 years before asking for any kind of help at all, and that now i needed it. I didnt have to have a face to face assessment, no one asked me to walk in front of them, they just gave me the badge. I hope it goes well for you, but if it doesnt, get your doctor onside and appeal it. Good luck.

[Sal87]

Hi all, Thanks for all your comments. I didnt have a choice with the emotion, it came out of me the moment i opened my mouth. I seem to be unable to sit in front of people and talk about my illness without crying.

The lady who assessed me was lovely. She was very understanding and helped me to explain everything. I did the walk and did it well but did explain that i was having a goodish day. She said its fine as they get more from the questions when it comes to something like fibro.

She does not make the decision but just sends the report. Now a wait to see if i score enough points in the right boxes.

Hugs to all. X

[Bacaloca]

💜

[Sal87]

Update.. request denied.

What is really hurtful is the score they gave me for pain. From 0-5 they gave me a 1. Not impressed. After telling me that they would take into account that it was a good day for me and understanding that everyday is different, evidently they did not bother to concider it that way.

Funny that i would have scored more points if pain medication actually worked for me. surely that fact that it does not work for me should be concidered a higher score then those who can take it.

For mobility, they scored me on steps and slopes There were no steps or slopes.

Overall assesment labelled as high end of "Little difficulty" ARE YOU SERIOUS!?

Give up. Why is everything so difficult!