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Charcot-Marie-Tooth UK
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Foot surgery

Has any one on here had foot surgery on both feet

Meds questions?

I’m thirty years old with two small children. I underwent surgery on my arm and ...

DVLA

At my last annual appointment with Consultant at UCLH she advised I inform DVLA ...

Tandarts who needs advice

I have CMT 1(a). Was diagnosed in 1991, had two new knees , toes straightened et...

Keeping positive in 2019

Just wanted to wish everyone a Happy New Year. I’ve lived with CMT all of my lif...

Numb leg in pregnancy

I am currently 30 weeks pregnant and have been getting a numb leg when standing ...

diagnosed this year and have difficulty walking in anything other than trainers

I was diagnosed with CMT1 this year and forget I have a condition when I wear tr...

Pain in pregnancy

Hi I am 26 weeks pregnant and starting to struggle with pain in my feet and legs...

Finally Diagnosed

I was finally referred to a Podiatrist at a bigger hospital and she took one loo...

Is this cmt

I have slot of pain in my hands my mom and several other family members have cmt...

CM T and PIP Oct 2018

Been on DLA for over 13 years now due to my CMT , my then award was High and Mid...

Lost voice

I have CMT 1a , I am really struggling with my voice, have been to the doctors a...

Possible CMT NEFL Gene Mutation

Hello! I have a quick question for diagnosed CMT with specific NEFL mutation. Ap...

CMT pain relief

CMT pain relief.

CMT 1A

As well as everything else that comes with CMT pain, breathing, feet problems EC...

PIP IS UTTER BULLSHIT

After being on DLA awarded Indefinitely for the last 15yr I hand my motobilty ca...

FURIOUS IS AN UNDERSTATEMENT!

I am still waiting to see a Neurologist, a Dermatologist for a Skin Biopsy, Pain...

I Have to pee a lot more

I'm haveing to pee a lot more then I ever have I think it dose have something to...

Fused toe is broken

Hello all, I hope you are all well. I had some toes fused some time ago and this...

Burning feet!

Hello I was diagnosed last year with CMT, and my feet seem to be getting increas...

Breathing and cmt

Does anyone else have problems catching their breath,it's worse when I take a de...

Poor help from NHS and doctor

Hi, I have the belief I have CMT, I have been to see a Neurologist who took bloo...

Fall asleep any where any time and any place

I have CMT 1A, suffer extream fatigue. I sleep most of my day and life away. I w...

Confused

My Nueromusculer doctor said my genetics test had a grey area that mostly happen...

Confused

My Nueromusculer doctor said my genetics test had a grey area that mostly happen...

UPDATE

UPDATE- So I saw my Podiatrist today and he is stumped as to what is going on wi...

UPDATE

UPDATE- So I saw my Podiatrist today and he is stumped as to what is going on wi...

AT LAST REFERRALS FOR CMT

I saw my new Consultant for my 2nd appointment today (Myopathy), until now I hav...

Stretching tips (Toes/Feet)

Hi - looking for any good tips/ exercises for keeping a level of flexibility / s...

UPDATE - MY REPLY TO MEMAMBE

Hi, I am waiting on referral and tests (I am 66 years old). I am just like you I...
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