Posts - Charcot-Marie-Tooth UK | HealthUnlocked

Charcot-Marie-Tooth UK

1,678 members • 666 posts

All posts for August 2012

WHAT'S HAPPENING TO MY BODY?

Can someone please help? It is 11.45pm and my body has just gone into a strange mode! Usually I just get the sensitivity in one limb where it cannot be...

Can someone please help? It is 11.45pm and my body has just gone into a strange...

Pam49

•12 years ago

9 Replies

Information requested ?

Hello to all my fellow C.M.T. sufferers: I have inherited (from father) CMT type 1a since my birth (1945), although I did not know that: Finally at the age of...

Hello to all my fellow C.M.T. sufferers: I have inherited (from father) CMT type...

John1945

•12 years ago

10 Replies

ATOS and Disability

Hi everyone I just got this through from my Union Rep (UNISON) - worth having a look at for all of us http://www.dpac.uk.net/2012/07/our-atos-games/

Hi everyone I just got this through from my Union Rep (UNISON) - worth having...

KarenNic

•12 years ago

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I can't stay out in sunny weather and can't cope with being cold, cold seems to really affect me, does anyone else get this problem.

I also have bad nerves and a tremor which I have had as far back as I can remember which can cause me to get stressed out when trying to do things I.e typing,...

I also have bad nerves and a tremor which I have had as far back as I can rememb...

gunner

•12 years ago

11 Replies

I can't stay out in sunny weather and can't cope with being cold, cold seems to really affect me, does anyone else get this problem.

gunner

•12 years ago

4 Replies

my question whether injury can speed up the the symptoms of theCMT disease.

haim

•12 years ago

11 Replies

Anyone suffer problems with AFO's

I AFO's on both legs and currently they are causing me more pain than help. Firstly i was suffering with rubbing at the ankle bone, this was in addition to...

I AFO's on both legs and currently they are causing me more pain than help. Fir...

cath123

•12 years ago

9 Replies

A different way to exercise

I just go the Resource Disk from CMT UK and noticed that the exercise portion of it does not help anyone who cannot stand/balance while exercising. I've been...

I just go the Resource Disk from CMT UK and noticed that the exercise portion of...

CMT2012

•12 years ago

8 Replies

Be on your guard for symptoms of Angina !

Hello To All Fellow CMT Sufferer's >>>> As part of my ongoing exercise routine, my wife and I go walking 4/5 (3-5K) days a week to assist me with my CMT...

Hello To All Fellow CMT Sufferer's >>>> As part of my ongoing exercise routin...

John1945

•12 years ago

6 Replies

BREATHING QUESTION from member "Gunner"

Gunner sent me a message asking the following and have answered to the best of my own personal experiences, but thought he'd benefit from input of others on...

Gunner sent me a message asking the following and have answered to the best of m...

CMTerSam

Volunteer•12 years ago

3 Replies

Choices for starting a family

After 18mth of fighting I finally had the phonecall of a lifetime yesterday. The HFEA (Human Fertilisation and Embryology Authority) have granted the licence...

After 18mth of fighting I finally had the phonecall of a lifetime yesterday. The...

soph1232

•12 years ago

8 Replies

Disabled parking badge and High rate mobility (DLA)

Really need some advice on this as I have had both taken off me, I have CMT Type 1a and was visited at home by an Atos Origin Dr. for the medical. He reported...

Really need some advice on this as I have had both taken off me, I have CMT Type...

craigstubbs

•12 years ago

18 Replies

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Posts - Charcot-Marie-Tooth UK | HealthUnlocked

Charcot-Marie-Tooth UK

All posts for August 2012

WHAT'S HAPPENING TO MY BODY?

Information requested ?

ATOS and Disability

I can't stay out in sunny weather and can't cope with being cold, cold seems to really affect me, does anyone else get this problem.

I can't stay out in sunny weather and can't cope with being cold, cold seems to really affect me, does anyone else get this problem.

my question whether injury can speed up the the symptoms of theCMT disease.

Anyone suffer problems with AFO's

A different way to exercise

Be on your guard for symptoms of Angina !

BREATHING QUESTION from member "Gunner"

Choices for starting a family

Disabled parking badge and High rate mobility (DLA)

Search posts

Pinned Posts

Latest poll

What type of CMT do you have

Archive