Posts - Charcot-Marie-Tooth UK | HealthUnlocked

Charcot-Marie-Tooth UK

1,678 members • 666 posts

All posts for December 2017

Can anyone advise me?

My nephew has been diagnosed with CMT1A ( PMP22 and LRSAM1) - his mum and dad have been tested and my nephew has inherited the PMP 22 (dominant gene) from his...

My nephew has been diagnosed with CMT1A ( PMP22 and LRSAM1) - his mum and dad ha...

IrenePRobinson

•6 years ago

10 Replies

Warm feet needed.

Can anybody recommend warm lightweight boots for men with CMT ? Not laced.

Hidden

•6 years ago

19 Replies

Foot brace/supports

Hi All i would like to hear about foot supports i had insoles made many years ago i did not find they help greatly. I had a Therapist visit mentioned foot...

Hi All i would like to hear about foot supports i had insoles made many years ag...

chuckles333

•6 years ago

10 Replies

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is there anyone who has cmt and can walk in heels

i am recently diagnosed with cmt and wanted to try to walk on heels but i am unable to does anyone have any advice on what i should do please

i am recently diagnosed with cmt and wanted to try to walk on heels but i am una...

diagnosedcmt

•6 years ago

20 Replies

Blood test

Do they do blood test to find CMT? I'm not sure they done electrical tests on me did the use blood test as well? I'm curious

Do they do blood test to find CMT? I'm not sure they done electrical tests on me...

chuckles333

•6 years ago

11 Replies

Peripheral Neuropathy pain

I was diagnosed 1991 with CMT type 1(a) I am 67 now and had my knees replaced , my toes staightened etc etc. I get periferal neuropathy pains on just one toe....

I was diagnosed 1991 with CMT type 1(a) I am 67 now and had my knees replaced , ...

Tandarts

•6 years ago

12 Replies

Not known i had CMT for many years

I think i must have had cmt since childhood i was always wobbly walking in my teens i sure people use to think i was drunk, friends remark chucks been...

I think i must have had cmt since childhood i was always wobbly walking in my t...

chuckles333

•6 years ago

8 Replies

CMD

Hello all I suspect I may have CMT? I'm waiting for a neurology test, its taken from March to get this far but the test is still late January. I have felt from...

Hello all I suspect I may have CMT? I'm waiting for a neurology test, its taken ...

djl45

•6 years ago

7 Replies

Drugs to Avoid with CMT

Stumbled upon this and thought people might find it useful. It was in a published paper called Medication-induced exacerbation of neuropathy in Charcot Marie...

Stumbled upon this and thought people might find it useful. It was in a publishe...

Hidden

•6 years ago

4 Replies

Does it plateau?

Hi, I have CMT, no idea what type, but I've had it since I was 2, I'm now 37. It's a lot more severe than the CMT I'm used to reading about online, and so I'm...

Hi, I have CMT, no idea what type, but I've had it since I was 2, I'm now 37. I...

sheerkhan

•6 years ago

8 Replies

CMT and statins

I have just been prescribed statins and was concerned upon reading the enclosed leaflet that they could cause muscle wastage which may not be reversed upon...

I have just been prescribed statins and was concerned upon reading the enclosed ...

littlenel

•6 years ago

4 Replies

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Posts - Charcot-Marie-Tooth UK | HealthUnlocked

Charcot-Marie-Tooth UK

All posts for December 2017

Can anyone advise me?

Warm feet needed.

Foot brace/supports

is there anyone who has cmt and can walk in heels

Blood test

Peripheral Neuropathy pain

Not known i had CMT for many years

CMD

Drugs to Avoid with CMT

Does it plateau?

CMT and statins

Search posts

Pinned Posts

Latest poll

What type of CMT do you have

Archive