Posts - Charcot-Marie-Tooth UK | HealthUnlocked

Charcot-Marie-Tooth UK

1,678 members • 666 posts

All posts for March 2012

Does anyone have any experience of the value of exercise bikes for lengthening/ maintaining leg tendons, please?

•12 years ago

Does anyone else suffer with burning spots on toes?

Doctor diagnosed chillblains, horendous burning WHEN my feet warmed, enough to wake me up. However consultant has said it is part of the nerve damage, along...

Doctor diagnosed chillblains, horendous burning WHEN my feet warmed, enough to w...

•12 years ago

Any info on emotional and physical impact of toe straightening ops would be greatly appreciated. Thanks.

Hi, can anyone give any feedback on toe straightening operations? I have not had surgery before and get about well (I do have custom shoe inserts though). I...

Hi, can anyone give any feedback on toe straightening operations? I have not had...

•12 years ago

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recent operation

hi just have my latest operation at bournemouth general larst wednesday it was a Right Cavus Correction (1) Subtalar Fusion (2) Osteotomy 1St ray (3) Ta...

hi just have my latest operation at bournemouth general larst wednesday it was ...

•12 years ago

HI

HI TO ALLON HERE I AM NEW TO THIS PAGE

HI TO ALLON HERE I AM NEW TO THIS PAGE

•12 years ago

Post-op plaster cast / dressings / crutches for Toe Straightening

Post-op plaster cast / dressings / crutches for Toe Straightening: I'm due to have my toes on both feet (all but my big toes) straightened any day now in...

Post-op plaster cast / dressings / crutches for Toe Straightening: I'm due to h...

Volunteer•12 years ago

What sort of shoes do you wear, where do you get them from and do you have any specific advice on footwear?

I know this is a perennial problem with CMT, and when asked, it's the one question I can't fully answer. Can you answer with as much information as possible...

I know this is a perennial problem with CMT, and when asked, it's the one questi...

CMTUnitedKindom

Partner•12 years ago

triple Fusion + achilles + dorsi-flexion osteotomy

Hi i had this operation done on my left foot in 2009 followed by a operation to straightion the straighton to claw toes been told by my consultant at...

Hi i had this operation done on my left foot in 2009 followed by a operation to ...

•12 years ago

Hi im new

Hi are there any menbers on the hants dorset border in live in new milton what be nice to meet for a chat and a cup of something

Hi are there any menbers on the hants dorset border in live in new milton what b...

•12 years ago

is there any info that i can get on how cmt affects day to day living ?

•12 years ago

Is testing on children wise or useful?

I have a 14 month old daughter, she has no signs of CMT, but I want to know if she has the genes for CMT, It sounds silly but I will know then if Ive passed...

I have a 14 month old daughter, she has no signs of CMT, but I want to know if s...

•12 years ago

Does anyone know of a good homework website ? So many scams out there.

•12 years ago

Buttons, Press studs, crochet hooks and struggling with heavy duvet.

My right thumb is getting weaker and its getting difficult to do up buttons and press studs. Struggled this morning trying to do up my press studs on my duvet....

My right thumb is getting weaker and its getting difficult to do up buttons and ...

•12 years ago

Are those vibration machines any help with CMT

•12 years ago

Are YOU going to the CMT UK Conference in April?

I am! :D The conference is on 21st April, at the Hilton Hotel in Coventry... Attendees can either attend on the day, or book through CMT UK for...

I am! :D The conference is on 21st April, at the Hilton Hotel in Coventry....

Volunteer•12 years ago

Is it normal to feel breathless or tight in the chest with CMT?

I often feel breathless when simply walking up and down stairs or down to my local shop! It feels like my chest is being grabbed from the inside. Not sure how...

I often feel breathless when simply walking up and down stairs or down to my loc...

•12 years ago

Journey with physio and other things..

Due to weakening bicep in right arm. I have been given exercises with a yellow elastic band. Pulling it up to my shoulder 10 times. See physiotherapist again...

Due to weakening bicep in right arm. I have been given exercises with a yellow e...

•12 years ago

Charcot-Marie-Tooth UK is now on the NHS Choices site :D

We are now on the NHS Choices site (Community Tab) as THE official NHS Endorsed Community for CMTers in the UK. Yay! :D

We are now on the NHS Choices site (Community Tab) as THE official NHS Endorsed ...

Volunteer•12 years ago

Day Case Operations - recommended for CMTers?

I hear conflicting opinions on this matter but for me personally, even where the hospital has tried to operate on me as a day case, I've always been kept in...

I hear conflicting opinions on this matter but for me personally, even where the...

Volunteer•12 years ago

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