Cmt type 1: Hey i have cmt type 1 im... - Charcot-Marie-Too...

Charcot-Marie-Tooth UK

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Cmt type 1

Watk123 profile image
Watk123
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Hey i have cmt type 1 im currently taking lamotrigine 200mg morning and night plus butec 5mg does anyone know any herbal stuff ect to help with pain or sleepless night as im currently struggling 🙈

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Watk123
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QPRC profile image
QPRC

Is it nerve pain, bone pain , cramps, or all of the above?

For the shooting nerve pain, Lyrica (gabentin) helps.

For the constant bone pain, Endep (amitriptyline) helps.

For cramps, magnesium cream helps, as does pre-bed time stretching.

I hope you find something that works for you. Different things work for different people, so there's lots of trial and error.

Good luck - it's hard.

CMTUnitedKindom profile image
CMTUnitedKindomPartner

Speak to your GP and request a referral to a pain clinic. The drugs given for nerve pain are very strong and can have side effects.

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