Edema and C M T

Anyone with CMT getting edema in the feet and legs ? How are you managing it.

[Enzowilldoit]

Hu Ulrich…I do have edema. My nurse gave me medical compression socks to wear. I cannot wear them much longer than 6 hours tho because they then hurt. But they DO really help. Not in one day or two but over time. I am not able to put them on or take them off myself they fit so tight and I dont have the strength or grip. In addition my doctor prescribed me a small dose of a diuretic to take every day. This has helped control it well. There are times it gets worse. My therapist said I must get the water back up to my kidneys to help it get out…feet elevation and working the calf muscles with a small bike pedal machine I can do while sitting in my wheelchair helps since I cannot walk to exercise my calves. I hope you can find some solution for your problem. Theses are things which have helped me. Keep trying and be patient…best you can, day by bay..truly..Enzo

[Hidden in reply to Enzowilldoit]

Hi Enzo, Thanks for your reply. I think our treatment is very similar, I looked on Youtube, there are videos on there showing easier ways to put compression socks on. I can get them on and my wife pulls them off, I agree they are terrible things to wear, I only manage a few hours every day. I also have leg and foot massage gadget called Fit King from Amazon, I think that helps a little. Take care.

[Hidden]

I Have it also and doctor has put me on one diuretic tablet a day which has been helping. I have also been giving an appointment for the hospital to have a scan on my heart to make sure it is working ok. I will let you know how that goes. In the meantime it is tablet and feet raised up or gentle walking.