anyone else ?: Hello, I have very mild... - Charcot-Marie-Too...

Charcot-Marie-Tooth UK

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anyone else ?

4 Replies

Hello,

I have very mild type 1a and am wondering if this is a symptom.

Over the past 2 weeks my left leg dorsiflex muscles have been feeling strange. It isa ike a weak tingling sensation and it gets worse when I wake up or am sitting down. It doesn't get better or worse after a stretch or physio. This has happened all of a sudden so I think it could be too fast a change for it to be the cmt and it has never bothered me before now.

I use afo's but only for long distances.

Could this be a sensory nerve problem ? or maybe just tendonitis or something that will pass.

Thanks guys.

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4 Replies
gunner profile image
gunner

Hi that sounds like neuropathy to me yes we get that maybe purchase a charge massage rodTo help. They are around 25 pounds I just bought one on eBay it may help. And also maybe elixinol hemp balm. Hope this helps at least if that's the only issues you have currently then feel blessed.

in reply to gunner

Thanks I will give the hemp balm a try. I feel very lucky to be as able as I am. Slowly noticing a difference though.

minkimoo profile image
minkimoo

i this start happening around 2/3 years ago..i have to say since then my lower legs have deterioated quite alot.

GrannyMaz profile image
GrannyMaz

Yes, unfortunately, things can start very suddenly with CMT, but then it will come on and off, stop for a while and then start again, till one day it stays as things progress, I have found this is how everything has gone for me ...

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