Unlimited access to the CMTUK Helpline
Support from trained staff offering factual, practical, and emotional support. We never rush a call as we know and understand the needs one may have with this complex condition. We are more than happy to set up an on-line meeting If an individual is suffering with slight hearing loss and we are happy to answer any questions from carers, family members, employers, and schools.
Practical Help and Benefit guide
DLA (Disability Living Allowance) PIP (Personal Independence Payment) AA (Attendance Allowance), ESA- Universal Credit, Carers Allowance, Warm home Discount Scheme, Council Tax Disabled Band Reduction Scheme, Blue Badge, Driving and DVLA, Priority Register and Disabled Facilities Grant.
Leaflets
We have an assortment of leaflets which will help you maintain your CMT i.e. Occupational Therapy, Physiotherapy, Orthotics, Footcare, Footwear and information for schools.
Events
Priority when booking tickets to attend the Annual Conference. We have updates on research, members have the chance to ask questions. Health & Wellbeing days.
ComMenT magazine and e-Newsletter
ComMent magazine is packed full of interesting articles and news. Occasional eNewsletters from our CEO with latest news and updates on the Charity.
CMT Kids & Teens
We hold activity camps for the 11–18-year-olds and day trips for the younger ones such as Legoland, Zoos, and Aquariums. CMT Kids also hold a Quiz Night or Games Night on-line, fun is had by all.
The activity camps are amazing, and the children learn how to be more independent and confident and form long lasting friendships with other with the same condition. Children feel less alone and can talk freely and ask questions.
Access to the CMT Kids Support Group with their own Facebook page.
Access to the “Members” area of our website and the Members
Facebook Group
We have Facebook groups for Parents & Carers and Members, which is a great source of support.
Regional Support Groups
Regional Support Groups throughout the UK that regularly meet. Currently the meetings are held online and occasional meetups held locally. It is a great way to keep in touch with others with CMT and you will be able to talk freely and hopefully feel less alone.
The groups are run by our volunteers and on occasions one of the team from the office will attend.
Carers Support Group
We offer a Support Group for Carers’ this might be a partner, a sibling, or a close friend caring for an adult with CMT. The meetings are held online. It is a great opportunity to keep in touch with other carers.
Parents Support Group
We will be offering a Parents & Carers of children living with CMT Support Group in Spring 2024.
Alert card
The card is very important to always keep with you, it explains the symptoms of CMT which is ideal for when attending medical appointments or in a medical emergency.
How to join
Please come and join us members.cmt.org.uk/Join-Online
Membership is per person; children under 18 years can join under their carer’s adult membership.
Members receive a ‘Members Pack’ once they have joined, packed full of information along with an Alert Card.
