Posts - Charcot-Marie-Tooth UK | HealthUnlocked

Charcot-Marie-Tooth UK

1,678 members • 666 posts

All posts for November 2017

Potocki Lupski Syndrome and cmt1a

Myself and my daughter has cmt1a and potocki lupski syndrome just wondered if anyone else In uk has it

Myself and my daughter has cmt1a and potocki lupski syndrome just wondered if an...

Megan23

•6 years ago

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CMT it's getting worse with the years or stay the same

Charcot Marie tooth CMT it's getting with the ages worse... Can someone write to let me know please Thanks

Charcot Marie tooth CMT it's getting with the ages worse... Can someone write to...

Hidden

•6 years ago

4 Replies

Hi can you please answer to my question. It will be very helpful for me thx

Hi. I'm 28 yeara old and I have charcot Marie tooth, the question is with the ages it will get worse my foot and my hands. Please answer to my question and if...

Hi. I'm 28 yeara old and I have charcot Marie tooth, the question is with the a...

Hidden

•6 years ago

11 Replies

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ESA Medical Assessment

Hi, My name is Jenny and I have CMT1 and for the last 4 months I have been signed off with stress and anxiety which pushed me to hand in my notice at work.I...

Hi, My name is Jenny and I have CMT1 and for the last 4 months I have been signe...

Jeffer123

•6 years ago

6 Replies

PIP Appeal and CMT

My son-in-law has CMT1 and has currently lost his car after a Pip assessment and waiting on appeal. Anyone succeeded any useful advice?

My son-in-law has CMT1 and has currently lost his car after a Pip assessment and...

BelindaCMT

•6 years ago

6 Replies

CMT Appling for a mortgage.

I have been diagnosed with CMT 1B I am worried that if my children have inherited this they may be unable to get a mortgage. I wondered if anyone had...

I have been diagnosed with CMT 1B I am worried that if my children have inherite...

1geo1dog2-

•6 years ago

3 Replies

Telling DWP condition progressed

Hi my partner last year got rewarded standard care and standard mobility of PIP. We have recently filled in a form to say his condition is worse as he now uses...

Hi my partner last year got rewarded standard care and standard mobility of PIP....

Emily_Freddie

•6 years ago

1 Reply

CMT2A PATIENT WITH PHRENIC NERVE PALSY & VOCAL CORD PALSY

CMT is LIFE THREATENING. CMT IS A TERMINAL DISEASE. I am very young in my mid thirties with CMT . CMT SYMPTOMS AT 15YO, CMT diagnosed at 18yo, WHEELCHAIR...

CMT is LIFE THREATENING. CMT IS A TERMINAL DISEASE. I am very young in my mid th...

CMTSECRETS

•6 years ago

15 Replies

Am I a carrier of CMT

My son in his forties was diagnosed about 8 years ago in South Africa . I think he said it was type 1 , he said the Nurologist said I passed it on to him, it...

My son in his forties was diagnosed about 8 years ago in South Africa . I think ...

Linnikins

•6 years ago

24 Replies

Stair lift

Hi everyone, I would like to have a stair lift installed, but I have no idea of the cost, my stairs have one bend, has anyone had one fitted, and would you...

Hi everyone, I would like to have a stair lift installed, but I have no idea of ...

Hidden

•6 years ago

6 Replies

Had my dla changed to pip and had taken off me.

I had dla higher rate for mobility and middle rate for care indefinitely. I’ve had an assessment for pip and the things they have put are not true,they put I...

I had dla higher rate for mobility and middle rate for care indefinitely. I’ve h...

Izzybiz

•6 years ago

9 Replies

Results from Assessment

After my assessment I was not awarded anything. To say I am disappointed is an understatement and just feel what is the point of appealing. They have no idea...

After my assessment I was not awarded anything. To say I am disappointed is an u...

jbowe1973

•6 years ago

6 Replies

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Posts - Charcot-Marie-Tooth UK | HealthUnlocked

Charcot-Marie-Tooth UK

All posts for November 2017

Potocki Lupski Syndrome and cmt1a

CMT it's getting worse with the years or stay the same

Hi can you please answer to my question. It will be very helpful for me thx

ESA Medical Assessment

PIP Appeal and CMT

CMT Appling for a mortgage.

Telling DWP condition progressed

CMT2A PATIENT WITH PHRENIC NERVE PALSY & VOCAL CORD PALSY

Am I a carrier of CMT

Stair lift

Had my dla changed to pip and had taken off me.

Results from Assessment

Search posts

Pinned Posts

Latest poll

What type of CMT do you have

Archive