Charcot-Marie-Tooth UK | HealthUnlocked

Charcot-Marie-Tooth UK

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Does it sound like cmt or a neurodegenerative desease? My health anxiety is driving me crazy. Please help.

Hello everybody, I truly hope you’re doing alright. I thank you so much for your...

Husband passed away

My husband had cmt and he died unexpectedly at age 44. In August went to the d...

Experience with stroke and CMT

Hi all Recently (a couple of months ago) I had a TIA. Since then I've been exp...

CMT and Heart Problems

Has anyone had trouble with their heart rate and thinks it may be related to hav...

Help with CMT.

Good morning to our fellow CMTer. I would like to introduce the team here at CM...
Partner

Pip review

I’ve just asked for a early pop review has I know my cmt is getting worse I cann...

Cmt type 1

Hey i have cmt type 1 im currently taking lamotrigine 200mg morning and night pl...

DVLA (Drivers' Medical Group) - problems and delays

When I applied to renew my driving licence in 2019, it expired while the DVLA wa...

Doing the best with what we have

I've really enjoyed reading some of these posts written by people that deal with...

My Life with CMT type 1a

So I thought it was time to give a little bit about living with CMT. My mother n...

Looking for advice

My son is 3 and his dad has cmt type 1a My son has all the signs like his dad ...

Input from American RN

Am 85, late onset CMT. Several years ago began breaking bones (balance problem) ...

Edema and C M T

Anyone with CMT getting edema in the feet and legs ? How are you managing it.

I have CMT

I have CMT and I have two sons and both of them have CMT.

AN/CMT

Hello all, I have CMT & also have an Acoustic Neuroma. Do any of my fellow CMT...

need exercise program after heart attack but disabled cant find a book on this.

hello I had a heart attack on the 10th July I am disabled in a wheelchair, I ha...

CMT and Marijuana.

Hi, Male 70 CMT . Has anyone tried medical marijuana to ease nerve pain ? I wo...

anyone else ?

Hello, I have very mild type 1a and am wondering if this is a symptom. Over th...

HNPP & CMT?

Hi i have HNPP with CMT1-1REP has anyone else got. hereditary motor sensory neur...

Trainers

Thank you to whoever recommended new balance trainers, I brought some and they a...

Hypermobility and CMT

Hi All. I wondered if any of you have hypermobility? My daughter is now 35 an...

How do u live?

With disease?

High Cholesterol

Does anyone here tried statins and after having problems with my feet and hands ...

Covid vaccine

Hi I'm just wondering if any research has been done on if the vaccine can affect...

Please help who has knowledge

Has anyone have sensorimotor Axonal polyneuropathy of large fibers.If someone kn...

Trainers and sandals

Hi Can anybody give me advice on best trainers and sandals for charcot foot. I ...

sudden change

Hello Folks. I have 1a and about 18 months ago my big right toe suddenly stoppe...

Has anyone

Sensorimotor Axonal polyneuropathy of large fibers and where is discovered or te...

Dvla appraisal

Hello, I reported cmt 1a to dvla. My neurologist and rehabilitation consultsnt ...

Shoes for swimming

I have charcot foot and really want to get into swimming again. I would not wear...
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Many of you here may not know that this forum is supported by CMTUK for people with CMT and HNPP

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CMTUK provides support for people with Charcot-Marie-Tooth disease(CMT) and Hereditary Neuropathy with Pres...

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