CMT seeks to support all those impacted by Charcot-Marie-Tooth Disease. CMT is a condition that affects the nerves in your legs and arms, known as the...Read more
Having a rough time accepting
james48723 days ago
I'm new here..I have charcot Marie tooth syndrome also..
Numb foot question ?
Ulrich23 days ago
A new problem I have in my right foot only, as most CMT sufferers know, lower legs and feet get very cold summer and winter but now my right...
Low blood pressure
AJC1957a month ago
I am 55 and often have blood pressure of 95 over 53-8 and am wondering if I need to be concerned about this or if its just a feature of C...
Exhausted1012 months ago
Does anyone take this drug; if so could you share how you get on with it and if it impacts on your CMT.
Thank you in advance
CMT seems to be getting worse
Coffeeman2 months ago
I am 56 years old and was diagnosed with CMT when I was 10. I always have had some limitations like climbing stairs and frequent falls. But ...
Hidden2 months ago
Diagnosed (officially) with Charcot-Marie Tooth Disease over 40 years ago I have lived my life with this hereditary disease (but from a very...
shohn_desoto3 months ago
hi has any one used any alternative or complimentary treatments to manage there CMT (in the last twenty years or so I've tried herbal medici...
CMT - ? my links to TB, Thyroid and Myelin sheath.
Hidden4 months ago
Hello, my 1st post and I'm new to this Community so had to think long and hard before posting.
Bone pain being in addition to other health c...
Reasons for PGD
Hidden5 months ago
I read that someone posted 4 Years ago, they were going thru PGD. The reason I am writing here (and I apologize for any inconvin...
Cmt Sufferers here in Scotland gets good news from the NHS Greater Glasgow and Clyde Health Trust ?
John19455 months ago
You may be aware that NHS Greater Glasgow and Clyde Hospital Trust have built, and opened a brand new "Super-Hospital" here in Govan in 's...
Continuing muscle issues - getting worse by the day - no diagnosis
Hidden6 months ago
I have since 2 years a diagnosis of UCTD (undifferentiated connective tissue disease). My rheumatologist prescribed Plaquenil 200mg...
Pregnant with twins
Hi I have cmt I have just found out am pregnant with twins I am really scared and unsure on wat to do! Am scared wat pressure the babys will...
Restictive lung disease
ShazzR6 months ago
Hi to you all & Happy Easter.
4 yrs ago l was diagnosed through CT scan as having left phrenic nerve palsy with elevated hemidiaphragm with c...
Continuing muscle issues
Patricia20156 months ago
Last time I've posted here was three months ago. I then asked you if my feet and symptoms sound like CMT.
I was (and am) very happy ...
Trying to choose a power chair and car, and getting bogged down.
Amanita6 months ago
First I must say I do not have access to Motability. I always worked from home and did not get into serious difficulties with my mobility un...
Pam497 months ago
My daughter nearly 9 years ago when she was 11 was given a blood test for the gene deletion I have which causes my HNPP. At that time it was...
Newyork20157 months ago
I have been recently diagnosed with CMT, what is the difference with types i.e. 2 etc
Newly diagnosed but left in the dark!
Hidden8 months ago
Hi guys I've posted here before however I have recently been diagnosed so wanted some more advice if possible. I got the letter which was Ad...
Full hip replacement coming soon
busyma9 months ago
Hi new on here but have had cmt for 30plus years just wondering if anyone has gone through this how hard was your recovery etc. I have a se...
New year blues
Hidden9 months ago
How many people live alone with CMT? Just wondering🤔
Trying to learn...
Hi there! Happy 2016 to you all!
My now 20 year old Son was diagnosed finally with type 2 cmt a few years ago after his big toes went tingl...
Possibly CMT - continued
Patricia20159 months ago
I've been referred to a neurologist (2nd neuro, first was 4 months ago) and she did a clinical exam and concluded nothing was wrong...
Happy New Year!
I wish you all a prosperous and healthy New Year!
soph123210 months ago
I am looking for some feedback from anyone that has had an ankle fusion. I am in my mid 30s, and need to do something about my pain levels...
Patricia201510 months ago
Since few years I've been sick with a.o Crohn like disease and Undifferentiated Connective Tissue Disease. Begin this year I got mobi...
Mid Calf or Knee High Boots?
Hidden10 months ago
I'm after a bit of advice from female CMT sufferers with marked loss of calf/lower leg muscle, who spend most of their time outdoors sitting...
PIP face-to-face assessment
shohn_desoto10 months ago
This isn't a question its just to let anyone who might be interested know that I've just had a face-to-face assessment for PIP. It was carr...
Light lazer therapy
Blubabycakes10 months ago
Has anyone here tried to do light lazer therapy to help with nerve damage?
Be the first to reply
Hi all, I've read various post with interest so thought it's time to post!
I am yet to be diagnosed with CMT, I had the genetic test about 2 ...
Hard to swallow at times?
Staugie10 months ago
Hi there, I was diagnosed at 10 years old with CMT1a. I am now 39 and starting to see some of the atrophy I was hoping would skip me. Rec...
What type of CMT do you have
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