Hi there , I'm new to this site and don't really know where to start ,I was diagnosed with CMT 9 months ago as well as having rheumatoid a...

Hiya, I'm new here just looking for some advice and help with a few things

Bit of background, I have two children, ages 4 and 9, whose fa...

Hey everyone. I'm not really sure how this forum works, or if I belong here.

My husband was diagnosed with HNPP. Before we found out, we wer...

hi everyone, just a quick one, has anyone had their driving licence taken away because of their CMT getting worse?

Does anyone have oxygen at night, and has anyone taken it on holiday with them? Also how does it effect insurance.?

About five weeks ago all of a sudden I found I could no longer lift my right leg even a couple of inches from the sitting position and pain ...

Hi, im new here! i was diagnosed with CMT 20 years ago. up until now i have coped fairly ok. however, i seem to have taken a turn for the wo...

Had genetic tests com back I have duplication of the pmp22 gene and duplication of chromosome 17p12 so I do have cmt and ptls which my 10 ye...

Hello i have type 1 cmt iv have multiple operations on both feet i have had numbness in my hands and feet for years

But in the last 6 months...

Hi everyone

I'm Karen Butcher, and I run the CMT UK office. I'm so sorry I haven't been on HealthUnlocked for so long - with our active Faceb...

Hiya last year my daughter who is 7 was diagnoised with .c.m.t which she inherited from myself.I made a claim for dla last august 2016 and w...

So want to loose weight but not being all that mobile is a struggle. Especially with meds that can increase your weight, so frustrating. Any...

My left ankle is twisting in more as I walk- its my worse side and has pins from fractures.

I am wondering if anyone can suggest a stabilisin...

I have been using elbow crutches for three or so years, and am getting an increasingly frequent and increasingly sharp pain in my left wrist...

CMT11 and DNA test

Hi, my husband is due to have DNA and EM tests next week to confirm suspected diagnosis. We do not know if anyone else in ...

Hello Every1,

I am devasted. My life has turn up side down since I have been diagnosed with CMT.

My dad, uncles and cousin have it I am the f...

Has anyone else had a recent DLA assessment. I have mine next week but have very little proof of my condition , it's not something you go t...

Hi there am new to all this , am 31 year old , and am half way through my diagnosis! My mum and granddad have cmt , my mum only told me abou...

Hi all. My ten year old son has CMT and was diagnosed four years ago. He is now very frustrated and angry about his condition which is makin...

Does anyone else on here suffer with HNPP ? .. I am yet to find anyone in England that does ?

Has anyone ever had foot surgery to straighten their high arches? Any thoughts? It's seems like a pretty major surgery. I'm afraid to...

hi all, i have just joined the site...my mum was diagnosed with CMT 30Plus years ago, and i would say i had a good idea i had it from age 20...

My mum's had he PIP decreased and we are having to appeal has anyone done this who has CMTD and won. It's put my mum through terrible stress...

20 years ago my father presented with peripheral neuropathy in his hands (in his early 40's). He would wake up with numb hands that felt lik...

Hey there, this is new for me. I've been struggling with this disease alone for several years now. I had surgery almost a year ago to reco...

Hi everyone, I am sick of being misdiagnosed and I'm starting to harbor some anger towards doctors and medical professionals (despite being ...

Hi everyone, I'm new to the site, so here is a short introduction as to why I've joined the community.

My paternal grandmother was diagnosed ...

Hi im Trish and CMT is in my biological family i was fostered long term and do not know much about my history.

I have appointment tomorrow/to...

Morning everybody, I have to go and see if I can get pip today, I am struggling to walk now and my stick doesn't really help but got to use ...

Hi

Recently diagnosed with ostearthritis in lower back and hips, could my HNPP be advancing moreso than arthritis as i have very little feeli...