I'm new here..I have charcot Marie tooth syndrome also..

A new problem I have in my right foot only, as most CMT sufferers know, lower legs and feet get very cold summer and winter but now my right...

Hi

I am 55 and often have blood pressure of 95 over 53-8 and am wondering if I need to be concerned about this or if its just a feature of C...

Hi all

Does anyone take this drug; if so could you share how you get on with it and if it impacts on your CMT.

Thank you in advance

I am 56 years old and was diagnosed with CMT when I was 10. I always have had some limitations like climbing stairs and frequent falls. But ...

Diagnosed (officially) with Charcot-Marie Tooth Disease over 40 years ago I have lived my life with this hereditary disease (but from a very...

hi has any one used any alternative or complimentary treatments to manage there CMT (in the last twenty years or so I've tried herbal medici...

Hello, my 1st post and I'm new to this Community so had to think long and hard before posting.

Bone pain being in addition to other health c...

Hi everyone!

I read that someone posted 4 Years ago, they were going thru PGD. The reason I am writing here (and I apologize for any inconvin...

You may be aware that NHS Greater Glasgow and Clyde Hospital Trust have built, and opened a brand new "Super-Hospital" here in Govan in 's...

Dear all,

I have since 2 years a diagnosis of UCTD (undifferentiated connective tissue disease). My rheumatologist prescribed Plaquenil 200mg...

Hi I have cmt I have just found out am pregnant with twins I am really scared and unsure on wat to do! Am scared wat pressure the babys will...

Hi to you all & Happy Easter.

4 yrs ago l was diagnosed through CT scan as having left phrenic nerve palsy with elevated hemidiaphragm with c...

Dear all,

Last time I've posted here was three months ago. I then asked you if my feet and symptoms sound like CMT.

I was (and am) very happy ...

First I must say I do not have access to Motability. I always worked from home and did not get into serious difficulties with my mobility un...

My daughter nearly 9 years ago when she was 11 was given a blood test for the gene deletion I have which causes my HNPP. At that time it was...

I have been recently diagnosed with CMT, what is the difference with types i.e. 2 etc

Hi guys I've posted here before however I have recently been diagnosed so wanted some more advice if possible. I got the letter which was Ad...

Hi new on here but have had cmt for 30plus years just wondering if anyone has gone through this how hard was your recovery etc. I have a se...

How many people live alone with CMT? Just wondering🤔

Hi there! Happy 2016 to you all!

My now 20 year old Son was diagnosed finally with type 2 cmt a few years ago after his big toes went tingl...

Dear all,

I've been referred to a neurologist (2nd neuro, first was 4 months ago) and she did a clinical exam and concluded nothing was wrong...

Dear all,

I wish you all a prosperous and healthy New Year!

Heartily greets,

Hi

I am looking for some feedback from anyone that has had an ankle fusion. I am in my mid 30s, and need to do something about my pain levels...

Hi all,

Since few years I've been sick with a.o Crohn like disease and Undifferentiated Connective Tissue Disease. Begin this year I got mobi...

I'm after a bit of advice from female CMT sufferers with marked loss of calf/lower leg muscle, who spend most of their time outdoors sitting...

This isn't a question its just to let anyone who might be interested know that I've just had a face-to-face assessment for PIP. It was carr...

Has anyone here tried to do light lazer therapy to help with nerve damage?

Hi all, I've read various post with interest so thought it's time to post!

I am yet to be diagnosed with CMT, I had the genetic test about 2 ...

Hi there, I was diagnosed at 10 years old with CMT1a. I am now 39 and starting to see some of the atrophy I was hoping would skip me. Rec...