Hi everyone..

Just to let everyone know that I can help with PIP assessments. I help with preparing you for the interview, help to fill in fo...

Hi my mum has ptsd due to witnessing someone getting stabbed to death infront of her , she's not been the same since , she's scared to leave...

Hi my mum has got ptsd due to seeing someone getting stabbed to death infront of her and tried to kill herself last year, she can't leave ho...

I dont if ill be able to drive im due to have my third operation on my Right ancle

the 2 previous operations haven't worked

Im Having ancle Fu...

Hello I wanted to poll folks to see what pains meds have brought any benefit for both joint and nerve pain or either separately. Much of my ...

I have had CMT for most of my adult life but was only diagnosed when I was in my late 40's. I am now 64.

Doctors in South Africa don't seem...

When asleep I experience nerve pains in my arms and legs ...wonder if it's bad circulation ?

Hi, can anyone advise me, my husband who has CMT diagnosed three months ago after EMG and blood tests, still waiting for DNA results ! and ...

Hi, I am hoping to find someone who is going through the same. My partner has CMT, 2 weeks ago we also found out our 2 year old does too. Re...

Hi everyone I am interested in now how many of those of you with CMT have a neurology consultant , I am 65 have CMT, if I have a problem o...

Hi was just wondering if my cmt causes shortness of breath as ive just been given a blue easy breath inhaler. Ive been getting out of breath...

Hi there , I'm new to this site and don't really know where to start ,I was diagnosed with CMT 9 months ago as well as having rheumatoid a...

Hiya, I'm new here just looking for some advice and help with a few things

Bit of background, I have two children, ages 4 and 9, whose fa...

Hey everyone. I'm not really sure how this forum works, or if I belong here.

My husband was diagnosed with HNPP. Before we found out, we wer...

hi everyone, just a quick one, has anyone had their driving licence taken away because of their CMT getting worse?

Does anyone have oxygen at night, and has anyone taken it on holiday with them? Also how does it effect insurance.?

About five weeks ago all of a sudden I found I could no longer lift my right leg even a couple of inches from the sitting position and pain ...

Hi, im new here! i was diagnosed with CMT 20 years ago. up until now i have coped fairly ok. however, i seem to have taken a turn for the wo...

Had genetic tests com back I have duplication of the pmp22 gene and duplication of chromosome 17p12 so I do have cmt and ptls which my 10 ye...

Hello i have type 1 cmt iv have multiple operations on both feet i have had numbness in my hands and feet for years

But in the last 6 months...

Hi everyone

I'm Karen Butcher, and I run the CMT UK office. I'm so sorry I haven't been on HealthUnlocked for so long - with our active Faceb...

Hiya last year my daughter who is 7 was diagnoised with .c.m.t which she inherited from myself.I made a claim for dla last august 2016 and w...

So want to loose weight but not being all that mobile is a struggle. Especially with meds that can increase your weight, so frustrating. Any...

My left ankle is twisting in more as I walk- its my worse side and has pins from fractures.

I am wondering if anyone can suggest a stabilisin...

I have been using elbow crutches for three or so years, and am getting an increasingly frequent and increasingly sharp pain in my left wrist...

CMT11 and DNA test

Hi, my husband is due to have DNA and EM tests next week to confirm suspected diagnosis. We do not know if anyone else in ...

Hello Every1,

I am devasted. My life has turn up side down since I have been diagnosed with CMT.

My dad, uncles and cousin have it I am the f...

Has anyone else had a recent DLA assessment. I have mine next week but have very little proof of my condition , it's not something you go t...

Hi there am new to all this , am 31 year old , and am half way through my diagnosis! My mum and granddad have cmt , my mum only told me abou...

Hi all. My ten year old son has CMT and was diagnosed four years ago. He is now very frustrated and angry about his condition which is makin...