Charcot-Marie-Tooth UK | HealthUnlocked

Charcot-Marie-Tooth UK

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Cmt type 1

Hey i have cmt type 1 im currently taking lamotrigine 200mg morning and night pl...

DVLA (Drivers' Medical Group) - problems and delays

When I applied to renew my driving licence in 2019, it expired while the DVLA wa...

Doing the best with what we have

I've really enjoyed reading some of these posts written by people that deal with...

My Life with CMT type 1a

So I thought it was time to give a little bit about living with CMT. My mother n...

Looking for advice

My son is 3 and his dad has cmt type 1a My son has all the signs like his dad ...

Input from American RN

Am 85, late onset CMT. Several years ago began breaking bones (balance problem) ...

Edema and C M T

Anyone with CMT getting edema in the feet and legs ? How are you managing it.

I have CMT

I have CMT and I have two sons and both of them have CMT.

AN/CMT

Hello all, I have CMT & also have an Acoustic Neuroma. Do any of my fellow CMT...

need exercise program after heart attack but disabled cant find a book on this.

hello I had a heart attack on the 10th July I am disabled in a wheelchair, I ha...

CMT and Marijuana.

Hi, Male 70 CMT . Has anyone tried medical marijuana to ease nerve pain ? I wo...

anyone else ?

Hello, I have very mild type 1a and am wondering if this is a symptom. Over th...

HNPP & CMT?

Hi i have HNPP with CMT1-1REP has anyone else got. hereditary motor sensory neur...

Trainers

Thank you to whoever recommended new balance trainers, I brought some and they a...

Hypermobility and CMT

Hi All. I wondered if any of you have hypermobility? My daughter is now 35 an...

How do u live?

With disease?

High Cholesterol

Does anyone here tried statins and after having problems with my feet and hands ...

Covid vaccine

Hi I'm just wondering if any research has been done on if the vaccine can affect...

Please help who has knowledge

Has anyone have sensorimotor Axonal polyneuropathy of large fibers.If someone kn...

Trainers and sandals

Hi Can anybody give me advice on best trainers and sandals for charcot foot. I ...

sudden change

Hello Folks. I have 1a and about 18 months ago my big right toe suddenly stoppe...

Has anyone

Sensorimotor Axonal polyneuropathy of large fibers and where is discovered or te...

Dvla appraisal

Hello, I reported cmt 1a to dvla. My neurologist and rehabilitation consultsnt ...

Shoes for swimming

I have charcot foot and really want to get into swimming again. I would not wear...

Wisdom teeth / possible brain fog.

Hi I'm 20 years old and my wisdom teeth started coming through however they are ...

Tendonitis and carpol tunnel

Hi all, I have type 1a and I'm suffering really bad with carpol tunnel in both h...

Bladder and bowel issue

My father has CMT and manages well bless him has recently experienced over activ...

CMT blood result negative, now what?

Hi all, Following our initial shock that our son may have CMT, the blood tests ...

Does anyone experience chills and always being cold as part of CMT symptoms?

Does anyone experience chills and always being cold as part of CMT symptoms?

CMT carrier

I have genetic testing stating I am a CMT4j carrier. But I believe I have CMT sy...
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Many of you here may not know that this forum is supported by Charcot-Marie-Tooth Uk, the national charity for people with CMT in the U.K, providing you with all the support and information you need.

About us

CMT seeks to support all those impacted by Charcot-Marie-Tooth Disease. CMT is a condition that affects the ne...

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