Charcot-Marie-Tooth UK
CMT seeks to support all those impacted by Charcot-Marie-Tooth Disease. CMT is a condition that affects the nerves in your legs and arms, known as the...Read more
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Vitamin D!
Hi I have HNPP and diabetes and now I have had a letter from my GP to go see the nurse regarding my vitamin D levels!! They won't tell me if...
CMT Osteotomies - advice please
Hi, I have had all the usual soft tissue ops such as tendon transfers/lengthening, ligament reconstructions, toes straightened etc etc. my...
8 year old needing tendon lengthening
My daughter who is 8 has cmt 1a like myself. They have previously suggested her tendons are very tight but I've put it off for now as dread...
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Pains in chest
My 15 year old granddaughter has cmt but has started to suffer with pains in her chest, anxiety was mentioned but another doctor said it...
Have you found anything to prevent your stick/crutch sliding on wet surfaces ?
I have had a worrying number of near-misses when my elbow crutch has skidded on wet tiles and paths, and now am getting apprehensive about...
CMT or lupus?
Is it possible to have CMT, reynards and lupus? Can you have lupus without a rash or just a small rash now and again. I had a small one on...
Anyone with CMT2A?
Hello, I've just been told my 5 year old daughter has CMT2A, which appears to be cause by an MFN2 mutation. My daughter has lower limb...
At Times Wishing That I Could Swap Places With Them
Hi everyone, I'm new here, I don't have CMT, although my daughter and two grandchildren have it. Just a straight forward question here...
A toe-curling problem
I have just reached the stage where my toes have curled under to the extent that my weight is on the ends of some of them, rather than the...
