Charcot-Marie-Tooth UK | HealthUnlocked

Hello everybody, I truly hope you’re doing alright. I thank you so much for your availability.  I truly apologize for writing this much, but really, my...

My husband had cmt and he died unexpectedly at age 44. In August went to the doctor said it all looked good he said his breathing. Was off has been all...

Hi all Recently (a couple of months ago) I had a TIA. Since then I've been experiencing a lot of fatigues and generally running out of energy - the whole...

Has anyone had trouble with their heart rate and thinks it may be related to having CMT? If so what type of heart problem are you experiencing?

Good morning to our fellow CMTer. I would like to introduce the team here at CMTUK. I am the information and Support Advisor and apart from all the training I...

I’ve just asked for a early pop review has I know my cmt is getting worse I cannot stand for long periods of time and walk very far I get high rate care and...

Hey i have cmt type 1 im currently taking lamotrigine 200mg morning and night plus butec 5mg does anyone know any herbal stuff ect to help with pain or...

When I applied to renew my driving licence in 2019, it expired while the DVLA was processing it. Under Section 88 of the Road Traffic Act , we can continue to...

I've really enjoyed reading some of these posts written by people that deal with CMT and overcoming obstacles. You all are very courageous and I admire you...

So I thought it was time to give a little bit about living with CMT. My mother noticed that at about eight or nine years old that I was walking differently and...

My son is 3 and his dad has cmt type 1a My son has all the signs like his dad just not the Pes cavus but his physio said kids don’t get a arch in the foot...

Am 85, late onset CMT. Several years ago began breaking bones (balance problem) and was diagnosed. Have several other med. problems as well. The worst thing...

Anyone with CMT getting edema in the feet and legs ? How are you managing it.

I have CMT and I have two sons and both of them have CMT.

Hello all, I have CMT & also have an Acoustic Neuroma. Do any of my fellow CMT'ers out there have a Acoustic Neuroma? Maybe I'm the odd one out.

hello I had a heart attack on the 10th July I am disabled in a wheelchair, I have the following arthritis in both knees, both knees need replacing,...

Hi, Male 70 CMT . Has anyone tried medical marijuana to ease nerve pain ? I would like to know how you take it and it’s success rate. Thanks

Hello, I have very mild type 1a and am wondering if this is a symptom. Over the past 2 weeks my left leg dorsiflex muscles have been feeling strange. It isa...

Hi i have HNPP with CMT1-1REP has anyone else got. hereditary motor sensory neuropathy with liability to pressure palsy... ?

Thank you to whoever recommended new balance trainers, I brought some and they are great even without my orthotics Cheryl

Hi All. I wondered if any of you have hypermobility? My daughter is now 35 and has fall badly 3 times in 2 years. My father had CMT but I didn’t find this...

With disease?

Does anyone here tried statins and after having problems with my feet and hands I changed to ezetemibe. Has anyone been using ezetemibe for Ling term ? Or...

Hi I'm just wondering if any research has been done on if the vaccine can affect us with CMT. I also have found I've had severe allergic reactions to things...

Has anyone have sensorimotor Axonal polyneuropathy of large fibers.If someone knows leading MD s in world for this diagnose,and any innovative treatments...

Hi Can anybody give me advice on best trainers and sandals for charcot foot. I have Asics which are great with my orthotics but would like a change now and...

Hello Folks. I have 1a and about 18 months ago my big right toe suddenly stopped working ( dorsiflex) . One second it was fine, then next completely unable to...

Sensorimotor Axonal polyneuropathy of large fibers and where is discovered or tested for type.how cope with it,has found any alternative solution as stem cells...

Hello, I reported cmt 1a to dvla. My neurologist and rehabilitation consultsnt confirmed I am fit to drive manual cars but the dvla still want me to do a...

I have charcot foot and really want to get into swimming again. I would not wear water shoes in the pool but need them to get from the changing room to the...