Hi there , I'm new to this site and don't really know where to start ,I was diagnosed with CMT 9 months ago as well as having rheumatoid a...

Hi, im new here! i was diagnosed with CMT 20 years ago. up until now i have coped fairly ok. however, i seem to have taken a turn for the wo...

hi everyone, just a quick one, has anyone had their driving licence taken away because of their CMT getting worse

Hiya, I'm new here just looking for some advice and help with a few things...

About five weeks ago all of a sudden I found I could no longer lift my right leg even a couple of inches from the sitting position and pain ...

Hey everyone. I'm not really sure how this forum works, or if I belong here...

Had genetic tests com back I have duplication of the pmp22 gene and duplication of chromosome 17p12 so I do have cmt and ptls which my 10 ye...

Does anyone have oxygen at night, and has anyone taken it on holiday with them? Also how does it effect insurance