How do u live?: With disease? - Charcot-Marie-Too...

Charcot-Marie-Tooth UK

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How do u live?

cromar profile image
4 Replies

With disease?

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cromar profile image
cromar
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4 Replies
DawnD profile image
DawnD

Hi Cromar.

What do you mean, exactly?

Dawn

Ladywonder profile image
Ladywonder

Not quit sure what your asking. But you keep on doing whatever your doing now I live and do what I'm capable of if I cant do something I usually find away around it. I dont think of it and how I'm going to live. I live the way I always have being told I have cmt does not change anything yes I walk more carefully as I'm getting older etc. But that's with anyone I believe. Live life to the fullest.

minkimoo profile image
minkimoo

its got as ive got older, im now 44, and to be honest didnt really have any issues until around 4 years ago. since then my legs and feet have got alot worse but you just have to find a way to live with it. my mum had type 4 and went from being pretty able bodied to a wheelchair in about 15 months...i thank my lucky stars i have 1a...i just keep my chin up and have tried to learn how to adapt

Samson360 profile image
Samson360

I was diagnosed with CMT at the age of 11 and by the way lost my vision at the age of 12. I live according to what my mother instilled in me. She taught me to never let my disabilities get in the way of living life to the fullest. Today at 53 I can say it is challenging more than when I was younger. I looked at every obstacle as an opportunity or challenge to overcome. I have never allowed myself to let my disability to define me in any way. You just have to do the best you can with what you have

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