Posts - Charcot-Marie-Tooth UK | HealthUnlocked

Charcot-Marie-Tooth UK

1,678 members • 666 posts

All posts for June 2013

is this a type of Charcot-Marie-Tooth disease

hi i.m 49 years old i.m from Syria from 10 years ago my doctor tell me that i have neuropathy disease when he treat me from back pain and diagnose may be...

hi i.m 49 years old i.m from Syria from 10 years ago my doctor tell me that i h...

•11 years ago

Pxt-3003 posible treatment for cmt1a

Hi! my name is Flory, i have 23 years old, i'm a girl from Rumania, and i have cmt1a. Recently i read an article about the results of the trial with pleodrug...

Hi! my name is Flory, i have 23 years old, i'm a girl from Rumania, and i have ...

•11 years ago

AFO'S

Can anyone explain the benefits of using these,or pitfalls and as time progresses do most cmt sufferers use them as matter of course.Second question I find...

Can anyone explain the benefits of using these,or pitfalls and as time progresse...

•11 years ago

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Does anybody else suffer with burning, pressure with extreme pain on the ball of the feet.?

Does anybody else suffer with burning, pressure with extreme pain on the ball of the feet? This can come on very quickly no mattr if I'm standing, sitting or...

Does anybody else suffer with burning, pressure with extreme pain on the ball of...

•11 years ago

eply ? lowther1

I will look into it,my GP mentioned something,dont know if it was a tilt table test.I was referred to ENT at hospital a while back,the doctor there said it was...

I will look into it,my GP mentioned something,dont know if it was a tilt table t...

•11 years ago

trigenimal neuralgia and weak muscles

hello there,do people who have CMT usually suffer with trimenginal neuralgia,waek eyelid muscles,also generalised muscle atrophy thankyou.

hello there,do people who have CMT usually suffer with trimenginal neuralgia,wae...

•11 years ago

31st july wed my x3 op date

I got my final date confirmed as 31 july wed for ops Also pre op date 18 july . Am about to move to a ground floor flat on fri in prep for My hospital...

I got my final date confirmed as 31 july wed for ops Also pre op date 18 july...

•11 years ago

Sunday Telegraph

http://www.telegraph.co.uk/news/uknews/10122504/Baking-to-zorbing-disabled-fathers-list-inspires-daughter-to-a-life-without-limits.html

http://www.telegraph.co.uk/news/uknews/10122504/Baking-to-zorbing-disabled-fathe...

•11 years ago

I have CMT type 2, I attended eye clinic yesterday as when I read I suffer from double vision. They say it's muscle weakness due to CMT?????

I,m not sure. I do seem to be weaker on my left side and it's my left eye that's affected. Anybody else have weak muscles in their eyes which cause their eye...

I,m not sure. I do seem to be weaker on my left side and it's my left eye that's...

•11 years ago

does CMT ever affect one side of the body more ,for instance the non dominant side of your body ?

•11 years ago

Cmt? Awaiting to see neuroligist

Awaiting major recorrection op surgery on my right foot. 3xops right 1st metatarsal dosifelxion osteotomy Callaneal osteotomy, and 5th metatarsal jones...

Awaiting major recorrection op surgery on my right foot. 3xops right 1st meta...

•11 years ago

do people sometimes get diagnosed with another condition before getting diagnosis of cmt ?

•11 years ago

dwp wrote to my gp telling her not to give me any more medical certs.tried to contact dwp no response outragous

•11 years ago

Hnpp and cmt

Hi I hope that this is the right place that I have came to. I got my diagnosis yesterday it was very vague and I'm slightly confuse. I was tested for cmt and...

Hi I hope that this is the right place that I have came to. I got my diagnosis y...

•11 years ago

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