Posts - Charcot-Marie-Tooth UK | HealthUnlocked

Charcot-Marie-Tooth UK

1,678 members • 666 posts

All posts for October 2012

Membership Card - A question for Karen

Hi Karen. I regard my membership 'Attention' card as a potential life-saver and carry it with me at (nearly) all times. Unfortunately the printing is quite...

Hi Karen. I regard my membership 'Attention' card as a potential life-saver and ...

•11 years ago

has anyone ever had their blood ck levels checked?mine come back raised just wondering if its related to hnpp ? thanks

•12 years ago

Advice Needed!

Can anyone tell me why all us sufferers are not exempt from these medicals with ATOS? My HNPP is really really bad at the moment, I have a floppy left leg and...

Can anyone tell me why all us sufferers are not exempt from these medicals with ...

•12 years ago

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Medical!! Has anyone kept their benefit?

Hi has anyone with HNPP or CMT had one of these stupid medicals and managed to hold on to their benefits as a result of it? All I keep reading is the usual...

Hi has anyone with HNPP or CMT had one of these stupid medicals and managed to h...

•12 years ago

Hi I have CMT type 2. I have also had spinal surgery( rods and pins) learnt since that this part of it, Now have swollen hot feet legs?

Does anyone else suffer the same?

Does anyone else suffer the same?

•12 years ago

CMT in the news .... so sad that it had to be this way.

I read in a daily newspaper today that the poor young mother who was mown down by a van in Cardiff at the weekend, was a 32 year old CMT sufferer. That's being...

I read in a daily newspaper today that the poor young mother who was mown down b...

•12 years ago

Toes

Has anyone had toes straightened recently ? I had two toes on my right foot corrected in the mid 90s and after a long gap now have to have two on my left foot...

Has anyone had toes straightened recently ? I had two toes on my right foot corr...

•12 years ago

Are MBTs suitable for people with CMT

HorshamMalc, Thank you soooooo much for recommending MBTs. My pair (bought online for £80), arrived last week and I have lived in them ever since. Usually when...

HorshamMalc, Thank you soooooo much for recommending MBTs. My pair (bought onlin...

•12 years ago

The difference between HNPP and CMT 1A

Hi can someone tell me the difference between these two diseases? I have HNPP but it is listed under the CMT drop down and many of the symptoms are the same I...

Hi can someone tell me the difference between these two diseases? I have HNPP bu...

•12 years ago

Benefits Medical ( Are we fit for work?)

Hi has anyone had one of these medicals recently? If so could you shed some light on the kind of questions they ask please? I have my re-arranged one on 13th...

Hi has anyone had one of these medicals recently? If so could you shed some ligh...

•12 years ago

Cramps

I'm getting a lot of cramps, mostly in my upper legs and a few in my calf's, the backs of my thighs are painful and often wake me at night. I wondered if it...

I'm getting a lot of cramps, mostly in my upper legs and a few in my calf's, the...

•12 years ago

Does any one have breathing problems an swallowing problems

Does any one have breathing problems an swallowing problems an feels like your breathing an swallowing through a straw i have noticed this over the last...

Does any one have breathing problems an swallowing problems an feels like your b...

•12 years ago

Dead leg and Floppy Foot

Any ideas on medication for Floppy Foot (CMT) HNPP My dad suffers from CMT (HNPP) like me, only he seems to be affected more with the floppy foot and aching...

Any ideas on medication for Floppy Foot (CMT) HNPP My dad suffers from CMT (HNP...

•12 years ago

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