Doing the best with what we have - Charcot-Marie-Too...

Charcot-Marie-Tooth UK

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Doing the best with what we have

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I've really enjoyed reading some of these posts written by people that deal with CMT and overcoming obstacles. You all are very courageous and I admire you all. It was a huge disappointment to be diagnosed with CMT when I was 11 years old but even worse when I lost my vision at the age of 12 and had to attend a blind school. My absolute gratitude goes out to my mother who taught me that I could do anything and to not let my disabilities get in the way of me living life to the fullest, which I think I have. But also to my swim coach at the blind school who helped me get over my severe embarrassment of being seen in a swimsuit or being seen by the other boys that I would shower with. There were so many encouraging and loving people at the blind school and I made many good friends. Over my life I have so many, too many to count, really good people that gave me so much encouragement and still have so many that still do. It has been a challenging, yet rewarding life. I have tried to give back by my volunteer work and for the past six years, managing my Facebook page all about anything and everything to do with CMT. I hope I can, but here's a link to my page if anyone wants to check it out. I've also attached a link to a story about my life moving with CMT published by an online magazine so you might know much more about me. Thanks to everyone on this forum, you all are an inspiration.facebook.com/Quentinscausef...

Also....My Challenging, Yet Rewarding Life, With Charcot-Marie-Tooth Disease

patientworthy.com/2017/06/2...

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