Posts - Charcot-Marie-Tooth UK | HealthUnlocked

Charcot-Marie-Tooth UK

1,678 members • 666 posts

All posts for August 2018

Breathing and cmt

Does anyone else have problems catching their breath,it's worse when I take a deep breath and worse when lying down.also causes me to cough alot too.doctors...

Does anyone else have problems catching their breath,it's worse when I take a de...

Juliej51

•6 years ago

11 Replies

Poor help from NHS and doctor

Hi, I have the belief I have CMT, I have been to see a Neurologist who took blood samples but has not really come back to me with anything more than "Kappa...

Hi, I have the belief I have CMT, I have been to see a Neurologist who took bloo...

djl45

•6 years ago

11 Replies

Fall asleep any where any time and any place

I have CMT 1A, suffer extream fatigue. I sleep most of my day and life away. I want media action for this any suggestions

I have CMT 1A, suffer extream fatigue. I sleep most of my day and life away. I w...

Paddy201

•6 years ago

4 Replies

Want to take advantage of all our features? Just log in!

Confused

My Nueromusculer doctor said my genetics test had a grey area that mostly happens to come on as a baby or young child. She did not tell me the name. She...

My Nueromusculer doctor said my genetics test had a grey area that mostly happen...

Tumericmiraclewoman

•6 years ago

Be the first to reply

Confused

My Nueromusculer doctor said my genetics test had a grey area that mostly happens to come on as a baby or young child. She did not tell me the name. She...

My Nueromusculer doctor said my genetics test had a grey area that mostly happen...

Tumericmiraclewoman

•6 years ago

26 Replies

UPDATE

UPDATE- So I saw my Podiatrist today and he is stumped as to what is going on with my feet. So he is making some referrals to a bigger hospital where they may...

UPDATE- So I saw my Podiatrist today and he is stumped as to what is going on wi...

Memabe

•6 years ago

10 Replies

UPDATE

UPDATE- So I saw my Podiatrist today and he is stumped as to what is going on with my feet. So he is making some referrals to a bigger hospital where they may...

UPDATE- So I saw my Podiatrist today and he is stumped as to what is going on wi...

Memabe

•6 years ago

1 Reply

AT LAST REFERRALS FOR CMT

I saw my new Consultant for my 2nd appointment today (Myopathy), until now I have had no Consultant for 18 years as told no one specialised back then, so left...

I saw my new Consultant for my 2nd appointment today (Myopathy), until now I hav...

LoolooLacey2

•6 years ago

1 Reply

Stretching tips (Toes/Feet)

Hi - looking for any good tips/ exercises for keeping a level of flexibility / strength in feet. Any good routines people used would be great. I'm a sporty...

Hi - looking for any good tips/ exercises for keeping a level of flexibility / s...

oconghc2

•6 years ago

4 Replies

UPDATE - MY REPLY TO MEMAMBE

Hi, I am waiting on referral and tests (I am 66 years old). I am just like you I am sore to touch all over. I have had many falls due to foot drop and if I do...

Hi, I am waiting on referral and tests (I am 66 years old). I am just like you I...

LoolooLacey2

•6 years ago

14 Replies

Search posts

Pinned Posts

See all

Help with CMT.

Latest poll

See all polls

What type of CMT do you have

Vote

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - Charcot-Marie-Tooth UK | HealthUnlocked

Charcot-Marie-Tooth UK

All posts for August 2018

Breathing and cmt

Poor help from NHS and doctor

Fall asleep any where any time and any place

Confused

Confused

UPDATE

UPDATE

AT LAST REFERRALS FOR CMT

Stretching tips (Toes/Feet)

UPDATE - MY REPLY TO MEMAMBE

Search posts

Pinned Posts

Latest poll

What type of CMT do you have

Archive