Posts - Charcot-Marie-Tooth UK | HealthUnlocked

Charcot-Marie-Tooth UK

1,678 members • 666 posts

All posts for March 2013

just some advice

hi there, i know this is probably a silly question, my mum has CMT but neither me or my sister (we r 24 and 21) do, I am currently pregnant with my first child...

hi there, i know this is probably a silly question, my mum has CMT but neither m...

Hidden

•11 years ago

6 Replies

Can someone explain what CMT is about, what does it all mean, is it about bones?

can someone explain CMT.I read the problems but what does CMT cover in total?

hhennessy

•11 years ago

4 Replies

Worried about my op

I have cmt type five, born with it. Had the normal ankle ops as a youngster. Now I am having hammer toe surgery in 3 days and I'm a bit concerned. Having to...

I have cmt type five, born with it. Had the normal ankle ops as a youngster. Now...

wonkyfeet

•11 years ago

1 Reply

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both my sons age 11 and 2 1/2 have CMT TYPE 1A also as does me keep being advised to claim DLA as all of us suffer on a daily basis ..

heard bad stories of people that have applied for DLA ..my mum being one of them ..TURNED DOWN and didnt appeal but now at 72 can hardly walk any distance as...

heard bad stories of people that have applied for DLA ..my mum being one of them...

SPLITZSPLITZ

•11 years ago

4 Replies

can I do anything about my balance

Hi I am a 72 yr old diagnosed with charcott marie tooth disease probably type 2,I but not confirmed by nerve biopsy. I take 2 gabapentin 300ml.tablets per...

Hi I am a 72 yr old diagnosed with charcott marie tooth disease probably type 2,...

pikelet

•11 years ago

8 Replies

Advice on suitable accomodation.

Hi, due to my CMT getting substantially worse. I have been looking at various retirement apartments (I am over 60yrs) but not sure if this would be the right...

Hi, due to my CMT getting substantially worse. I have been looking at various re...

Whiterose

•11 years ago

3 Replies

Exercise and the gym

For nearly a year I have been going to a local council gym. But since end of january my balance has deteriorated and my foot drop has worsened. I am waiting...

For nearly a year I have been going to a local council gym. But since end of jan...

curlyburli

•11 years ago

14 Replies

How can you diagnose CMT ?

Hi there . I would be really grateful for a bit of advice. I am keen to get to the bottom of my symptoms but dont seem to be getting anywhere fast. I am 40...

Hi there . I would be really grateful for a bit of advice. I am keen to get to t...

Stanleyollie

•11 years ago

11 Replies

NUMB FINGERS

My dad and I have HNPP and just recently my dad has been diagnose with Rhematoid Arthritis, the medication he has been given help him tremendously but recently...

My dad and I have HNPP and just recently my dad has been diagnose with Rhematoid...

Pam49

•11 years ago

2 Replies

Is sleep apnea (not sure of spelling sorry) connected to CMT?

My offical diagnosis by my neurologist after many, many years of tests, is: "Muscle Atrophy of unknown origin" however I am 99% sure I have CMT; The symptoms...

My offical diagnosis by my neurologist after many, many years of tests, is: "Mu...

funkyfeet

•11 years ago

2 Replies

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Posts - Charcot-Marie-Tooth UK | HealthUnlocked

Charcot-Marie-Tooth UK

All posts for March 2013

just some advice

Can someone explain what CMT is about, what does it all mean, is it about bones?

Worried about my op

both my sons age 11 and 2 1/2 have CMT TYPE 1A also as does me keep being advised to claim DLA as all of us suffer on a daily basis ..

can I do anything about my balance

Advice on suitable accomodation.

Exercise and the gym

How can you diagnose CMT ?

NUMB FINGERS

Is sleep apnea (not sure of spelling sorry) connected to CMT?

Search posts

Pinned Posts

Latest poll

What type of CMT do you have

Archive