Looking for anyone who has done Dendr... - Advanced Prostate...

Advanced Prostate Cancer

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Looking for anyone who has done Dendritic Cell Therapy in India?

Justgettingitright profile image

hi! My dad was diagnosed with PCA in Feb 2024 and has been on doublet therapy. He has high volume bone mets with no symptoms. Currently he is on zytiga and prednisone (5mg). He got bilateral orchidectomy done in feb’24.

We are considering dendritic cell therapy for him to be done next month. His MO in India said that he has not seen anyone do DC till now and that it might not be helpful. Just trying to find examples specifically from someone has done it in India?

Please share your experience and why you did/did not do this therapy?

also, my dad recently became a grand- dad and he is over the moon. I want him to see his grandson grow into a strong man just like his grandpa!

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Justgettingitright
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23 Replies
God_Loves_Me profile image
God_Loves_Me

hey search in group.. many great results. I am also planning to do. I believe it’s good solution. Here is American company doing with different name syncromune.com/science/

Justgettingitright profile image
Justgettingitright in reply toGod_Loves_Me

Thank you for your response. My dad is in India and we are thinking of getting it done at APAC Biotech!

God_Loves_Me profile image
God_Loves_Me in reply toJustgettingitright

Yes same place i am planning to do. Try to connect Dr. Bandana Sharan. Try to search result it is amazing

Justgettingitright profile image
Justgettingitright in reply toGod_Loves_Me

Oh yes. We are in contact with Dr. Bandana as well. It was very encouraging speaking to her.

Tinkudi profile image
Tinkudi

hi where are you in India ? I am in Mumbai and my dad is on doublet too. Who is your doctor ? What is dendritic therapy indicated for - even while one is hormone sensitive ?

I know one doctor in Mumbai who is pretty well versed with these new therapies - and is an ex tata hospital doctor

sandystarfish profile image
sandystarfish in reply toTinkudi

hi

I live in malaysia but come to mumbai often. My husband is fighting this wretched disease. Do let me know if you find out if this therapy is effective?

Tinkudi profile image
Tinkudi in reply tosandystarfish

Ya sure. If I can be any help in Mumbai do tell me

Justgettingitright profile image
Justgettingitright in reply toTinkudi

Thank you so much. Will definitely get in touch with you.

Justgettingitright profile image
Justgettingitright in reply toTinkudi

Yes. I am Indian living in Canada. My dad is in India and he is being treated at max hospital saket, Delhi.

Dendritic cell therapy is similar to Provenge and is available at APAC Biotech, New Delhi. In India it is available for hormone sensitive men as well. You can ask your MO about this treatment and his opinion as well. Not sure why I don’t find a lot of Indians getting this therapy done.

also, kindly share the details of the MO you mentioned. Thanks

Justgettingitright profile image
Justgettingitright in reply toTinkudi

Sorry for the late reply. My dad is in Patna, Bihar, the therapy is available in New Delhi, APAC Biotech is the name of the company that is currently developing this. This immunotherapy is currently being done in India. They use tumour cells to prepare vaccines that can be self administered over a period of time. It is somewhat similar to Provenge available in the US.

Tinkudi profile image
Tinkudi in reply toJustgettingitright

Dr Vijay patil in Mumbai is good for these. I had met him and mentioned Provenge but he did not seem enthusiastic about it

Steel67 profile image
Steel67

does anyone know the cost- and is it a multi week protocol like Provenge?

Justgettingitright profile image
Justgettingitright in reply toSteel67

it might cost somewhere close to $20K and it can be self administered. It works on similar concept as Provenge. Each cycle will give you 6 vaccines that you can self inject every 3 weeks.

BigTom123 profile image
BigTom123

I had it down in Tijuana and in Houston and cannot tell if it has helped.

God_Loves_Me profile image
God_Loves_Me in reply toBigTom123

Tell us more what happen ?

BigTom123 profile image
BigTom123 in reply toGod_Loves_Me

Nothing; I had a very low PSA and it stayed low, under 1 for about 18 months then it rose. PSMA scan earlier this year showed 2 cancerous nodes, one in my chest which we radiated and one in my pelvic area which we took out robotically June 10th. 1st circulating tumor test just came back negative. extra 7 nodes removed in pelvic area were negative. Pretty good news.

God_Loves_Me profile image
God_Loves_Me in reply toBigTom123

where did you did pelvic area surgery?

BigTom123 profile image
BigTom123 in reply toGod_Loves_Me

UTSW Dallas at their Clements Hospital. OR was like the command bridge on the Starship Enterprise. Margulis was the surgeon.

Justgettingitright profile image
Justgettingitright in reply toBigTom123

Thanks for sharing & great results.

Soumen79 profile image
Soumen79

Hi,

I am from india as well and now on usa for 1yr work, I talked with apacden.for two reasons I had to move away

1. When asked they always share same use case of a super responded

2. They have not been able to widespread the usage of this one inspite of it being around for 10+ years and relatively less costly.

You had recent discussion - curious to know if things have changed

Justgettingitright profile image
Justgettingitright in reply toSoumen79

I had a discussion with Dr. Bandana and she seemed very encouraging. She shared two case studies with us, also available on their website. I am also trying to understand why it is not yet popular in India considering no side effects and possible benefits. Therefore, I put this on the forum to understand more about this therapy.

I recently got to know about a similar therapy from @God_loves_me being done in the US with really promising results. Check this link out.

healthunlocked.com/redirect...

sachi1979 profile image
sachi1979

I am from india , Madhya Pradesh, father having prostate cancer. I am also curious about this therapy . Till now , all oncologists have discouraged us to undergo this therapy. Please share your experience.

Justgettingitright profile image
Justgettingitright in reply tosachi1979

Sure. Il keep sharing updates.

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