Stage 4 Prostate Cancer w Bone Metastasis

[DWall85]

My dad was diagnosed w stage 4 ductal prostate cancer that has spread to his bones all over, hasn't spread to his organs or lymph nodes.

He was hospitalized about a month ago(when they found it) w a psa of 482.It's now down to a psa of 11 as of today. Currently he is only taking Orgovyx but was just prescribed today darolutamide and starts chemo(docetaxoel) in 2 weeks. Every 21 days for 6 treatments. He has come a long way in the month in terms of eating, stamina, fatigue, and pain. Before he didn't eat much and could barely walk up a set of stairs and he is back to eating normally and is in therapy(for a knee replacement) and his most recent session did the full hour without needing a break.

Not sure exactly what I'm asking other than any tips, words of encouragement, wisdom that anyone in a similar situation might have that would help. I've spent a ton of time on Google but that's hard as medicine and studies have come a long way in a short time. Also, maybe how long you have being going through this, quality of life, prognosis, etc.

Thanks for any advice in advance

[Tall_Allen]

It is the best therapy for his diagnosis.

[DWall85 in reply to Tall_Allen]

Yea his primary care and oncoligist said to continue it. It's very light therapy. Nothing extensive and they are aware of it as well

[Kpatti]

Wishing the best for your dad. I'm in a very similar situation when my father was diagnosed with stage 4 prostate cancer with mets on multiple bones and lymph nodes. His psa was at 574 when diagnosed six weeks ago and he will have his first of six rounds of docetaxel tomorrow.He has been on Degarelix (80mg shot every month) and Abiraterone for 6 weeks now and his last psa test came back to be 20. His bone pain has gotten significantly better too and he's much more mobile.

This community has been helpful to know that we aren't alone in this journey. I'm still new to the community, but both our fathers are on very similar journeys and let me know if I can be of any help and answer questions that I can.

Again, the best for your father and your family.

[DWall85 in reply to Kpatti]

I definitely appreciate it. Glad to hear your dad is doing much better and wishing you and your dad all the best as well. Thank you

[pakb in reply to Kpatti]

My husband has been on a similar journey- diagnosed in Aug 2017. You can look in my profile for details. Wishing similar results for both your fathers💙

[pakb in reply to pakb]

I will add that we would have done triplet therapy at the start if it had been a thing back then. Doublet therapy was new when my husband was diagnosed, and we were happy we could hit it hard.

[DWall85 in reply to pakb]

Thank you so much, wishing you and your husband all the best as well

[petrig]

Triplet therapy Orgovyx+docetaxel(chemo)+Nubeqa is best treatment he can get. I had dx in august 2023. PSA 2500 ,P-AFOS 2600 .Metastases in bones all over ,metastases in lymph nodes. Lots of pain ,weight loss 20 kg ... I had triplet therapy (still in Orgovyx and Nubeqa) and all pains are gone,weight have come back.So ,just now ,I feel great. So your dad will live good ,active life for many years.

[DWall85 in reply to petrig]

Thank you so much and great to hear you are doing so well

[hansjd]

Hi DWall85

I was diagnosed with similar conditions, albeit not ductal and not as high a PSA, but nevertheless similar. That was 7 years ago. You can read my bio. With the treatment your dad's on / going to have, he'll likely do very well also. Stay positive.

[DWall85 in reply to hansjd]

That is great to hear, thank you so much. I'll definitely check out your bio

[Tonyliv]

I was diagnosed with stage 4 December 2017, with extensive bone mets, similar to your dad

I had the same treatment as your father will, then a great run on abiraterone, radiotherapy,, and recently more chemotherapy.

If he punches through the docetaxel, he can get to a lifestyle where he just takes a tablet a day. Stay strong.

[DWall85 in reply to Tonyliv]

Thank you so much, same to you

[Woodstock82]

I got excellent results from chemo. Details in my profile.

[DWall85 in reply to Woodstock82]

Will definitely check it out, thank you

[EddieV]

I was diagnosed with wide spread bone Mets and multiple abdominal lymph nodes. PSA 32. That was in 7/22. Hopkins gave me 3 months. Saw Dr Smith at Harvard then Dr Aparacio at MDA. I had same treatment as your dad. I had a severe staph infection which I am still recovering from. I had two (7/22) nephrostomy tubes. Oh I now have collapsed l 3 l4 discs. Attitude is the proverbially everything. Be kind when he is not. Don’t hover give him space. He can survive and will survive knowing he is loved.

.

[DWall85 in reply to EddieV]

Thank you so much and wishing you all the best

[EdBar]

I had the same dx going on 11 years ago now, you can read my profile to see what treatments I’ve undergone.

Ed

[DWall85 in reply to EdBar]

Will do, thank you