PSMA RESULTS

[Bcgkelly]

I’m five years Post surgery including removal of prostate & lymph nodes. Gleason 8 with Intraductal. Sepsis, DVT/PE after surgery which left me with chronic fatigue, brain fog and bad overactive bladder with incontinence. Four years post stereotactic radiotherapy to the left iliac area following a PSMA scan in Germany. I didn’t have pelvic wide radiotherapy at the time as two radiation oncologists advised me that my bowel would not withstand it. I also didn’t have hormone treatment as I had a fear of it given the fatigue I already suffer. I live in Ireland. My PSA is currently 0.670, with a doubling time of approximately six months. I’ve just had a second PSMA and they found a spot in my left pubic bone, right iliac area and the prostate bed. They are now suggesting radiotherapy to the three areas together with hormone treatment. I assume that the radiotherapy is going to make my overactive bladder worse. I have read that in certain cases, adding 3 to 4 cycles of chemotherapy to both of these treatments can be curative and am wondering if anyone can advise me on this.

[Grandpa4]

I don’t understand the point of radiation therapy. You have metastatic disease so it would not cure you. You are not having symptoms so it is not palliative. . I think systemic antitestosterone therapy probably with chemotherapy is standard of care.

[Hailwood in reply to Grandpa4]

Palliation is the treatment of a disease that has no cure, so elementally, like me, his treatments are palliative, but hopefully allow a longer survival time with good life quality.

[Graham49]

I would go with the radiotherapy and ADT as your medical team advises.

[j-o-h-n]

curative? Like cured of all Pca?

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 11/14/2023 10:11 PM EST