Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

22,278 members•27,978 posts

All posts for July 2024

update

I am remembering when we started this journey with prostate cancer and I was afraid Mike would not get to see our son graduate high school. He has been able...

I am remembering when we started this journey with prostate cancer and I was afr...

longleaf

•4 months ago

7 Replies

Cardiac surgery meds bring PSA down?

My PSA was 1.6 on January 8 of this year. On January 31st I had successful open-heart surgery to repair a heart valve. On March 7th, my next blood test, my...

My PSA was 1.6 on January 8 of this year. On January 31st I had successful open...

Runner4000

•4 months ago

12 Replies

QOL: just how old are you…

https://youtu.be/WufKsOhkTL8?feature=shared not quite that old, but 55 years ago they landed on the moon on my birthday 🤩 nope I was already born before...

https://youtu.be/WufKsOhkTL8?feature=shared not quite that old, but 55 years ...

MouseAddams

•4 months ago

15 Replies

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I owe you an update

Many thanks to the members of this forum. FYI, I was diagnosed with a DRE last October, 2023. I had a biopsy in November and confirmed an aggressive stage 5,...

Many thanks to the members of this forum. FYI, I was diagnosed with a DRE last ...

Worked_the_World

•4 months ago

8 Replies

catheter for urinary retention

Does anyone have advice or tips on getting a catheter removed? My husband had it inserted due to urinary retention. The oncologist said his prostrate is full...

Does anyone have advice or tips on getting a catheter removed? My husband had i...

debbied1215

•4 months ago

9 Replies

Enzalutamide

Are any others experiencing metallic tasting food while taking enzalutamide? I’ve noticed that for myself along with poor appetite with weight loss.

Are any others experiencing metallic tasting food while taking enzalutamide? I’v...

MooseJawg

•4 months ago

7 Replies

MO Recommendation in Hawaii?

Looking for Medical Oncologist recommendation in Hawaii please

6357axbz

•4 months ago

6 Replies

Some good news yesterday

I’m 66, dealing with PCa for 6 years, have had surgery and radiation 2x. Things were quiet for a year and a half. After a rapid rise in psa this spring, the...

I’m 66, dealing with PCa for 6 years, have had surgery and radiation 2x. Things...

CousinGrandpa

•4 months ago

17 Replies

ARSI's cause 2-4 fold increase in CV events

Here is a recently published , large meta-analysis paper that discovered a 2 to 4 fold (200%-400%) increase in the risk of cardiovascular events for men with...

Here is a recently published , large meta-analysis paper that discovered a 2 to ...

janebob99

•4 months ago

44 Replies

New Mediterranean observational study

Mediterranean Diet Is Associated With Lower All-Cause and Cardiovascular Mortality Among Long-Term Cancer Survivors J Am Coll Cardiol CardioOnc. Jul 02, 2024....

Mediterranean Diet Is Associated With Lower All-Cause and Cardiovascular Mortali...

Graham49

•4 months ago

1 Reply

Darolutamide ( Nubeqa) most well tolerated ARPI ?

From what I have been reading , is Nubeqa supposed to be the ARPI which most seem to tolerate well compared to the others ? Is it well studied to be...

From what I have been reading , is Nubeqa supposed to be the ARPI which most see...

Simpson80

•4 months ago

50 Replies

on exercise again

not randomized, but still a very interesting study that wants to check the relation between PSA decline and quantity of exercise per week in men with localized...

not randomized, but still a very interesting study that wants to check the relat...

Maxone73

•4 months ago

5 Replies

Cancer Turned Aggressive?

My dad has been battling prostate cancer for 15+ years . He goes to University of Chicago. He is 74. Early 2000’s- prostate removed - not clean margins. Did...

My dad has been battling prostate cancer for 15+ years . He goes to University o...

Jshaw916

•4 months ago

4 Replies

diarrhea flares ?

My dad had radiation that ended in January. Currently on Lupron. Had his last shot July 7th and his PSA was .02. He had a lot of issues post radiation, with...

My dad had radiation that ended in January. Currently on Lupron. Had his last sh...

alysona828

•4 months ago

2 Replies

I’d like to trBAT a but Dr. Danmeade requires a visit to Maryland. I live in SoCal and this does not work for me at this point

Currently stage four metastatic castrate resistant with multiple failures from robotic surgery to proton, SBRT, eclipse trial, Orgovyx, Provenge, and finally...

Currently stage four metastatic castrate resistant with multiple failures from ...

SViking

•4 months ago

22 Replies

Lutetium

Hoping to get some idea of how effective the Lutetium 177 is. I have a few friends who have tried it but perhaps too late and it only worked briefly. I...

Hoping to get some idea of how effective the Lutetium 177 is. I have a few frien...

Doggedness

•4 months ago

20 Replies

In vivo: STING activation disrupts tumor vasculature to overcome the EPR limitation and increase drug deposition

in vivo means live concert in this case! 😜 Another hopefully useful tool for the near future, very near I hope!...

in vivo means live concert in this case! 😜 Another hopefully useful tool for t...

Maxone73

•4 months ago

Be the first to reply

a new platform for ADC development….no sorry, it’s DAC this time! not PCa related but hopefully soon

”Orum has granted Vertex rights to conduct research using its TPD² approach to developing degrader-antibody conjugates (DACs), next-generation versions of...

”Orum has granted Vertex rights to conduct research using its TPD² approach to d...

Maxone73

•4 months ago

1 Reply

looking for recommendations for top radiation oncologist in Calif or Mayo for second opinions.

My husband had RP in June of 2022 and his PSA started creeping up since September of 2023. His last PSA was .08. He had a discussion with the radiation...

My husband had RP in June of 2022 and his PSA started creeping up since Septembe...

BeHealthi

•4 months ago

38 Replies

trelstar

hi warriors. I have been on trelstar for 8 years and was wondering if anyone else has been on it. I have been undetectable at <.006 and now my psa is rising to...

hi warriors. I have been on trelstar for 8 years and was wondering if anyone els...

Mikes21

•4 months ago

25 Replies

Looking for support in supporting my husband

This community has been so informative and I truly appreciate the information I have received from so many incredible people. Thank you! This is the first time...

This community has been so informative and I truly appreciate the information I ...

Smmac15

•4 months ago

12 Replies

Should I insist on Whole Pelvic Radiation Therapy (WPRT)?

Given my condition (see profile), should I ask for Whole Pelvic Radiation Therapy (WPRT)? Multiple doctors have said I don't need WPRT due to my low Decipher...

Given my condition (see profile), should I ask for Whole Pelvic Radiation Therap...

Infamous9597

•4 months ago

17 Replies

CRISPR Identifies New Genes as Drivers of Prostate Cancer Metastasis

Three research groups recently independently elucidated the genetic and epigenetic mechanisms driving prostate cancer metastasis. The innovative use of CRISPR...

Three research groups recently independently elucidated the genetic and epigenet...

No_stone_unturned

•4 months ago

2 Replies

Is this decision right for me

I had a PSMA pet scan on 7/16/2024. The result shows a single tumor in my left lung measuring 8mm. My MO wants me to have the tumor radiated and monitor the...

I had a PSMA pet scan on 7/16/2024. The result shows a single tumor in my left l...

old64horn

•4 months ago

2 Replies

Chemotherapy- to do or not at 82 years ?

( I made this post earlier but am doing it again in the hope that more men in their 80’s could share their experiences if they took chemotherapy. ) I am 82...

( I made this post earlier but am doing it again in the hope that more men in th...

Simpson80

•4 months ago

47 Replies

Need recommendation for best medical oncologists at UCSF

I am in touch with a person up in the SF bay area that would like names of the top medical oncologists at UCSF specializing in prostate cancer. If you have any...

I am in touch with a person up in the SF bay area that would like names of the t...

wilcoxsaw

•4 months ago

5 Replies

Boner during shower

My husband has been on Nubeqa and has Zoladex shots since November ( 2023 ) . He finished chemo on April 18 ( 2024 ) . He has had many issues even before...

My husband has been on Nubeqa and has Zoladex shots since November ( 2023 ) . He...

positive-thinking

•4 months ago

34 Replies

PSMA PET 7/17/2024 vs. Axumin PET 1/3/2024

I had my first ever PSMA PET run this morning, 7/17/2024. Here is the report, followed immediately by the report from my most recent Axumin PET run 1/3/2024....

I had my first ever PSMA PET run this morning, 7/17/2024. Here is the report, fo...

dhccpa

•4 months ago

8 Replies

FL-091: promising radioligand

another radioligand in town! For prostate cancer but not only! Hopefully useful for PCa not expressing psma!...

another radioligand in town! For prostate cancer but not only! Hopefully useful ...

Maxone73

•4 months ago

Be the first to reply

trojan horse to kill cancer, an agnostic system

ok Newsweek is not the best scientific source but the system is interesting: https://www.newsweek.com/cancer-breakthrough-yale-trojan-horse-therapy-1925925

ok Newsweek is not the best scientific source but the system is interesting: ht...

Maxone73

•4 months ago

6 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for July 2024

update

Cardiac surgery meds bring PSA down?

QOL: just how old are you…

I owe you an update

catheter for urinary retention

Enzalutamide

MO Recommendation in Hawaii?

Some good news yesterday

ARSI's cause 2-4 fold increase in CV events

New Mediterranean observational study

Darolutamide ( Nubeqa) most well tolerated ARPI ?

on exercise again

Cancer Turned Aggressive?

diarrhea flares ?

I’d like to trBAT a but Dr. Danmeade requires a visit to Maryland. I live in SoCal and this does not work for me at this point

Lutetium

In vivo: STING activation disrupts tumor vasculature to overcome the EPR limitation and increase drug deposition

a new platform for ADC development….no sorry, it’s DAC this time! not PCa related but hopefully soon

looking for recommendations for top radiation oncologist in Calif or Mayo for second opinions.

trelstar

Looking for support in supporting my husband

Should I insist on Whole Pelvic Radiation Therapy (WPRT)?

CRISPR Identifies New Genes as Drivers of Prostate Cancer Metastasis

Is this decision right for me

Chemotherapy- to do or not at 82 years ?

Need recommendation for best medical oncologists at UCSF

Boner during shower

PSMA PET 7/17/2024 vs. Axumin PET 1/3/2024

FL-091: promising radioligand

trojan horse to kill cancer, an agnostic system

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