trelstar: hi warriors. I have been on... - Advanced Prostate...

Advanced Prostate Cancer

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trelstar

Mikes21 profile image
25 Replies

hi warriors. I have been on trelstar for 8 years and was wondering if anyone else has been on it. I have been undetectable at <.006 and now my psa is rising to .014. Maybe trelstar is losing its touch. Anyway I am doing a psma tomorrow. Had a pet ct last week that didn’t light up so I know the psma probably won’t show anything but maybe it will a little? Anyway if trelstar is not effective what is next? Thanks so much for any and all input.

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Mikes21 profile image
Mikes21
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25 Replies
Tall_Allen profile image
Tall_Allen

That is a great response to Trelstar!

Mikes21 profile image
Mikes21 in reply to Tall_Allen

So see if a second line therapy may be next? I’ll see what the psma reads and let you all know.

Maxone73 profile image
Maxone73

damn commercial names! I wanted to try this trelstar…it’s the same I am getting, mine is just called decapeptyl 😂😂😂

Mikes21 profile image
Mikes21 in reply to Maxone73

Wow I never heard it called that.

Maxone73 profile image
Maxone73 in reply to Mikes21

I think it’s the European name

Leader4077 profile image
Leader4077 in reply to Maxone73

Consider yourself the winner of the Lottery.

Maxone73 profile image
Maxone73 in reply to Leader4077

Why? 😀

MJCA profile image
MJCA

I had never heard of trelstar. It acts the same way as Lupron. So, if your body is not reacting any longer to Trelstar, you will probably be placed on a second tier ADT such as Xtandi, Zyriga, Erleada, or Nubeqa. I may have forgotten one, but this would normally be the next step. Your PSA is still very low; they possibly may not do anything.

Mikes21 profile image
Mikes21 in reply to MJCA

Thanks. I’ll see what the psma comes up with. Good to know that I can add on.

MJCA profile image
MJCA in reply to Mikes21

I made a spelling error, it’s Zytiga. Keep us posted.

Mikes21 profile image
Mikes21 in reply to MJCA

Spoke with mo and she said we will check my psa September which will be three months. My psma was clear of metastasis so she wasn’t inclined to radiate pelvic bed at this point nor add zytiga. Just like you thought. She did say those are things that are in the toolbox. Take care and hope you are doing well!

MJCA profile image
MJCA in reply to Mikes21

That’s really good news!! Congratulations!

Mikes21 profile image
Mikes21 in reply to MJCA

Thanks and I’m still nervous about what the psa will be in September but I guess for now I’ll just not stress it and deal with whatever it is in September. Talk to you soon and take care!

Mikes21 profile image
Mikes21 in reply to MJCA

Forgot to ask would I continue trelstar and add zytiga to go with it. Thanks

yamobedeh profile image
yamobedeh

Hi Mikes21. I switched to Trelstar because I had terrible allergy issues with Lupron....itchy hives all over. I stayed on Trelstar for 18 months as per my oncologist's advice. Apparently my situation was relatively uncommon.

Mikes21 profile image
Mikes21 in reply to yamobedeh

How’s your psa?

yamobedeh profile image
yamobedeh in reply to Mikes21

Undetectable for 6 years now. I was on "triple blockade".....Trelstar, Casodex and Avodart. After 18 months, I continued with Avodart (and still do) since my oncologist suggested that it contributes to maintaining a hostile environment for Pca.

yamobedeh profile image
yamobedeh in reply to yamobedeh

My Dx was stage 4, Gleason 8. 37 radiotherapy sessions to prostate and one bone met. Then 10 follow-up sessions on pelvic lymph nodes. Finally, low dose brachytherapy.

Mikes21 profile image
Mikes21 in reply to yamobedeh

Forgot to also ask have you ever done chemo?

Mikes21 profile image
Mikes21 in reply to yamobedeh

Amazing. So you’re just on avodart now? Thx

fast_eddie profile image
fast_eddie in reply to yamobedeh

I am on avodart (dutasteride) only right now.

jedgar1 profile image
jedgar1

I have been on Travelstar for at least two years. I got it at Moffett in Tampa Florida that is not common. I did a trial with Florida cancer and they wanted to have me do everything there in the house but they couldn't get trail star long story short I'm now at mayo and they were able to get it for me. I liked it better than Lupron because the side effects seem less also apparently it's a lot less expensive than Lupron. I use it in place of Lupron. I'm now using it with with Nubequa

Mikes21 profile image
Mikes21 in reply to jedgar1

I just heard about nubeqa. How’s your psa? Thx

jedgar1 profile image
jedgar1 in reply to Mikes21

When I came off the trial PSA went up to 1.2 May 21st. Started Nebequa May 27th. June 19th PSA 0.94 So far good. I am APC mets in Ribs and spine. Doc wasn't sure it would be approved but it was. Hope to get a year out of it.

j-o-h-n profile image
j-o-h-n in reply to jedgar1

Uh Uh Uh..... No 'U" following Q in (and spelled) Nubeqa. ((darolutamide))

Good Luck, Good Health and Good Humor.

j-o-h-n

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