trelstar

[Mikes21]

hi warriors. I have been on trelstar for 8 years and was wondering if anyone else has been on it. I have been undetectable at <.006 and now my psa is rising to .014. Maybe trelstar is losing its touch. Anyway I am doing a psma tomorrow. Had a pet ct last week that didn’t light up so I know the psma probably won’t show anything but maybe it will a little? Anyway if trelstar is not effective what is next? Thanks so much for any and all input.

[Tall_Allen]

That is a great response to Trelstar!

[Mikes21 in reply to Tall_Allen]

So see if a second line therapy may be next? I’ll see what the psma reads and let you all know.

[Maxone73]

damn commercial names! I wanted to try this trelstar…it’s the same I am getting, mine is just called decapeptyl 😂😂😂

[Mikes21 in reply to Maxone73]

Wow I never heard it called that.

[Maxone73 in reply to Mikes21]

I think it’s the European name

[Leader4077 in reply to Maxone73]

Consider yourself the winner of the Lottery.

[Maxone73 in reply to Leader4077]

Why? 😀

[MJCA]

I had never heard of trelstar. It acts the same way as Lupron. So, if your body is not reacting any longer to Trelstar, you will probably be placed on a second tier ADT such as Xtandi, Zyriga, Erleada, or Nubeqa. I may have forgotten one, but this would normally be the next step. Your PSA is still very low; they possibly may not do anything.

[Mikes21 in reply to MJCA]

Thanks. I’ll see what the psma comes up with. Good to know that I can add on.

[MJCA in reply to Mikes21]

I made a spelling error, it’s Zytiga. Keep us posted.

[Mikes21 in reply to MJCA]

Spoke with mo and she said we will check my psa September which will be three months. My psma was clear of metastasis so she wasn’t inclined to radiate pelvic bed at this point nor add zytiga. Just like you thought. She did say those are things that are in the toolbox. Take care and hope you are doing well!

[MJCA in reply to Mikes21]

That’s really good news!! Congratulations!

[Mikes21 in reply to MJCA]

Thanks and I’m still nervous about what the psa will be in September but I guess for now I’ll just not stress it and deal with whatever it is in September. Talk to you soon and take care!

[Mikes21 in reply to MJCA]

Forgot to ask would I continue trelstar and add zytiga to go with it. Thanks

[yamobedeh]

Hi Mikes21. I switched to Trelstar because I had terrible allergy issues with Lupron....itchy hives all over. I stayed on Trelstar for 18 months as per my oncologist's advice. Apparently my situation was relatively uncommon.

[Mikes21 in reply to yamobedeh]

How’s your psa?

[yamobedeh in reply to Mikes21]

Undetectable for 6 years now. I was on "triple blockade".....Trelstar, Casodex and Avodart. After 18 months, I continued with Avodart (and still do) since my oncologist suggested that it contributes to maintaining a hostile environment for Pca.

[yamobedeh in reply to yamobedeh]

My Dx was stage 4, Gleason 8. 37 radiotherapy sessions to prostate and one bone met. Then 10 follow-up sessions on pelvic lymph nodes. Finally, low dose brachytherapy.

[Mikes21 in reply to yamobedeh]

Forgot to also ask have you ever done chemo?

[Mikes21 in reply to yamobedeh]

Amazing. So you’re just on avodart now? Thx

[fast_eddie in reply to yamobedeh]

I am on avodart (dutasteride) only right now.

[jedgar1]

I have been on Travelstar for at least two years. I got it at Moffett in Tampa Florida that is not common. I did a trial with Florida cancer and they wanted to have me do everything there in the house but they couldn't get trail star long story short I'm now at mayo and they were able to get it for me. I liked it better than Lupron because the side effects seem less also apparently it's a lot less expensive than Lupron. I use it in place of Lupron. I'm now using it with with Nubequa

[Mikes21 in reply to jedgar1]

I just heard about nubeqa. How’s your psa? Thx

[jedgar1 in reply to Mikes21]

When I came off the trial PSA went up to 1.2 May 21st. Started Nebequa May 27th. June 19th PSA 0.94 So far good. I am APC mets in Ribs and spine. Doc wasn't sure it would be approved but it was. Hope to get a year out of it.

[j-o-h-n in reply to jedgar1]

Uh Uh Uh..... No 'U" following Q in (and spelled) Nubeqa. ((darolutamide))

Good Luck, Good Health and Good Humor.

j-o-h-n