Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

21,056 members • 26,262 posts

All posts for July 2023

Another 3 month Signatera ctDNA result of "not detected" 💙

Based on ctDNA from biopsy last March, but with T < 10, what's making PSA 🤔? Currently at 3.89 I'll roll with it babee QoL on

Based on ctDNA from biopsy last March, but with T < 10, what's making PSA 🤔? Cu...

dockam

•10 months ago

10 Replies

Provenge and Side Effects

Hello, I was wondering if anyone has experience with Provenge . Has anyone experienced side effects ? Thank you

Hello, I was wondering if anyone has experience with Provenge . Has anyone exp...

spolyu

•10 months ago

4 Replies

Update after consultation w/Royal Marsden

I promised I would address some requests for information following my consultation with Prof. Johan de Bono and his team at the Royal Marsden Hospital. The...

I promised I would address some requests for information following my consultati...

CrocodileShoes

•10 months ago

15 Replies

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Swollen Legs after Chemo

I just finished ten rounds of Docetaxel for stage 4 PC. At around the 8th cycle, I noticed my legs and ankles were swollen. Now that I’ve completed the chemo,...

I just finished ten rounds of Docetaxel for stage 4 PC. At around the 8th cycle...

carguy

•10 months ago

2 Replies

Seeking options/opinions

I hope you look back on previous posts and background. Finished Pluvicto in spring 23. Started out fine but went sideways. By mid May, psa and alk were on...

I hope you look back on previous posts and background. Finished Pluvicto in spri...

RunThru

•10 months ago

1 Reply

live with prostate cancer

Since 2021 I was diagnosed with type 4 metastatic prostate cancer ,started my chemo with texatere my PSA is below 0 , taking lupron injection every 6 months...

Since 2021 I was diagnosed with type 4 metastatic prostate cancer ,started my ch...

Mkhaz

•10 months ago

19 Replies

second opinion doc recommendations- outside of India

Hi everyone, My father’s PCa stage 4 has advanced to small cell carcinoma of liver. Want to consult doctors (experts in this particular mutation of PCa)...

Hi everyone, My father’s PCa stage 4 has advanced to small cell carcinoma of l...

A-rat-22

•10 months ago

5 Replies

Future after Erleada/Lupron

I met with a new MO today for a second opinion. I've been taking Erleada/Lupron for almost four years with few side effects (for which I'm grateful). I'm...

I met with a new MO today for a second opinion. I've been taking Erleada/Lupron...

NorYug

•10 months ago

16 Replies

Cabazitaxel, can you return for a second round.

I was only on this chemo, Cabazitaxel, for three infusions, then was approved for Pluvicto . PSA was creeping up slowly during that time, from 63-141. Has...

I was only on this chemo, Cabazitaxel, for three infusions, then was approved f...

docbulldog

•10 months ago

7 Replies

Fentanyl and cannabis

A nyone out there using cannabis and fentanyl in combination for pain relief? I can't seem to find much literature saying if it is safe or not,,

A nyone out there using cannabis and fentanyl in combination for pain relief? I ...

Kentucky1

•10 months ago

9 Replies

Blood work before radiation and elevated liver enzymes

Hi there, my husband (42) was diagnosed with prostate cancer in Feb. Gleason score 9, RP done in March. He was started on Eligard prior to surgery and is...

Hi there, my husband (42) was diagnosed with prostate cancer in Feb. Gleason sco...

Footballlover

•10 months ago

19 Replies

Can Radium 223 kill PCa in the prostate and can Docetaxel kill bone Mets?

Radiation is what l plan to do in the coming week. I would appreciate if you could tell me whether Radium 223 can kill PCa in the prostate and whether...

Radiation is what l plan to do in the coming week. I would appreciate if you co...

tarzantass

•10 months ago

10 Replies

False Hope?

today I went to MDAnderson to get my results from my MRI w/wo contrast. Endorectal. Ouch. Hate that coil. Feb 22 I had a Axumin scan that found two mets in...

today I went to MDAnderson to get my results from my MRI w/wo contrast. Endorec...

icanwintwice

•10 months ago

32 Replies

Genetic Testing at City of Hope

Hi, has anybody participated in the genetic testing program at City of Hope? I received an email for a study (free of cost) from their Precision Medicine...

Hi, has anybody participated in the genetic testing program at City of Hope? I r...

akaipop3ps

•10 months ago

9 Replies

I have been diagosed . On biopsy my gleason score is 4+4=8 with a group grade of 4. I have many autoimmune diseases PBC Sjogrens Scleroderma

My surgeon is reluctant to do prostatectomy because of potential healing problems and my age 74. The cyber knife doctor is very hesitant because of severe...

My surgeon is reluctant to do prostatectomy because of potential healing problem...

bargerat

•10 months ago

15 Replies

Doing ok, o ignorance is bliss

Hello brothers. In 12 months of ADT vacatión (with no medication) my PSA has risen slowly but steadily, from . 2 to .9. Not sure weather to feel good or...

Hello brothers. In 12 months of ADT vacatión (with no medication) my PSA has ris...

CountryJoe

•10 months ago

8 Replies

Lu177 and SIR-Spheres

I'm PSMA avid with advancing mets in my liver. I'll be starting Lu177 soon, but it doesn't have a great track record with liver mets. I've seen some small...

I'm PSMA avid with advancing mets in my liver. I'll be starting Lu177 soon, but ...

Djangler

•10 months ago

5 Replies

Hungry!!

I'm four years into stage 4, lupron and abi/pred doing their job well. Undetectable. My question....about a year ago I began to develop an increased...

I'm four years into stage 4, lupron and abi/pred doing their job well. Undetect...

jtspitfire

•10 months ago

34 Replies

Prayers still needed for our HU Brother Kevin🙏

He's 5 chemos in and PSA still rising. If you are so inclined, a Prayer for him would be so welcomed🙏💙 Alk Phos is normal, severely anemic tho😟 Mahalo nui...

He's 5 chemos in and PSA still rising. If you are so inclined, a Prayer for him ...

dockam

•10 months ago

60 Replies

Question for PCa patients using Estradiol transdermal patch for bone protection and SEs

As I noted in an earlier now deleted post, I've been using the lowest dose E2 patch and saw an unexpected reduction in my glucose level from a recent blood...

As I noted in an earlier now deleted post, I've been using the lowest dose E2 pa...

NewPotatoCaboose

•10 months ago

1 Reply

Weaning off of Zytiga and prednisone

How to wean off of Zytiga? I've been on one capsule (250mg) every other day with 5mg Prednisone everyday. How to wean off these drugs together?

How to wean off of Zytiga? I've been on one capsule (250mg) every other day with...

SViking

•10 months ago

7 Replies

ITS BEEN A WHILE

Warriors missed you all so much I am doing well PSA 0.1 4 years post diagnosis Hey Wonderwoman and I got married recently spent a few days in Mexico...

Warriors missed you all so much I am doing well PSA 0.1 4 years post diagnosi...

Bodysculpture

•10 months ago

16 Replies

Short of breath

On Orgovyx, Nubeqa and Megace for last three months. Completing 27 of 27 fractions of radiation tomorrow. I am short of breath most of the time. A walk up a...

On Orgovyx, Nubeqa and Megace for last three months. Completing 27 of 27 fracti...

SLOJIM

•10 months ago

21 Replies

Docetaxel and Excessive Tearing

Hi Gents, I have been experiencing excessive tearing as a SE from Docetaxel. I have an appointment with an ophthalmologist, but it’s over one month away. If...

Hi Gents, I have been experiencing excessive tearing as a SE from Docetaxel. I ...

MJCA

•10 months ago

11 Replies

QOL …update on hemp derived delta-8 and thc-p gummies. ( all hemp derived products are federally legal nation wide ).

this is purely anecdotal and from direct personal experiences of myself and others I know. All strictly IMHO. That said ….. first, hemp products are not...

this is purely anecdotal and from direct personal experiences of myself and othe...

Kaliber

•10 months ago

75 Replies

SUV Max numbers in PET scan

I’m currently in triple therapy with metastatic PC after RP 6 months ago. Gleason 10. At time of RP all 12 lymph nodes and bladder neck biopsied tested...

I’m currently in triple therapy with metastatic PC after RP 6 months ago. Gleas...

Bret5

•10 months ago

13 Replies

high dose melatonin

anyone trialled very high doses of melatonin? Apparently research from Dr. Russel Reiter sorry don’t have the link. if you look him up suggests it halts...

anyone trialled very high doses of melatonin? Apparently research from Dr. Russe...

Poppi07

•10 months ago

14 Replies

Infections during Chemo

After my LRP (2010) I had UTI's continually for ~2 years. I have no idea what finally shook them off -- a change from a tropical to a temperate climate, maybe?...

After my LRP (2010) I had UTI's continually for ~2 years. I have no idea what fi...

BrentW

•10 months ago

7 Replies

sarms

I have been thinking about trying sarms for my p/c and severe osteoporosis but after reading around what side effects from people who have been on them not...

I have been thinking about trying sarms for my p/c and severe osteoporosis but a...

Radars

•10 months ago

31 Replies

risk of Sbrt Mridian with inguinal hernia?

Kaiser misdiagnosed an inguinal hernia with possible bowel loop as ab strain. They changed their opinion after I insisted (for a month) they do a 5 minute...

Kaiser misdiagnosed an inguinal hernia with possible bowel loop as ab strain. Th...

BL2023

•10 months ago

13 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for July 2023

Another 3 month Signatera ctDNA result of "not detected" 💙

Provenge and Side Effects

Update after consultation w/Royal Marsden

Swollen Legs after Chemo

Seeking options/opinions

live with prostate cancer

second opinion doc recommendations- outside of India

Future after Erleada/Lupron

Cabazitaxel, can you return for a second round.

Fentanyl and cannabis

Blood work before radiation and elevated liver enzymes

Can Radium 223 kill PCa in the prostate and can Docetaxel kill bone Mets?

False Hope?

Genetic Testing at City of Hope

I have been diagosed . On biopsy my gleason score is 4+4=8 with a group grade of 4. I have many autoimmune diseases PBC Sjogrens Scleroderma

Doing ok, o ignorance is bliss

Lu177 and SIR-Spheres

Hungry!!

Prayers still needed for our HU Brother Kevin🙏

Question for PCa patients using Estradiol transdermal patch for bone protection and SEs

Weaning off of Zytiga and prednisone

ITS BEEN A WHILE

Short of breath

Docetaxel and Excessive Tearing

QOL …update on hemp derived delta-8 and thc-p gummies. ( all hemp derived products are federally legal nation wide ).

SUV Max numbers in PET scan

high dose melatonin

Infections during Chemo

sarms

risk of Sbrt Mridian with inguinal hernia?

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