Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

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All posts for September 2021

What is normal testosterone level one month after Eligard injection?

On August 9, I received my first Eligard injection. So far I have not noticed any side effects other than some minor edema. Yesterday, September 13, I had...

On August 9, I received my first Eligard injection. So far I have not noticed an...

Musturd

•3 years ago

1 Reply

And the number is...

Since my PSA went from undetectable after four years to 0.6 within the past eight months, my MO has ordered a F18 Piflufolastat PET/CT scan Sept. 27. He set...

Since my PSA went from undetectable after four years to 0.6 within the past eigh...

Jvaughan0

•3 years ago

20 Replies

Some questions answered, some answers questioned, and Chemotherapy scheduled.

I exchanged emails with the MO over the weekend regarding the combination trials of Docetaxel and Radium 223. Below is a portion of the exchange. Part 1...

I exchanged emails with the MO over the weekend regarding the combination trial...

Philly13

•3 years ago

5 Replies

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Recommendation please for Prostate Cancer Specialist

My husband is in late stage castrate resistant Prostate Cancer. We live in NC. Can anyone recommend an oncologist who specializes in Prostate Cancer. He has a...

My husband is in late stage castrate resistant Prostate Cancer. We live in NC. C...

poppymom0211

•3 years ago

9 Replies

PSMA PET CT versus PSMA PET MRI

Hi, when checking for the source of BCR and low-level PSA after surgery and radiation would it be best to go with the PSMA PET CT or the PSMA PET MRI? Seems...

Hi, when checking for the source of BCR and low-level PSA after surgery and radi...

PGDuan

•3 years ago

20 Replies

Has Anyone taken Xtandi as a last resort treatment for MCRPC and what were results?

My husband has run the gamut on Prostate Cancer Treatments- Surgery, Radiation, Lupron, Clinical Trial (Panther), Provenge, chemo, and Lutetium 177 treatment...

My husband has run the gamut on Prostate Cancer Treatments- Surgery, Radiation, ...

poppymom0211

•3 years ago

7 Replies

seek opinion about vacation from ADT

Diagnosed May 2019, stage T3BN0M1 had Two tiny spots on pelvis on Choline scan...oligo metastasis Did RT for prostate 20 boost and extra for pelvis in nov...

Diagnosed May 2019, stage T3BN0M1 had Two tiny spots on pelvis on Choline scan....

Karmaji

•3 years ago

58 Replies

AMG 509 clinical trial

Does anyone here have any info about or perhaps have participated in the Phase I clinical trial of AMG 509? Thank you.

Does anyone here have any info about or perhaps have participated in the Phase I...

Coop68

•3 years ago

20 Replies

Questions on three separate issues

My hubby’s oncologist wants to start him on Zometa next month. Any one on this site taking this and can provide feedback. My hubby has been having leg spasms...

My hubby’s oncologist wants to start him on Zometa next month. Any one on this s...

Madbeach

•3 years ago

42 Replies

Reaction to estrogen

Has anyone had a reaction to oral estrogen? My father has been taking HONVAN for past two weeks and he developed painful gynecomastia and skin rashes for past...

Has anyone had a reaction to oral estrogen? My father has been taking HONVAN for...

Vsahay

•3 years ago

4 Replies

Side Effects of Xtandi???

My husband has been in Xtandi for 3 weeks now. He has MCRPC which has spread to his bones. He has felt terrible since starting Xtandi/ nausea, no appetite,...

My husband has been in Xtandi for 3 weeks now. He has MCRPC which has spread to ...

poppymom0211

•3 years ago

38 Replies

Thursday 9/9/2021 was D for Decision Day--Locked and Loaded for Chemotherapy

I met with the oncologist and ran through my agenda efficiently. He was patient and spent a reasonable amount of time answering questions. As time went on, he...

I met with the oncologist and ran through my agenda efficiently. He was patient ...

Philly13

•3 years ago

11 Replies

Any advice on Erleada?

Hello again - I recently wrote about my experiences with Zytiga combined with prednisolone. Last week I returned to the Mayo and saw Dr. Kwon. He has proposed...

Hello again - I recently wrote about my experiences with Zytiga combined with pr...

Arcticfox44

•3 years ago

14 Replies

Sleep problems-What is helpful for difficulty going and staying asleep while on ADT?

Sleep Problems

PRO-DR-2021

•3 years ago

47 Replies

Decision: Lupron/Xtandi vs Natural

I'm a 73 male divorced/no kids just diagnosed w/stage 4 PC. Has spread to Lymph Nodes in Groin, but not to bones per scan. PSA 349, Gleason 3+3. Onc...

I'm a 73 male divorced/no kids just diagnosed w/stage 4 PC. Has spread to Lymp...

JThos

•3 years ago

85 Replies

PSA rise during/after consolidation radiation

Hi all, My husband finished up 4 weeks of consolidation radiation therapy on August 3. He was diagnosed end of May 2020, PSA 209, extensive, distant bone mets,...

Hi all, My husband finished up 4 weeks of consolidation radiation therapy on Aug...

marchinda

•3 years ago

5 Replies

My trial has begun - initial update

Day 1 Aug 12 - At Weill Cornell had infusion of Ac225-J591 + Keytruda + started daily 160mg of Xtandi. Day 8 - had 1st weekly meeting with trial's Principal...

Day 1 Aug 12 - At Weill Cornell had infusion of Ac225-J591 + Keytruda + started ...

HopingForTheBest1

•3 years ago

34 Replies

Help with side effects

Hi everyone , I hope you are all well . Can anyone help ? John has been on apulutimide the last month and zoladex for the past 3 months an injection per month...

Hi everyone , I hope you are all well . Can anyone help ? John has been on apul...

palser1

•3 years ago

12 Replies

Pain in the hip and knee, Low PSA

Been on ADT (Abiraterone + Orgovyx) therapy since April 2021 and my PSA has been in a range ~ .3- .6 since then. Never had prostate removed as it had already...

Been on ADT (Abiraterone + Orgovyx) therapy since April 2021 and my PSA has been...

Back2future

•3 years ago

21 Replies

Having pain even psa is low

Hello! I'm here for my dad, its almost his 1 year since he diagnosed with stage 4 prostate cancer mets to bones( several spots). Start zytiga abiraterone in...

Hello! I'm here for my dad, its almost his 1 year since he diagnosed with stage...

worrywaffle

•3 years ago

10 Replies

Well...on the Day After my first Chemo with Cabazitaxel...1/2 dosage every 3 weeks. I felt GREAT yesterday after it...

and today I had to go back for a platelet transfusion...as they had dropped to 18. My Neulasta Onpro went off at 6 pm tonight...and even then...(I'm taking...

and today I had to go back for a platelet transfusion...as they had dropped to 1...

greatjohn

•3 years ago

68 Replies

Scans, scans, scans

Hi fellow survivors. I've recently had both bone scans and a choline scan. The choline scan picked up some significant bone activity that will be radiated....

Hi fellow survivors. I've recently had both bone scans and a choline scan. The...

jersy

•3 years ago

8 Replies

Discharged!!! 🎉🥳 🏥🚑🏡

Jeff has 34 staples and is already a bit apprehensive about when (how) they take them out. The tumor was a little bit stuck to his brain, however the...

Jeff has 34 staples and is already a bit apprehensive about when (how) they take...

Pancake_Lefse

•3 years ago

36 Replies

jevtana added to lupron and xtandi, too much?

My MO wants me to add jevtana to the meds I already take --- seems to be to much for my body to handle. Any thoughts on this? Thanks...

My MO wants me to add jevtana to the meds I already take --- seems to be to much...

ken12491

•3 years ago

10 Replies

It’s back… recurrent PSA after primary and adjuvant treatment

Hi all - So it’s been a month since my last post-therapy PSA test went off with a 0.15 where it had been undetectable at < 0.05 for the last year....

Hi all - So it’s been a month since my last post-therapy PSA test went off with...

PGDuan

•3 years ago

36 Replies

2 years of ADT counting from end of IMRT versus first injection 6 months before?

To be clearer than my title of this question, my Urologist told me that he counts the 2 years of Eligard to start after my IMRT finished( August 2020) instead...

To be clearer than my title of this question, my Urologist told me that he count...

B8ssist

•3 years ago

24 Replies

Subchondral cyst

Has anyone ever had a subchondral cyst turn out to be a tumor on the spine? Last Nuclear scan shows one and as I understand they can be hard to determine by...

Has anyone ever had a subchondral cyst turn out to be a tumor on the spine? Last...

redbank

•3 years ago

3 Replies

Brain surgery superstar

Yesterday was a very long day. We reported to the hospital at 10:00 a.m. Jeff’s actual surgery was approximately 3 hours long, but it was nearly 8:00 p.m....

Yesterday was a very long day. We reported to the hospital at 10:00 a.m. Jeff’s...

Pancake_Lefse

•3 years ago

27 Replies

Followup on Lack of CT Correlate: Is this a Liver Met?

About 3 weeks ago I posted this, basically about PSMA uptake (DCFPyL scan) in a small area of liver without a CT correlate:...

About 3 weeks ago I posted this, basically about PSMA uptake (DCFPyL scan) in a ...

lokibear0803

•3 years ago

6 Replies

ADT Vacation - first month being off Firmagon. PSA was .014 & Testos. 3 - After a month vacation - PSA .08 & T159 - any thoughts?

I was a gleason 9 with lymph node involvement. No distant mets. Did HDBrachy with 25 sessions of IMRT. I was DX 2 1/2 years ago. This is my first vacation ....

I was a gleason 9 with lymph node involvement. No distant mets. Did HDBrachy wi...

Longterm101

•3 years ago

12 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for September 2021

What is normal testosterone level one month after Eligard injection?

And the number is...

Some questions answered, some answers questioned, and Chemotherapy scheduled.

Recommendation please for Prostate Cancer Specialist

PSMA PET CT versus PSMA PET MRI

Has Anyone taken Xtandi as a last resort treatment for MCRPC and what were results?

seek opinion about vacation from ADT

AMG 509 clinical trial

Questions on three separate issues

Reaction to estrogen

Side Effects of Xtandi???

Thursday 9/9/2021 was D for Decision Day--Locked and Loaded for Chemotherapy

Any advice on Erleada?

Sleep problems-What is helpful for difficulty going and staying asleep while on ADT?

Decision: Lupron/Xtandi vs Natural

PSA rise during/after consolidation radiation

My trial has begun - initial update

Help with side effects

Pain in the hip and knee, Low PSA

Having pain even psa is low

Well...on the Day After my first Chemo with Cabazitaxel...1/2 dosage every 3 weeks. I felt GREAT yesterday after it...

Scans, scans, scans

Discharged!!! 🎉🥳 🏥🚑🏡

jevtana added to lupron and xtandi, too much?

It’s back… recurrent PSA after primary and adjuvant treatment

2 years of ADT counting from end of IMRT versus first injection 6 months before?

Subchondral cyst

Brain surgery superstar

Followup on Lack of CT Correlate: Is this a Liver Met?

ADT Vacation - first month being off Firmagon. PSA was .014 & Testos. 3 - After a month vacation - PSA .08 & T159 - any thoughts?

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