Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

21,425 members • 26,831 posts

All posts for December 2020

SBRT time frame

Hi All, Finally decided on SBRT at UCLA. Gleason 3+4, Psa 7, but with Perineural Invasion. Been on Active surveillance for 4 years. Question: How many days...

Hi All, Finally decided on SBRT at UCLA. Gleason 3+4, Psa 7, but with Perineural...

goldenfoot

•4 years ago

29 Replies

Firmagon and Fever

Anyone else getting Firmagon injections having to deal with a fever during the 24 hours after the injection? Tylenol seems to take care of it. Just curious...

Anyone else getting Firmagon injections having to deal with a fever during the 2...

OldChappy

•4 years ago

10 Replies

FDA OKs First Oral ADT for Prostate Cancer

This has probably been posted here already, but just in case, there is now an alternative to Lupton shots, in the form of pills:...

This has probably been posted here already, but just in case, there is now an al...

curious-mind1

•4 years ago

1 Reply

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PSMA Actinium-225?

Has anyone received PSMA Actinium-225 for prostate cancer?

Zolababs

•4 years ago

2 Replies

Bone pain after lu-177 treatment

Has anyone had bone pain after lu-177 treatment? I actually just returned from Germany last Friday from treatment. What a mess going through Homeland...

Has anyone had bone pain after lu-177 treatment? I actually just returned from ...

1965l79Corvette

•4 years ago

6 Replies

Lupron versus Eligard

Been on Lupron and Prolia for 6 years with amazing results. Undetectable PSA the whole time after a post op PSA doubling time of 3 weeks. Went for shots today...

Been on Lupron and Prolia for 6 years with amazing results. Undetectable PSA the...

Dont358

•4 years ago

10 Replies

More on Vitamin D, COVID-19

From an open letter, signed by many docs/profs that include leading Vitamin D researchers (like Bruce Hollis): "Recommend to adults vitamin D intake of 4000 IU...

From an open letter, signed by many docs/profs that include leading Vitamin D re...

noahware

•4 years ago

32 Replies

MO Recommendations within Driving Range of Ohio

I live in SW Ohio and am seeking recommendations for a Medical Oncologist within driving distance. I received salvage radiation this summer along with a 6 mth...

I live in SW Ohio and am seeking recommendations for a Medical Oncologist within...

DJBUNK

•4 years ago

7 Replies

Valaciclovir

I saw this on another site: There is an interesting article showing that when men who have prostate cancer develop shingles and are given valaciclovir, there...

I saw this on another site: There is an interesting article showing that when me...

Hidden

•4 years ago

3 Replies

Quest for Lu 177 therapy continues 2.0

On Dec 17 I was supposed to have a 68-Ga PSMA PET CT at UCSF but never happened. I was notified that Blue Cross Blue Shield was refusing to pay for it which...

On Dec 17 I was supposed to have a 68-Ga PSMA PET CT at UCSF but never happened....

Cleodman

•4 years ago

9 Replies

Virtual Reality for pain management and anxiety control.

Some of you may already know and use this but I thought it was worth mentioning. In recent times researchers have found that immersive VR is a potent pain...

Some of you may already know and use this but I thought it was worth mentioning...

Kaliber

•4 years ago

55 Replies

US Medicare Part B users, do you have concerns regarding an upcoming change to Medicare called "Most Favored Nation?"

My oncologist sent out an email to patients recommending that we contact our US Senators and Representatives to OPPOSE this change. Are you hearing the same...

My oncologist sent out an email to patients recommending that we contact our US ...

onajourney

•4 years ago

26 Replies

Prolia and Celebrex

Tall Allen has occasionally noted, for example, that “A bone preserving agent (Zometa or Xgeva) coupled with Celebrex is probably a good idea too.” I believe...

Tall Allen has occasionally noted, for example, that “A bone preserving agent (Z...

cigafred

•4 years ago

10 Replies

Whole pelvic salvage radiation may be better than precisely targeted lymph node salvage radiation

Last week, there was an open question about the precisely targeted treatment of recurrent pelvic lymph nodes at the Mayo Clinic. This European study suggests...

Last week, there was an open question about the precisely targeted treatment of ...

Tall_Allen

•4 years ago

31 Replies

Comedy Central Founder talks about Prostate Cancer

Please join me and Art Bell, the founder of Comedy Central, for a relaxed chat about how he founded CC and his take on prostate cancer and comedy. This is the...

Please join me and Art Bell, the founder of Comedy Central, for a relaxed chat a...

Darryl

Partner•4 years ago

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No emails!

For some reason I have stopped getting any emails. I have tried unsubscribing and then starting emails again nothing works. I checked for blocked emails all...

For some reason I have stopped getting any emails. I have tried unsubscribing a...

noirhole

•4 years ago

5 Replies

3 months after chemotherapy

Hello everyone, 3 months after finishing chemotherapy, my father had his follow-up appointment. As you know, due to the pandemic situation, patients do not...

Hello everyone, 3 months after finishing chemotherapy, my father had his follow-...

JNunes

•4 years ago

12 Replies

Sugar, insulin, cancer

See population study below. Population and Prevention Science Circulating Insulin-like Growth Factor-I Concentrations and Risk of 30 Cancers: Prospective...

See population study below. Population and Prevention Science Circulating Insul...

Graham49

•4 years ago

7 Replies

Can high ALP indicate therapy before bone mets are confirmed?

Diagnosed two months ago with GS9, low PSA 1.7 intraductal cancer, I have already got invaluable advice from this forum. I have suspected mets in my bones, to...

Diagnosed two months ago with GS9, low PSA 1.7 intraductal cancer, I have alread...

Purple-Bike

•4 years ago

5 Replies

PT-112 study

Ok, after many standard of care options (Lupron, docetaxel, Xtanti, Xofigo) and 2 clinical trials, this one looks like a good next step. My PSA has ballooned...

Ok, after many standard of care options (Lupron, docetaxel, Xtanti, Xofigo) and ...

tomtom9148

•4 years ago

11 Replies

ARV or AR-V7 testing ? What company?

I am trying to get as much info on AR events so that I might find out if I have AR-V7 variations and such. Why? I am trying to figure out if the local...

I am trying to get as much info on AR events so that I might find out if I hav...

baltha

•4 years ago

10 Replies

Cancer drugs: dosing debates, cost conflicts

I thought this article was an interesting read, as discussions of "value" seem few and far between when it comes to healthcare. It never really occurred to me...

I thought this article was an interesting read, as discussions of "value" seem f...

noahware

•4 years ago

27 Replies

Covid positive

Hello everyone. Here I am among those who picked up Covid 19. After 5 days it gets better, but it's really bad. Headache, fatigue, muscle pain and temperature...

Hello everyone. Here I am among those who picked up Covid 19. After 5 days it ge...

Brano975

•4 years ago

16 Replies

PSA Impact of: Inflammation & Infection around Prostate Gland Lower Abdomen, Colon, Rectal area due to Acute Diverticulitis

Dx'd Adv PCa 08/01/2019 S4 metastatic 1.12/4 Dx’d with acute Diverticulitis LLQ via CT scan. 2. Results were: Colon: Scattered extensive diverticular...

Dx'd Adv PCa 08/01/2019 S4 metastatic 1.12/4 Dx’d with acute Diverticuliti...

depotdoug

•4 years ago

6 Replies

How many of you are Veterans who were diagnosed?

I’m a retired Army guy spent 22 years deployed to Iraq twice (Baghdad and Mosul). Quick trip to Afghanistan and visited K2. No family history on my fathers...

I’m a retired Army guy spent 22 years deployed to Iraq twice (Baghdad and Mosul)...

BigTex3

•4 years ago

23 Replies

Heart health and prostate cancer

Watch this https://youtu.be/BnTqHEFmEw4

Darryl

Partner•4 years ago

8 Replies

Wishing everyone a better 2021

Hi everyone, I wish everyone a wonderful 2021 and hope all our PSA's reduce or at least go down next year. For me, the COVID-19 2020 has been a good...

Hi everyone, I wish everyone a wonderful 2021 and hope all our PSA's reduce or ...

Doseydoe

•4 years ago

12 Replies

Prostate Cancer Diet Update . . . . 12/2020

Last six PSA's are 0.415, 0.363, 0.312, 0.305, 0.243, and 0.187 on December 16. Results come from a diet that minimizes insulin response and contains...

Last six PSA's are 0.415, 0.363, 0.312, 0.305, 0.243, and 0.187 on Decemb...

cashlessclay

•4 years ago

10 Replies

Dexamethasone Shortage!

My regular pharmacy could not supply my dex refill. They said there was a manufacturers shortage. I finally found a CVS store that had stock to fill a 30 day...

My regular pharmacy could not supply my dex refill. They said there was a manuf...

6357axbz

•4 years ago

31 Replies

Stopped Receiving Posts!

FYI, in case this happened to you, I stopped receiving Advanced Prostate Cancer Posts. Darryl suggested I write an email to support@healthunlocked.com which I...

FYI, in case this happened to you, I stopped receiving Advanced Prostate Cancer ...

6357axbz

•4 years ago

8 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for December 2020

SBRT time frame

Firmagon and Fever

FDA OKs First Oral ADT for Prostate Cancer

PSMA Actinium-225?

Bone pain after lu-177 treatment

Lupron versus Eligard

More on Vitamin D, COVID-19

MO Recommendations within Driving Range of Ohio

Valaciclovir

Quest for Lu 177 therapy continues 2.0

Virtual Reality for pain management and anxiety control.

US Medicare Part B users, do you have concerns regarding an upcoming change to Medicare called "Most Favored Nation?"

Prolia and Celebrex

Whole pelvic salvage radiation may be better than precisely targeted lymph node salvage radiation

Comedy Central Founder talks about Prostate Cancer

No emails!

3 months after chemotherapy

Sugar, insulin, cancer

Can high ALP indicate therapy before bone mets are confirmed?

PT-112 study

ARV or AR-V7 testing ? What company?

Cancer drugs: dosing debates, cost conflicts

Covid positive

PSA Impact of: Inflammation & Infection around Prostate Gland Lower Abdomen, Colon, Rectal area due to Acute Diverticulitis

How many of you are Veterans who were diagnosed?

Heart health and prostate cancer

Wishing everyone a better 2021

Prostate Cancer Diet Update . . . . 12/2020

Dexamethasone Shortage!

Stopped Receiving Posts!

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