SBRT time frame: Hi All, Finally... - Advanced Prostate...

Advanced Prostate Cancer

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SBRT time frame

goldenfoot profile image
29 Replies

Hi All,

Finally decided on SBRT at UCLA. Gleason 3+4, Psa 7, but with Perineural Invasion. Been on Active surveillance for 4 years.

Question: How many days does the 5 treatments take? There seems to be little info. from the docs. Is it every day or every other?

Thanks

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goldenfoot
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29 Replies
GP24 profile image
GP24

Usually every day but some doctors skip a day after two sessions.

goldenfoot profile image
goldenfoot in reply to GP24

Thanks, that gives me at least some idea for lodging stay.

Tall_Allen profile image
Tall_Allen

I did it every other day, but in my case, there were two weekends: Fri-Mon-Wed-Fri-Mon. I would describe my acute side effects as mild (Grade 1). I know in Canada, they were doing it once a week for 5 weeks.

prostatecancer.news/2016/08...

But toxicity is multi-factorial. I think the treatment margin, particularly on the rectal side, has more to do with it than the recovery time between treatments. I also think that heavy exercise and daily Cialis help.

goldenfoot profile image
goldenfoot in reply to Tall_Allen

Thanks TA. I am hoping for every day in order to limit my stay. Suprising that they don't even tell someone from out of state what the deal is.

Tall_Allen profile image
Tall_Allen in reply to goldenfoot

I know some guys who did every day. Some even do a shortened 4 day schedule. Side effects were higher, but not horrendous. It's your choice.

goldenfoot profile image
goldenfoot in reply to Tall_Allen

Thanks for that.

marmigs profile image
marmigs in reply to goldenfoot

I had GS 8, 5/3 w PNI, PSA 10.4. I was scheduled for 3 days, 2 day break the 2 days. I had the Spacor chemical separator injected between the prostate and lower intestine. Prescribed 6 mos Biclaludimide 2 mos prior / 4 mod after.

I had severe bowel irritation which was extremely painful and slowly improved over two months. Also experienced painful urination which slowly improved over two months.

Had PSA bounce almost one year from treatment. PSA now holding steady over last year (now 2 years after treatment) at 1.3 average

leach234 profile image
leach234

Big mistake! Reiter is a great surgeon with tons of robotic experience at UCLA.

maley2711 profile image
maley2711 in reply to leach234

As someone who will likely face that decision soon, why SBRT a big mistake??? See Dr. Mark Scholz presentation/vdieo for different treatments for different risk profiles?

leach234 profile image
leach234 in reply to maley2711

If someone isn’t metastatic I can’t imagine why you wouldn’t have surgery. I see way too many men on these sites where the cancer comes back and their options are limited!

maley2711 profile image
maley2711 in reply to leach234

Perhaps you could review tall_allen comments on this subject, and you might get further insight from viewing this presentation by Dr. Mark Scholz.....

youtube.com/watch?v=Tf_MU5Y...

Steve was somewhat blunt in his comment, but I agree with his overall perspective.

For certain men, the question is more " can't imagine why he wouldn't choose radiation" !! Meanwhile, some of us are looking forward to longer term study results using TULSA PRO ultrasound whole gland treatment, with less worrisome side effects.

Perhaps you should consider contributing a post "why radiation is a mistake for men with prostate cancer" .........

leach234 profile image
leach234 in reply to maley2711

Marc Scholzs is an oncologist and deals with men with metastatic cancer. For someone who’s cancer isn’t metastatic surgery is the best option. Radiation can follow if needed.

maley2711 profile image
maley2711 in reply to leach234

Yes Dr. ??

Stevecavill profile image
Stevecavill in reply to leach234

That’s quite a stupid and insensitive thing to say. Decision making is quite hard and telling someone their decision is a “big mistake” Is completely unhelpful. You have no idea of the posters situation, you cannot possibly judge the best course of action on close to zero information. Lots of people choose radiation for very good reasons, the fact that you didn’t doesn’t make it a “big mistake”.

leach234 profile image
leach234 in reply to Stevecavill

Calling someone stupid should get you banned from this site! That’s my opinion whether you agree with it or not!

samahieb profile image
samahieb

I personally had great success with SBRT....it was either every day or every other day.... minimal side effects ... PSA low as it’s ever been

goldenfoot profile image
goldenfoot in reply to samahieb

good to know, very encouraging. Thanks.

NRH_Beach profile image
NRH_Beach

I was initially diagnosed with APC with mets on (3) areas of my spine. These were addressed with 13 SBRT sessions. (July, 2019). This was within the METACURE trial.

For me the SBRT was a real miracle- neutralizing these tumors into inactive lesions.

As I understand it, the SBRT and ~ 18 months of ADT therapies have brought some osteoporosis.

18 months later, I am dealing with weak/collapsing vertebrae. I have had (2) vertebrae stabilized with day surgery procedures (Kyphoplasty/ Vertiplasty).

No one would welcome these interventions, but I quickly embraced the idea of a well-tested procedure to reinforce these vertebrae with a permanent cement fix. Both the compression fracture (L3) and shoring up the beginning of a vertebrae collapse (T10) came with acute pain.

My point is it’s been a rocky road but I wouldn’t trade away that SBRT therapy.

goldenfoot profile image
goldenfoot in reply to NRH_Beach

Wishing you the best. I am very sympathetic to your situation as I already have Osteoporosis even without doing ADT and have had 2 spinal fractures in the last year. My T is naturally very low, so I intend to reject hormone therapy and just use SBRT and monitor Psa afterwards. Don't want to make quality of life even less with ADT at age 73. Good luck with your spine, there is nothing worse IMO.

konichiwa12 profile image
konichiwa12

I had SABR treatments Mon, Wed, Fri, Mon & Wednesday in October this year 50 Gy total to RH Iliac.. I had issues with bowels again but still went to work in between.

Go UCLA .. ! Whatever the schedule . May it save you and push the pc away for many years . You’ve got this! Stay golden!

SPEEDYX profile image
SPEEDYX in reply to

Cant see LA too much air pollution!!!

in reply to SPEEDYX

Back when everything was cut off( factories & Cars shut down) the worlds air immediately cleaned up . That’s over , full steam ahead now! I thought that the world could afford to shut down everything that pollutes for a month each year ? But trying to gain consensus will never happen on earth . Merry Christmas ! 🎄😷🎄

SPEEDYX profile image
SPEEDYX in reply to

Our Glory will be heaven brother....no cars we will be flying around on our own👼...Merry Christmas!!!!

in reply to SPEEDYX

Amen! Merry Christmas

j-o-h-n profile image
j-o-h-n in reply to

back to horse and buggies and horseshit up to our knees.....

Good Luck, Good Health and Good Humor.

j-o-h-n Thursday 12/24/2020 10:50 PM EST

in reply to j-o-h-n

Merry Christmas j-o-h-n , the apostle of humor..... May God bless you ,your wife and son .. 💒

j-o-h-n profile image
j-o-h-n in reply to

And may you and your lovely wife and little lulu have a Healthy and Prosperous New Year...Keep posting, people here need you........(p.s. I don't 👺)

Good Luck, Good Health and Good Humor.

j-o-h-n Friday12/25/2020 6:55 PM EST

in reply to j-o-h-n

Love you man! 🎄❤️

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