It's been a very disappointing & stressful day. I saw an NHS Endo in July this year, he was nice enough but I didn't get the vibe that he was going to be a lot of help from the beginning. But I managed to get some more blood tests ordered from him with a follow up appointment scheduled for today.
Well I got the first bloods done early August & the results came in & somehow despite him requesting the full thyroid panel on the blood test form plus ferritin, they didn't do those tests!
So I rang my surgery & the hospital & he sent another docket & I had my bloods done again a week ago with the assurance that they would be ready for today. They weren't - he actually had to ring up the lab to get the test results while I was in the appointment & yes he did apologise for that.
My blood pressure had literally rocketed to 174/90 odd with all the stress of chasing the surgery and the hospital for the results - I like to have my results beforehand so that I can discuss them with the Endo so here we go: I don't have the ranges for these ones as they were the ones given to him on the phone.
TSH: 3.2 no real change there.
T4: 16 an increase of a point as it was 15 beforehand.
T3: surprise, surprise the lab did not do the T3 test!
Ferritin: 53 - up from 26 - he said that was still on the low side however it was a good decision of mine to change what I was taking before which was Liquid Feroglobin - I didn't think it was helping me much. I've been taking Floridix Liquid Iron for the last few weeks & yes I have noticed a difference in my energy levels. I laid off taking the supplement for 48 hrs before the test so I am happy with the increase & will continue taking it.
My sex hormones were also measured as I am having very irregular cycles which started last year.
No ranges to these results.
LH: 28 iu/L
FSH: 51 iu/l
I accept that some of my hypo symptoms may very well be down to being peri menopausal/menopausal but he still couldn't really tell me where I was with this!
Hb A1c level 5.3% (4.0 - 6.1) as I deduced & the Endo agreed, I'm not diabetic. Didn't think I was (I have put on a horrible amount of weight since last year 2.5 stone now)
I did the dexamethasone cortisol test as the Endo wanted to test for Cushings.
My result was <25 nmol (Range is 138-620) obviously I don't have Cushings but having very low cortisol in the morning makes sense to me as I cannot get going till late morning. I still have the saliva cortisol test to do.
Then the Endo tested me for coeliac disease. I eat a mainly gluten free diet anyway (with the odd slip at times)
my result was 1U/ml - the range is <4
So I take it that I am not coeliac.
And that was that - without the missing T3 blood test in the jigsaw puzzle, he couldn't think of anymore endocrine tests to test me for - for my vast amount of hypo symptoms so I am hereby dismissed!
There wasn't any more point for me to stay & argue my symptoms because I was hitting the brick wall!
I have no choice now but to get all my thyroid panel tested privately because at least I will know what the heck is going on with my T3!
I am taking separate supplements for Vit B12, Vitamin D3, Vitamin K2, Vitamin A, Vitamin C, the other B's, Liquid Iron, magnesium & calcium.
If anyone has any other suggestions about my results or if I need anything else testing, I'd be happy to hear them out.