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Hi, my dad was diagnosed with CBD in October 2018 but has had no follow up since the diagnosis. As dad is now bed bound and can do nothing for himself we have Carers coming in 4 times a day to help with daily living, district nurses now attend twice a week due to pressure sores and his GP did a referral
Hi, my dad was diagnosed with CBD in October 2018 but has had no follow up since the diagnosis. As dad is now bed bound and can do nothing for himself we have Carers coming in 4 times a day to help with daily living, district nurses now attend twice a week due to pressure sores and his GP did a referral
Scoobydoo70
in
PSP Association
4 years ago
Please make it stop
I am new to this level of anxiety. It has completely debilitated me. I need help but can't afford anything, even with insurance. On the surface, it looks irrational but I can't control it no matter what I do. I meditate, breath, exercise and try to take care of myself. I have new medications that
I am new to this level of anxiety. It has completely debilitated me. I need help but can't afford anything, even with insurance. On the surface, it looks irrational but I can't control it no matter what I do. I meditate, breath, exercise and try to take care of myself. I have new medications that
needhelp2z
in
Anxiety Support
4 years ago
Taking other medication
Is it ok to take other medication? I have been given medication for chronic constipation as my haemorrhoids have REALLY flared up. Have suppositories ointment and drinks to take. Told to take each in the morning and night and after bowel movement. This doesn’t affect levo meds then? (Isn’t it great to
Is it ok to take other medication? I have been given medication for chronic constipation as my haemorrhoids have REALLY flared up. Have suppositories ointment and drinks to take. Told to take each in the morning and night and after bowel movement. This doesn’t affect levo meds then? (Isn’t it great to
Grohlgirlgg
in
Thyroid UK
4 years ago
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Shielding and covid-19
Are people with anoxic brain damage classed as vulnerable during this covid-19 epidemic? I was in a coma in intensive care for weeks and my body/system as never been the same since and I know my body won't survive another trauma.
Are people with anoxic brain damage classed as vulnerable during this covid-19 epidemic? I was in a coma in intensive care for weeks and my body/system as never been the same since and I know my body won't survive another trauma.
Lollipopslife
in
Headway
4 years ago
Gynae appt
Hi everyone, I have a gynaecology appointment on Thursday to discuss the possibility of endometriosis, I’ve never really seen a gynaecologist before and I was just wondering if anyone could tell me what to expect? I assume I will have a physical exam but will the doctor want to do an internal exam? I
Hi everyone, I have a gynaecology appointment on Thursday to discuss the possibility of endometriosis, I’ve never really seen a gynaecologist before and I was just wondering if anyone could tell me what to expect? I assume I will have a physical exam but will the doctor want to do an internal exam? I
Amy0302
in
Pain Concern
4 years ago
Varicose veins
So since i was diagnosed with ra in nov 19, ive had swollen legs but my left leg is bigger. I have a ganglion cyst inside the knee and found out in november 2020 that i have varicose veins beside my knee on the inside and at my ankle. Neither are visible. The hospital gave me support stockings but
So since i was diagnosed with ra in nov 19, ive had swollen legs but my left leg is bigger. I have a ganglion cyst inside the knee and found out in november 2020 that i have varicose veins beside my knee on the inside and at my ankle. Neither are visible. The hospital gave me support stockings but
Sammie48
in
NRAS
4 years ago
Swopping to Xarelto from Warfarin
I have just changed from warfarin to Xarelto, at my own request. While in warfarin and bisoprolol for the last 5 or so years, I have felt very stiff, achy, painful muscles and joints, thick headed, and overall struggling day to day, plus extreme fatigue and unable to walk far without exhaustion. I have
I have just changed from warfarin to Xarelto, at my own request. While in warfarin and bisoprolol for the last 5 or so years, I have felt very stiff, achy, painful muscles and joints, thick headed, and overall struggling day to day, plus extreme fatigue and unable to walk far without exhaustion. I have
Tilly1957
in
AF Association
4 years ago
Diagnosed with pelvic floor dysfunction.
Hi all, Just an update. I had a proctogram examination today and it has confirmed pelvic floor dysfunction. I'm a 44 year old man and have been suffering for years with pelvic pain which was made worse after pooping. I'd suffered constipation and developed haemorrhoids from straining to defecate. It
Hi all, Just an update. I had a proctogram examination today and it has confirmed pelvic floor dysfunction. I'm a 44 year old man and have been suffering for years with pelvic pain which was made worse after pooping. I'd suffered constipation and developed haemorrhoids from straining to defecate. It
Lovetocycle76
in
Pelvic Pain Support Network
4 years ago
Infusion.
Hi everyone. I've not been on here for a long time. I'm at my worst ever at the mo and just feel so down and low. The pains are constant, I cant sleep, sleepwalking is back again. I know this whole crappy situation isn't helping anyone right now and we just have to learn to live with it but why should
Hi everyone. I've not been on here for a long time. I'm at my worst ever at the mo and just feel so down and low. The pains are constant, I cant sleep, sleepwalking is back again. I know this whole crappy situation isn't helping anyone right now and we just have to learn to live with it but why should
QUEENIE74
in
Fibromyalgia Action UK
4 years ago
Delayed Post or digital hiccup
I just received an alert on my page about help with boiler costs , warmhome discount and other help which I posted five years ago. The discounts for boilers or free ones via the government has now changed to a system called ECO, via most reputable heating companies. Warm home discount is available still
I just received an alert on my page about help with boiler costs , warmhome discount and other help which I posted five years ago. The discounts for boilers or free ones via the government has now changed to a system called ECO, via most reputable heating companies. Warm home discount is available still
katieoxo60
in
Lung Conditions Community Forum
4 years ago
On the road to recovery
Dr consultation and very nice caring paramedic visit too. The bleeding has finally stopped completely. I am anemic and have hemorrhoids. The Dr has given me cream for relief and high energy drinks. I am drained, completely exhausted but on the mend. Thank you so much to everyone that answered my plea
Dr consultation and very nice caring paramedic visit too. The bleeding has finally stopped completely. I am anemic and have hemorrhoids. The Dr has given me cream for relief and high energy drinks. I am drained, completely exhausted but on the mend. Thank you so much to everyone that answered my plea
Bronn
in
LUPUS UK
4 years ago
MF and platelet transfusions
Hi there, I’ve been reading posts on this forum for a little while but am posting for the first time. My father, who is in his late 70s, was diagnosed with MF a couple years ago (after 15 years or so with PV). He has been on Rux for a couple years and it has had a wonderful effect at suppressing symptoms
Hi there, I’ve been reading posts on this forum for a little while but am posting for the first time. My father, who is in his late 70s, was diagnosed with MF a couple years ago (after 15 years or so with PV). He has been on Rux for a couple years and it has had a wonderful effect at suppressing symptoms
dnsn
in
MPN Voice
4 years ago
ADT and growth of breasts
I was not a victim of breast enlargement during my first injection of Lupron or while on Casodex but I do not know if it is any indication that my breasts won't grow once I start ADT again in a few weeks. Did any of you experience growing breasts while under ADT? If yes, did they go away after treatment
I was not a victim of breast enlargement during my first injection of Lupron or while on Casodex but I do not know if it is any indication that my breasts won't grow once I start ADT again in a few weeks. Did any of you experience growing breasts while under ADT? If yes, did they go away after treatment
Mascouche
in
Advanced Prostate Cancer
4 years ago
Period light but clots
Does anyone else get this? I am on desogestrel, which has made my periods MUCH lighter. However, I still get quite a bit of pain, and the first few days of my period I am passing only clots (not really any "liquid blood"). Do you know why this might be? I have stage 4 endo and adeno, as well as an endometrioma
Does anyone else get this? I am on desogestrel, which has made my periods MUCH lighter. However, I still get quite a bit of pain, and the first few days of my period I am passing only clots (not really any "liquid blood"). Do you know why this might be? I have stage 4 endo and adeno, as well as an endometrioma
astrocat
in
Endometriosis UK
4 years ago
Surgery
Hi guys & dolls Can I just ask if any of you have had surgery whilst on Warfarin. I need to have a breast operation and the surgeon is a bit “twitchy” about doing it ( his exact words) I have said why can’t they just bridge with the injections but I get the feeling he is trying to avoid it all together
Hi guys & dolls Can I just ask if any of you have had surgery whilst on Warfarin. I need to have a breast operation and the surgeon is a bit “twitchy” about doing it ( his exact words) I have said why can’t they just bridge with the injections but I get the feeling he is trying to avoid it all together
amy1808
in
Hughes Syndrome APS Forum
4 years ago
Deep vein thrombosis look-alike?
Hi all, went to emerg on doc’s advice for ankle swelling in left leg and shin and calf pain, discoloration around ankle. Got ultrasound, xrays and bloodwork done, all clear. What cd it be? Doc is going to test for gout but pain isn’t that intense. Any ideas as to what’s up? Baffled.
Hi all, went to emerg on doc’s advice for ankle swelling in left leg and shin and calf pain, discoloration around ankle. Got ultrasound, xrays and bloodwork done, all clear. What cd it be? Doc is going to test for gout but pain isn’t that intense. Any ideas as to what’s up? Baffled.
HockeyNut
in
NRAS
4 years ago
Ulcerative colitis flares
Just asking a question regarding my wife's flare. She's on octasa 6x800mg a day and at the moment also as a enama at night. She's had UC for about 3 years , had the occasional blip but nothing like what she's going through now. The pain, the wind the stomach cramps are leaving her severely distressed
Just asking a question regarding my wife's flare. She's on octasa 6x800mg a day and at the moment also as a enama at night. She's had UC for about 3 years , had the occasional blip but nothing like what she's going through now. The pain, the wind the stomach cramps are leaving her severely distressed
Blueboy1946
in
IBS Network
4 years ago
Stage IV, Taxol, thrombosis and COC protocol
Hi all, just new to this group! My mum is stage IV ovarian cancer, platinum resistant. She has pleural effusion and peritoneal carcinosis. She is now undergoing third line of chemo (Taxol) but things don't look good. Have any of you combined Taxol with the COC protocol (metformin, atorvastatin, mebendazol
Hi all, just new to this group! My mum is stage IV ovarian cancer, platinum resistant. She has pleural effusion and peritoneal carcinosis. She is now undergoing third line of chemo (Taxol) but things don't look good. Have any of you combined Taxol with the COC protocol (metformin, atorvastatin, mebendazol
Fcur26
in
SHARE Ovarian Cancer Support
4 years ago
Several variables and unknowns~
Almost 4 weeks ago, my rheumatologist started me back on Actemra weekly. I felt better without it, but he feels I need it as we will start tapering down from 12mg prednisolone, which I'm sure my body will appreciate (I hope). The same week I started the Actemra, my GP had also had me try just 20 mg
Almost 4 weeks ago, my rheumatologist started me back on Actemra weekly. I felt better without it, but he feels I need it as we will start tapering down from 12mg prednisolone, which I'm sure my body will appreciate (I hope). The same week I started the Actemra, my GP had also had me try just 20 mg
Grammy80
in
PMRGCAuk
4 years ago
Lupron vs Trelstar
Hello all. Been on Lupron for a year. Switched Docs, he switched me to Trelstar. And comments on which is better? Any complications from switching? My PSA has been undetectable for a year.
Hello all. Been on Lupron for a year. Switched Docs, he switched me to Trelstar. And comments on which is better? Any complications from switching? My PSA has been undetectable for a year.
Canton44
in
Advanced Prostate Cancer
4 years ago
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