Ulcerative colitis flares

[Blueboy1946]

Just asking a question regarding my wife's flare.

She's on octasa 6x800mg a day and at the moment also as a enama at night.

She's had UC for about 3 years , had the occasional blip but nothing like what she's going through now.

The pain, the wind the stomach cramps are leaving her severely distressed.

In the past she's taken wind pills which as the active ingredient simetone , they have worked but are not touching it this time.

Her IBD nurse as been informed but ATM waiting a reply.

So in the meantime any suggestions regarding this flare would be welcome.

How long do they last, any suggestions to leviate the pain,

Been constantly on the loo for a couple of days, although the blood seems to have ceased ATM..

She is 72 and struggling..

Thanks..

[Maureen1958]

Hi, I think you might get more help on the Crohn's and Colitis Support site, rather than the IBS Network site. Some people on this site have colitis, I believe, but most just have IBS. I hope you get some help soon!

[Blueboy1946 in reply to Maureen1958]

Ok thanks, I'll try and find it..

[Hidden]

If it’s a bad flare you may need to get this calmed down at hospital. The medication she is talking is t maintain the condition. It can happen if the dose has been altered. It can take a long time with trial and error to get the dose right that suits that person with UC. If she has weight loss, sores in the mouth or blood and mucus in the stool she would need to contact the consultant.

There are other medications such as pensata, all for the same family of pills. Like I say once your on the right dose and tablet that suits flare ups are unlikely to ever happen

[violetmycat]

Hi So sorry to hear about your wife's flare up. I am 77 and recently widowed after 58 happy years of marriage. I do feel for her as I have a 'flare up' at the moment and had it since January 2020 and experiencing symptoms like her eg weight loss, sores in the mouth, blood and mucus in the stool. One of the worse symptoms I found is the fatigue (Just dragging myself around and worried about going out shopping and leaving the loo - making sure the shop has a toilet and I take my 'emergency bag' which consists of things I would need should I be taken 'short'). I have recently changed to Lactose free milk (cream is certainly a no no for me as I found out and also spicy foods). Don't know if she has looked at the FODMAP but this gives suggestions of foods to avoid eg nuts, baked beans, some fruit and veg etc

(healthline.com/nutrition/lo.... My consultant at the hospital is not taking appointments at his clinic at present because of Covid 19. I have a virtual appointment by phone with him this Friday. Hope she soon feels a lot better and remember that there are lots of people out there with this illness who feel exactly the same as her and are thinking of her (though this does't help much)

Best wishes

[Blueboy1946]

Thank you everyone for your kind comments.She's had a better night last night and also as a virtual consultancy next week with her IBD clinic..

Peter..

[Blueboy1946]

Another bad night for my wifeShe has now been prescribed extra medication to go with the octasa.

Budenofalk foam enema 2mg

Prednisolone suppositories 5mg.

As anyone used these , only the foam enema as leaflet stating dentists must be informed why!!( She has a appointment next week for a crown..

Also doctors need to be informed if any injections are due...we both have our covid jab due in 3 weeks., would this be a problem.

So on going to bed at night she takes the enema, the prednisolone and 2400mg octasa.

Any order or just altogether....not sure.

Are now waiting consultant to get back to us,

In the meantime have posted this, for thoughts..

Many thanks Peter...