Infusion.

[QUEENIE74]

Hi everyone. I've not been on here for a long time. I'm at my worst ever at the mo and just feel so down and low. The pains are constant, I cant sleep, sleepwalking is back again. I know this whole crappy situation isn't helping anyone right now and we just have to learn to live with it but why should we, why is nobody looking into how to make us better eh, here's some drugs (that probably won't work) have a good life,,,,,cause that's how I feel. Any other illness is looked after, ie, patients get seen on a regular basis for check ups etc but us with Fibro dont get any of that and it really riles me. Sorry for the rant, just lost myself there. Anyway what I wanted to say........so back in August I had my first Lidocaine and Ketamine infusion. 10 mins after the initial injection I felt like I was floating, i had no pain and i fell asleep,,,,,however an hour into it I woke up crying in agony, my nurse called the consultant who suggested giving me another medication on top and I persisted with the rest of the infusion. After recovery consultant came to see me and he said he never had a patient suffer like that and did I want to try again. I said I would give it another shot just to see what happens. So the next one was in December and this was worse than the first, even more extra drugs, consultant decided to stop infusion halfway through. After recovery he said it was pointless pumping me full of all these drugs if they are not working. He thinks there may be something else wrong and has suggested to my doc that I need to see a Neurologist. I have been trying to get through to my gp but with this pandemic it's just mad busy so I emailed them this morning in the hope that someone sees it and hopefully I won't have to wait too long for an appointment.

I'm sending gentle hugs and love to you all xxx

[Hazel_Angelstar Administrator FMA UK Staff]

Hopefully you will hear back from your GP soon. Unfortunately, as you say referral to neurologist is likely to be delayed due to covid

[Yassytina FMA UK Volunteer]

Morning, sorry to read of your pain and lack of sleep which in it’s self is very wearing, yes the current Covid situation is putting everything backwards with appointments etc , differently if you’ve not heard in a couple of days call back Queenie, they should really offer a call back to a patient at least and follow this through, surgeries are busy at the best of times but they have a duty of care to patients, hope you hear very soon, take care it’s horrid being in pain and your in need of some help xxx

[QUEENIE74 in reply to Yassytina]

So I'm happy to say doc phoned me first thing this morning. She is super great with me. So she is referring me saying its urgent but did warn me that with the current situation it will take some time, which I totally understand. At least now the ball is rolling and fingers crossed not too long a wait. Thanx for your replies peeps. Gentle hugs xxx