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My Story and Info if You Are Considering Home Hemodialysis!
My name is Rachel and at the age of 12, I was diagnosed with an autoimmune disease called nephrotic syndrome. I began dialysis at 19 years old and went through many hardships, including having a major nerve condition called chronic inflammatory demyelinating polyneuropathy (CIDP). I lost my ability to
My name is Rachel and at the age of 12, I was diagnosed with an autoimmune disease called nephrotic syndrome. I began dialysis at 19 years old and went through many hardships, including having a major nerve condition called chronic inflammatory demyelinating polyneuropathy (CIDP). I lost my ability to
Dialysis_Overcomer
in
Kidney Disease
12 days ago
Spontaneous Subdural Hematoma
I am 58 years old. A few months I started to develop headaches and neck pain that gradually increased in severity. I eventually went to the ER and was diagnosed with a minor subdural hematoma (SDH) based upon a CT Scan and was sent home for follow-up with a neurosurgeon. I have had no recent head
I am 58 years old. A few months I started to develop headaches and neck pain that gradually increased in severity. I eventually went to the ER and was diagnosed with a minor subdural hematoma (SDH) based upon a CT Scan and was sent home for follow-up with a neurosurgeon. I have had no recent head
TWF64
in
Headway
8 months ago
Spontaneous Subdural Hematoma
I am 58 years old. A few months I started to develop headaches and neck pain that gradually increased in severity. I eventually went to the ER and was diagnosed with a minor subdural hematoma (SDH) based upon a CT Scan and was sent home for follow-up with a neurosurgeon. I have had no recent head
I am 58 years old. A few months I started to develop headaches and neck pain that gradually increased in severity. I eventually went to the ER and was diagnosed with a minor subdural hematoma (SDH) based upon a CT Scan and was sent home for follow-up with a neurosurgeon. I have had no recent head
TWF64
in
Headway
8 months ago
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Just curious....who else here is on HOME hemodialysis?
I would love to hear about your experience and how it's going.... Do you have a in home care giver or are you solo? How long did it take to get comfortable with the process or do you ever get comfortable with it?
I would love to hear about your experience and how it's going.... Do you have a in home care giver or are you solo? How long did it take to get comfortable with the process or do you ever get comfortable with it?
Bassetmommer
in
Kidney Dialysis
5 months ago
The dialysis journey continues at home
Here is my latest on my journey in home hemodialysis. I started this process on October 16th. And we came home on December 18th. Many people get home faster but I had issues with a couple of weeks of when they infiltrated my fistula (poked through it and I was bleeding internally). The problem was the
Here is my latest on my journey in home hemodialysis. I started this process on October 16th. And we came home on December 18th. Many people get home faster but I had issues with a couple of weeks of when they infiltrated my fistula (poked through it and I was bleeding internally). The problem was the
Bassetmommer
NKF Ambassador
in
Kidney Disease
6 months ago
Bisacodyl
Taken Senna, Fybogel and Laxido and haven’t had any bowel movements. I’ve seen people say to take Bisacodyl as this is quite strong. What are people’s experiences with this? Does it work? When is the best time to take it?
Taken Senna, Fybogel and Laxido and haven’t had any bowel movements. I’ve seen people say to take Bisacodyl as this is quite strong. What are people’s experiences with this? Does it work? When is the best time to take it?
HI1237
in
IBS Network
11 days ago
Cold sweats and nausea
Hello.Is it common to suffer from cold sweats, nausea and really chest pains while suffering with digestive issues? Many Thanks
Hello.Is it common to suffer from cold sweats, nausea and really chest pains while suffering with digestive issues? Many Thanks
Julie182
in
IBS Network
13 days ago
Help with steroid induced hyperglycaemia
My story is in my bio as it’s rather long! Is there anyone out there managing Steroid Induced Hyperglycaemia? As I started on 70mg and had to stay on it for 6 weeks after diagnosis, I quickly developed SIH and have found it a daily battle to control it despite being on a very low Carb diet indeed! Diabetic
My story is in my bio as it’s rather long! Is there anyone out there managing Steroid Induced Hyperglycaemia? As I started on 70mg and had to stay on it for 6 weeks after diagnosis, I quickly developed SIH and have found it a daily battle to control it despite being on a very low Carb diet indeed! Diabetic
AmberGamble
in
PMRGCAuk
22 days ago
advice on bisoporol
Does anyone else get memory problems from bisoporol, I was fine on it but this past 4/5 months I’m having really bad memory problems and bouts of tearfulness and it’s very upsetting. Is there and alternative beta blocker that does not affect memory or would calcium channel blockers be better and what
Does anyone else get memory problems from bisoporol, I was fine on it but this past 4/5 months I’m having really bad memory problems and bouts of tearfulness and it’s very upsetting. Is there and alternative beta blocker that does not affect memory or would calcium channel blockers be better and what
Electricblue1
in
Atrial Fibrillation Support
1 month ago
Another injury, wrist this time
Just the other day, for unknown reason, memory of an old acquaintance popped into my mind, specifically her frequent use of the expression, "What fresh hell is this?" Perhaps I alerted the demon in charge my fate when I wondered if I could find a reason to say it. Yesterday I'd just heard from my son
Just the other day, for unknown reason, memory of an old acquaintance popped into my mind, specifically her frequent use of the expression, "What fresh hell is this?" Perhaps I alerted the demon in charge my fate when I wondered if I could find a reason to say it. Yesterday I'd just heard from my son
HeronNS
in
PMRGCAuk
2 months ago
Mum update (CBD)
Thought I had finally better give you all an update on mum. Mum had a fall back in Feb which resulted in a broken nose and slight skull fracture, still mobile unaided at this point, but with falls risk. Admitted to hospital after 24 hours in A&E, finally getting a bed in a ward. Ward then had changed
Thought I had finally better give you all an update on mum. Mum had a fall back in Feb which resulted in a broken nose and slight skull fracture, still mobile unaided at this point, but with falls risk. Admitted to hospital after 24 hours in A&E, finally getting a bed in a ward. Ward then had changed
Araucana
in
PSP Association
2 months ago
Change in inhalers
I'm currently on sertide and being switched over to symbicort. I'm not sure of the dosage etc as need to discuss further with gp. I'm a little concerned as been on seretide for years. When I get switched it triggers flares and I've already had loads of time of work. I work part time. I also think I'm
I'm currently on sertide and being switched over to symbicort. I'm not sure of the dosage etc as need to discuss further with gp. I'm a little concerned as been on seretide for years. When I get switched it triggers flares and I've already had loads of time of work. I work part time. I also think I'm
spookylou
in
Asthma Community Forum
2 months ago
Has anyone been diagnosed with 'Da Costa Syndrome' after a head injury.
Weird histories involving concussion. Da Costa syndrome first appeared in the American civil war. It was thought to be some kind of heart disease that caused fatigue. But many soldiers with this were executed for malingering and being cowards. Then it became a psychiatric condition in the 20th century
Weird histories involving concussion. Da Costa syndrome first appeared in the American civil war. It was thought to be some kind of heart disease that caused fatigue. But many soldiers with this were executed for malingering and being cowards. Then it became a psychiatric condition in the 20th century
pinkvision
in
Headway
2 months ago
Fed up gut!
Hi, I have suffered with diverticulitis and IBS for about 15 years. Recently I have experienced hard bloated tum with dragging sensation just under left breast. When I eat it becomes very uncomfortable and nausea soon follows. When I walk any distance my tum swells to huge proportions and only relieves
Hi, I have suffered with diverticulitis and IBS for about 15 years. Recently I have experienced hard bloated tum with dragging sensation just under left breast. When I eat it becomes very uncomfortable and nausea soon follows. When I walk any distance my tum swells to huge proportions and only relieves
Avatar123
in
IBS Network
3 months ago
Question about “other arrhythmia”.
my Kardia is giving all sorts of new readings since my flair up, ectopy, wide qrs, pvc, pac basically everything BUT NOT SO MUCH AF. do you have other arrhythmia? if so how does it affect you? for me it’s just as uncomfortable as the regular af
my Kardia is giving all sorts of new readings since my flair up, ectopy, wide qrs, pvc, pac basically everything BUT NOT SO MUCH AF. do you have other arrhythmia? if so how does it affect you? for me it’s just as uncomfortable as the regular af
Japaholic
in
Atrial Fibrillation Support
3 months ago
Polyhydramnios
I am currently 35 weeks. I was diagnosed with Polyhydramnios at 28 weeks. I've had scans every 2 weeks, baby seems healthy which is great. I am just getting sooo uncomfortable with how big ans sore I am. I am really nervous in case Mt waters go themselves.I was wondering how likely I am to be induced
I am currently 35 weeks. I was diagnosed with Polyhydramnios at 28 weeks. I've had scans every 2 weeks, baby seems healthy which is great. I am just getting sooo uncomfortable with how big ans sore I am. I am really nervous in case Mt waters go themselves.I was wondering how likely I am to be induced
Pink1098
in
Pregnancy and Parenting Support
3 months ago
ADAA Personal Story: Do the Impossible: Healing From Posttraumatic Stress Disorder
"PTSD is an invisible monster. It disguises reality. When I was sucked into what I learned to call the trauma vortex, I often couldn’t distinguish between what was real and what wasn’t. I thought I was going crazy. PTSD told me this over and over again: You’re not safe. You never will be. Being dead
"PTSD is an invisible monster. It disguises reality. When I was sucked into what I learned to call the trauma vortex, I often couldn’t distinguish between what was real and what wasn’t. I thought I was going crazy. PTSD told me this over and over again: You’re not safe. You never will be. Being dead
ADAATeamRachel
Partner
in
Anxiety and Depression Support
11 hours ago
The Truth about Home Hemodialysis
It has been the hardest month I have ever had in my life. I promised I would write an honest and complete description of the process. I started on October 16th. The first week, I wrote about already. Not too many issues. But in my head, I was so overwhelmed. I was not ready for dialysis mentally in
It has been the hardest month I have ever had in my life. I promised I would write an honest and complete description of the process. I started on October 16th. The first week, I wrote about already. Not too many issues. But in my head, I was so overwhelmed. I was not ready for dialysis mentally in
Bassetmommer
NKF Ambassador
in
Kidney Disease
7 months ago
What is Post Traumatic Stress Disorder (PTSD)?
https://youtu.be/IojLqCgQb2Q?si=4IgrQB3Pa1mqcYLo PTSD can follow tough or scary experiences. In this video learn about signs, causes, and what to do if you or someone you know might have PTSD. Subscribe for more mental health insights above and share this video to spread awareness. Let's break the stigma
https://youtu.be/IojLqCgQb2Q?si=4IgrQB3Pa1mqcYLo PTSD can follow tough or scary experiences. In this video learn about signs, causes, and what to do if you or someone you know might have PTSD. Subscribe for more mental health insights above and share this video to spread awareness. Let's break the stigma
ADAATeamRachel
Partner
in
Anxiety and Depression Support
7 days ago
Message of Victory and Hope
I started Spravato today. Already a major shift has happened with my thoughts. I feel lighter, no anxiety, no worries (and coming from someone with PTSD and panic attacks, this means a lot). Spravato is amazing. My abusers already saw a change in me, too, and have been unhappy about it and I. Do.
I started Spravato today. Already a major shift has happened with my thoughts. I feel lighter, no anxiety, no worries (and coming from someone with PTSD and panic attacks, this means a lot). Spravato is amazing. My abusers already saw a change in me, too, and have been unhappy about it and I. Do.
LifeisLikeGarden
in
Anxiety and Depression Support
9 days ago
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