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Dreading seeing the Rheumatologist
Hi everyone, I have an appointment coming up with my Rheumatologist which I’ve been under for the last 3 1/2 years (I’m in the UK, we don’t get a choice in who we see). It took him a couple of years to finally diagnose PMR. During that time I’d become almost housebound. He insisted I take the
Hi everyone, I have an appointment coming up with my Rheumatologist which I’ve been under for the last 3 1/2 years (I’m in the UK, we don’t get a choice in who we see). It took him a couple of years to finally diagnose PMR. During that time I’d become almost housebound. He insisted I take the
Bramble2000
in
PMRGCAuk
1 year ago
Employer asking me to prove I am still in the clinically extremely vulnerable group
Good morning to you lovely people on this beautiful sunny Saturday morning. Has anyone else had their employer ask for a letter from you GP or consultant to prove you are still in the clinically extremely vulnerable group. We received an email from HR this week stating their new policy regarding covid
Good morning to you lovely people on this beautiful sunny Saturday morning. Has anyone else had their employer ask for a letter from you GP or consultant to prove you are still in the clinically extremely vulnerable group. We received an email from HR this week stating their new policy regarding covid
Summerrain14
in
NRAS
1 year ago
Evenity Treatment for Osteoporosis
Hi, thank you to the moderators, DorsetLady and PMRpro for their advice about reposting. I have been given the opportunity to use Evenity (romosozumab) Injection, which has been offered to me as I have severe Osteoporosis due to being on Steroids for PMR. I will be receiving my first set of medication
Hi, thank you to the moderators, DorsetLady and PMRpro for their advice about reposting. I have been given the opportunity to use Evenity (romosozumab) Injection, which has been offered to me as I have severe Osteoporosis due to being on Steroids for PMR. I will be receiving my first set of medication
Songbird6
in
PMRGCAuk
1 year ago
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Steroids/treatments for Antiphospholipid syndrome (APS)?
hi there, I’ve unfortunately had 5 miscarriages (mix of IVF and natural), mostly chemical pregnancies. In between the miscarriages I was diagnosed with Antiphospholipid syndrome (APS) which is a leading cause of recurrent miscarriages. The haematologists put me on daily Clexane injections and low dose
hi there, I’ve unfortunately had 5 miscarriages (mix of IVF and natural), mostly chemical pregnancies. In between the miscarriages I was diagnosed with Antiphospholipid syndrome (APS) which is a leading cause of recurrent miscarriages. The haematologists put me on daily Clexane injections and low dose
Nenad
in
Fertility Network UK
1 year ago
Covid Antiviral eligibility
Positive covid test at 7pm Thursday and received antivirals at 5pm Friday! Well done NHS! Especially on a Bank Holiday! Wasn't sure if I was eligible this time as I'm only on 5mg Pred, having stopped my Methotrexate in November, but the lady who phoned me from the Covid Medicines Department said I
Positive covid test at 7pm Thursday and received antivirals at 5pm Friday! Well done NHS! Especially on a Bank Holiday! Wasn't sure if I was eligible this time as I'm only on 5mg Pred, having stopped my Methotrexate in November, but the lady who phoned me from the Covid Medicines Department said I
JanetRosslyn
in
PMRGCAuk
1 year ago
Senior lady bleeding after restarting HRT
Hi. This must seem a strange story. I have a history of severe endometriosis but I am now 75 and restarted HRT patches about six months ago for bone protection as I am on steroids. I had a 7 year break because my GP wanted me off HRT because of the research. I had no problems with HRT and wish I had
Hi. This must seem a strange story. I have a history of severe endometriosis but I am now 75 and restarted HRT patches about six months ago for bone protection as I am on steroids. I had a 7 year break because my GP wanted me off HRT because of the research. I had no problems with HRT and wish I had
Nightingales
in
Endometriosis UK
1 year ago
adrenals and cortisol
Hi diagnosed with GCA Feb 20 initial dose of pred 80mg tapered down to 5mg in first year, had cortisol blood test then synthac test May 21 which showed low cortisol have been on pred dose of between 5mg and 3mg for the last twelve months, just had cortisol blood test 9am Thursday by Thursday afternoon
Hi diagnosed with GCA Feb 20 initial dose of pred 80mg tapered down to 5mg in first year, had cortisol blood test then synthac test May 21 which showed low cortisol have been on pred dose of between 5mg and 3mg for the last twelve months, just had cortisol blood test 9am Thursday by Thursday afternoon
pog165g
in
PMRGCAuk
1 year ago
Hair thinning on steroids
Any thoughts on hair thinning on steroids? I have been on treatment since early December 2022, and am held at 10mgs Prednisone for three months now as my diagnosis has been changed from PMR to Eosinophilic fasciitis. Body hair as well as head hair is thinning. My questions are: does this start to
Any thoughts on hair thinning on steroids? I have been on treatment since early December 2022, and am held at 10mgs Prednisone for three months now as my diagnosis has been changed from PMR to Eosinophilic fasciitis. Body hair as well as head hair is thinning. My questions are: does this start to
YogaJM
in
PMRGCAuk
1 year ago
weak voice
I had upper left lobectomy November 21 which went well and no further treatment required so feel very lucky. The cancer was discovered by chance following an X-ray for something else. Since November 22 I have suffered continuously with chest infections, one after another. I’m being treated for COPD
I had upper left lobectomy November 21 which went well and no further treatment required so feel very lucky. The cancer was discovered by chance following an X-ray for something else. Since November 22 I have suffered continuously with chest infections, one after another. I’m being treated for COPD
Brookbond
in
The Roy Castle Lung Cancer Foundation
1 year ago
osteoarthritis hip pain
I have so much pain in my hip when walking I have asked to be referred for further help from my doctor. I have had steroid injection x 2 without success and continue to take Cocodamol 8/500 as prescribed now b’cos of pain have been prescribed codeine phosphate 15mg, any advice Would be welcome
I have so much pain in my hip when walking I have asked to be referred for further help from my doctor. I have had steroid injection x 2 without success and continue to take Cocodamol 8/500 as prescribed now b’cos of pain have been prescribed codeine phosphate 15mg, any advice Would be welcome
Margie21
in
Osteoarthritis Action
1 year ago
Adrenal insufficiency or thyroid disease?
Hi All, Recently I was diagnosed with adrenal insufficiency, so I’ve been spending a lot of time canvassing lots of different addisons & adrenal insufficiency forums and communities to get a gauge of what people think of my test results… I’ve made a slightly shocking revelation during this time -
Hi All, Recently I was diagnosed with adrenal insufficiency, so I’ve been spending a lot of time canvassing lots of different addisons & adrenal insufficiency forums and communities to get a gauge of what people think of my test results… I’ve made a slightly shocking revelation during this time -
Hidden
in
Thyroid UK
1 year ago
Tapering strategy
I guess this depends somewhat on how long you’ve been on steroids and how they are affecting your overall health. Is it better to allow some mild symptoms to return in order to lower steroid dose (and come off it sooner) or will that just prolong PMR ? Just started treatment and not sure what to expect
I guess this depends somewhat on how long you’ve been on steroids and how they are affecting your overall health. Is it better to allow some mild symptoms to return in order to lower steroid dose (and come off it sooner) or will that just prolong PMR ? Just started treatment and not sure what to expect
Body_bonkers
in
PMRGCAuk
1 year ago
Possible CRPS?
I was diagnosed with Small Bowel Crohn’s Disease in the early 1970’s and had 18” of small intestine removed. I was on steroids for a while, then codeine for diarrhoea. Later diagnosed with Bile Salt Malabsorption. When I was around fifty the joint pain which I’d always suffered from since childhood began
I was diagnosed with Small Bowel Crohn’s Disease in the early 1970’s and had 18” of small intestine removed. I was on steroids for a while, then codeine for diarrhoea. Later diagnosed with Bile Salt Malabsorption. When I was around fifty the joint pain which I’d always suffered from since childhood began
Morganalefaye
in
Pain Concern
1 year ago
Covid rash from vaccine
As many of you may know I have since November suffered a terrible rash ,which has led to months of appointments at doctors and hospital plus anti and steroids both on skin and orally. Just had my appointment at the hospital where the dermatologist explained that I have vasculitis from covid. And in
As many of you may know I have since November suffered a terrible rash ,which has led to months of appointments at doctors and hospital plus anti and steroids both on skin and orally. Just had my appointment at the hospital where the dermatologist explained that I have vasculitis from covid. And in
cartwheels
in
CLL Support
1 year ago
Hi all. I have PMR and the steroids have made me diabetic and high BP.
MY GP GAVE ME CANDESARTIN FOR HIGH BP. WITHIN A THREE WEEK PERIOD I NOW HAVE STAGE TWO KIDNEY DAMAGE. I AM NOW TAKING DOXIZOSIN 2MG . ANYONE ELSE HAD KIDNEY DAMAGE WITH CANDESARTIN ?
MY GP GAVE ME CANDESARTIN FOR HIGH BP. WITHIN A THREE WEEK PERIOD I NOW HAVE STAGE TWO KIDNEY DAMAGE. I AM NOW TAKING DOXIZOSIN 2MG . ANYONE ELSE HAD KIDNEY DAMAGE WITH CANDESARTIN ?
eyeBRing
in
PMRGCAuk
1 year ago
Algae calcium supplements?
Looking for advice.Have the algae calcium increased your calcium level? What dose/brand do you take?If you also have thyroid problems has the iodine content affected your thyroid levels? I was diagnosed osteoporosis 3yrs ago trying to avoid medications as reacted to biphosphates. Prescribed Theical
Looking for advice.Have the algae calcium increased your calcium level? What dose/brand do you take?If you also have thyroid problems has the iodine content affected your thyroid levels? I was diagnosed osteoporosis 3yrs ago trying to avoid medications as reacted to biphosphates. Prescribed Theical
wightmouse
in
Bone Health and Osteoporosis UK
1 year ago
Recurrent chest infections
I've been ill on and off with recurrent chest infection since November. Attended A and E for the first time which was scary. I'm finally under a respiratory Consultant. It's starting to impact on my quality of life as each infection floors me as I always end up on antibiotics and steroids. Trying to
I've been ill on and off with recurrent chest infection since November. Attended A and E for the first time which was scary. I'm finally under a respiratory Consultant. It's starting to impact on my quality of life as each infection floors me as I always end up on antibiotics and steroids. Trying to
Janny1
in
Asthma Community Forum
1 year ago
Adrenal insufficiency
I have adrenal insufficiency and on liquid prednisolone. I have been on this for quite some time because of other autoimmune problems as well. I notice that my energy is at rock bottom as I am very weak in myself atm. I am on a reducing regime of prednisolone via my rheumatologist due to long term problems
I have adrenal insufficiency and on liquid prednisolone. I have been on this for quite some time because of other autoimmune problems as well. I notice that my energy is at rock bottom as I am very weak in myself atm. I am on a reducing regime of prednisolone via my rheumatologist due to long term problems
friz42
in
Thyroid UK
1 year ago
Encephalitis of unknown origin and currently no diagnosis!
Hi all , im joining due to a close relative being admitted into hospital with confusion and then going into a nose dive into ICU. Doctors have thrown everything to cover a viral and autoimmune and effectively run out of treatment. currently we have not real response at the moment and there are two areas
Hi all , im joining due to a close relative being admitted into hospital with confusion and then going into a nose dive into ICU. Doctors have thrown everything to cover a viral and autoimmune and effectively run out of treatment. currently we have not real response at the moment and there are two areas
Hidden
in
Encephalitis International
1 year ago
tapering off steroids
Hello I'm currently tapering off 5mg Prednisolone, initiated a few years ago when I had Covid which was triggering my severe asthma. I don't need it anymore for that reason except I was diagnosed with adrenal insufficiency a few years ago. Recently seen an endocrinologist and had a short synacthen
Hello I'm currently tapering off 5mg Prednisolone, initiated a few years ago when I had Covid which was triggering my severe asthma. I don't need it anymore for that reason except I was diagnosed with adrenal insufficiency a few years ago. Recently seen an endocrinologist and had a short synacthen
ccccc
in
Asthma Community Forum
1 year ago
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