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18 public communities
Cure Parkinson's
25,518 members
This Cure Parkinson's HealthUnlocked community aims to seek the opinions of those with Parkinson's to help shape research and best clinical practice. Cure Parkinson's has one bold aim: to cure Parkinson's disease. We fund innovative projects and inspirational scientists with the aim of building momentum towards a cure. We improve communication and promote collaboration between researchers. We were founded by patients and involve patients in our work. We are working with the European Parkinson's Disease Association (EPDA) within HealthUnlocked to support members with topical information.
World According to Lupus
630 members
World According to Lupus is a community dedicated to providing reliable information and support to its members
St Thomas Lupus Trust
1,366 members
The St. Thomas Lupus Trust was set up as a registered charity in 1991. Its aim was, and still is, to fund 100% of the vital lupus research at St. Thomas’ & Guys Hospital and raise awareness of lupus. We provide lupus information through leaflets and posters and through our website, where there is a free online lupus nurse service. We also regularly send out a free online newsletter which can be received by signing up to news on our website.
Lupus Foundation of Florida
775 members
The Lupus Foundation of Florida provides support, education, referrals, advocacy and hope to those affected by lupus.
Teesside Lupus Support Group
293 members
Teesside Lupus Support Group is a group in the North East which aims to raise awareness of Lupus and all diseases associated with it. We give support and information to newly diagnosed and to those living with Lupus. We endeavour to gather as much information as we can to support one another. We also hold meetings and give one to one support to those who need it.
LUpus Patients Understanding and Support
3,420 members
Lupus Patients Understanding & Support (LUPUS) is a non-profit organisation for patients-affected-by-systemic lupus erythematosus, lupus variant conditions and the antiphospholipid antibody (Hughes) Syndrome. Our organisation was founded in 2000 with the intention of providing free information and free online psychological support. Our organisation is unique in that it has its own in-house counsellor and psychotherapist. Lupus Patients Understanding & Support (LUPUS) has two further websites. Our information website can be seen here: http://www.lupus-support.org.uk while our online psychological support at the LUpus Message Board is here: http://www.lupus-support.org and registration is free. Come and Join Us on Facebook: https://www.facebook.com/SUPPORT4LUPUS We are here to help and support you and your families. Please contact us or share your stories here on HealthUnlocked!
FieryBones - RA Community
674 members
Rheumatoid Arthritis, or RA, is a type of auto-immune disease where the body's immune system starts attacking its own tissues and joints. It can happen at any age and is one of the most common form of arthritis. Some of the common symptoms are painful and swollen joints, fatigue and weakness. For people living with RA, it is a daily struggle to balance their personal and professional lives with the unpredictability of this painful disease. FieryBones has been created to connect all the RA warriors and caregivers throughout the world on a single platform. Nothing makes us feel better than reading inspirational blogs of how our RA peers are coping with this illness and sharing our story with the community that truly understands!
COPD Friends
3,567 members
We are peer support community for people living with COPD. Join us to share your story and experiences, ask questions and support others. Connect with others like you today!
LUPUS UK
31,726 members
This HealthUnlocked Community is a peer support forum facilitated by LUPUS UK - The national registered charity for people affected by lupus and assisting those approaching diagnosis. This community is available for anybody affected by lupus to get information, support and advice from other people who are similarly affected. We welcome people with any form of lupus (SLE, discoid lupus, drug-induced lupus, cutaneous lupus etc.) as well as those with associated conditions such as mixed connective tissue disease (MCTD) and undifferentiated connective tissue disease (UCTD). The community discusses a wide range of topics including; diagnosis, symptoms, medical appointments, medications and support available. LUPUS UK provides a wide range of publications about lupus which are free to read and download on our website HERE: https://www.lupusuk.org.uk/publications/ Please consider paying £10 a year to become a member of LUPUS UK. You will receive our magazine three times a year and our charity to support others, fund medical research and Specialist Lupus Nurses. JOIN HERE: https://www.lupusuk.org.uk/shop/#!/Memberships/c/14192101/offset=0&sort=normal
Living with Asthma
3,592 members
Living with Asthma is a community for people with asthma who want to learn more about their condition from their peers, and help support one another. The community is run by Allergy & Asthma Network, the leading nonprofit patient education and advocacy organization dedicated to ending needless death and suffering due to asthma, allergies and related conditions. Our patient-centered network unites individuals, families, healthcare professionals, industry and government decision makers to improve health and quality of life for people with asthma and allergies.
NRAS
36,579 members
Welcome to the community for people with rheumatoid arthritis (RA). This is run by the National Rheumatoid Arthritis Society (NRAS) and exists to help you find support and information from other people living with RA. You may be newly diagnosed or have had RA for some time or you might not have a diagnosis yet - everyone is welcome! NRAS also support people with juvenile idiopathic arthritis (JIA) and other forms of inflammatory arthritis. NRAS is a UK based charity providing support, information and advocacy for people with rheumatoid arthritis and juvenile idiopathic arthritis, their families, friends and carers. Our vision is for everyone with RA to be able to live the life they want to. We have a helpline which is open Mon-Fri, 9.30am - 4.30pm and is free for landlines. We also have a huge range of free information booklets available to order or download from our website.
PMRGCAuk
20,313 members
Polymyalgia Rheumatica and Giant Cell Arteritis UK (PMRGCAuk) is a UK-wide charity set up to provide information and support, raise awareness, and foster research into PMR and GCA. On this forum you can share your own experiences of dealing with these little-known and frightening conditions with others who know what you are talking about; and also gain ideas about ways to take care of yourself and help yourself on the road to recovery. Do discuss ideas you find on the forum with your doctor, especially if you are considering changing your level of medication Our website is http://www.pmrgca.org.uk.
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