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Humble pie
After worrying about interrupting my sleep by getting up early in the morning to take my steroids, I changed to 8 a.m. Some aches and pains returned and I felt tired. I am now back to taking my steroids in the early hours and feel much more energetic etc. As I originally suggested changing to 8 a.m
After worrying about interrupting my sleep by getting up early in the morning to take my steroids, I changed to 8 a.m. Some aches and pains returned and I felt tired. I am now back to taking my steroids in the early hours and feel much more energetic etc. As I originally suggested changing to 8 a.m
Hidden
in
PMRGCAuk
1 year ago
Worried about liver
Currently waiting to see a liver specialist. History of heavy drinking the last 10 years, more so the last year following my Dad having a stroke and being in hospital for a year before sadly passing away. Stopped drinking on 2nd April this year following pain just below right rib cage, I was in
Currently waiting to see a liver specialist. History of heavy drinking the last 10 years, more so the last year following my Dad having a stroke and being in hospital for a year before sadly passing away. Stopped drinking on 2nd April this year following pain just below right rib cage, I was in
Anon99999
in
British Liver Trust
1 year ago
Pressure in rectum
Hi. I was diagnosed with UC 21 years ago when I was 19. For the most part I have been ok, with a few bad flares over the years treated with steroids. Lately I have been flaring more, bloods always fine, never any blood in my stools, but always have mucus and low left sided pain. Last 2 calprotectin
Hi. I was diagnosed with UC 21 years ago when I was 19. For the most part I have been ok, with a few bad flares over the years treated with steroids. Lately I have been flaring more, bloods always fine, never any blood in my stools, but always have mucus and low left sided pain. Last 2 calprotectin
Bigchiefld
in
Crohn's and Colitis Support
1 year ago
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Rituximab IV
I am starting Rituximab IV next week and wondered if anyone in the community has had this before. Over this month I have had so much IV steroids the side effects has been terrible. This infusion takes all day, so in hospital again for 6 to 8 hours. Just wanted to ask if anyone has had this medication
I am starting Rituximab IV next week and wondered if anyone in the community has had this before. Over this month I have had so much IV steroids the side effects has been terrible. This infusion takes all day, so in hospital again for 6 to 8 hours. Just wanted to ask if anyone has had this medication
Bagpuss2021
in
NRAS
1 year ago
Spinal Stenosis with nerve root impingement and foot drop Surgery or no surgery?
Hi, I'm 52, I have been battling what I thought was a Normal Siacaitic nerve pain for over a year now. Had steroid injections and medrol dos paks until I woke up one day and couldn't walk at all bc the pain was so severe and my left foot I couldn't move.i. I thought I was maybe becoming paralyzed..
Hi, I'm 52, I have been battling what I thought was a Normal Siacaitic nerve pain for over a year now. Had steroid injections and medrol dos paks until I woke up one day and couldn't walk at all bc the pain was so severe and my left foot I couldn't move.i. I thought I was maybe becoming paralyzed..
Blueberryboo
in
Pain Concern
1 year ago
Atrial Fibrillation with complications
Hi everyone I had hyperthyroidism which then flipped to hypothyroid (graves disease) which I take 50mg. Levothyroxine. My blood pressure stared creeping up so they added in Raiprill, then alodopine and then they dx poly myalgia rheumatica so i got some steroids thrown into the mix. Last Sunday I
Hi everyone I had hyperthyroidism which then flipped to hypothyroid (graves disease) which I take 50mg. Levothyroxine. My blood pressure stared creeping up so they added in Raiprill, then alodopine and then they dx poly myalgia rheumatica so i got some steroids thrown into the mix. Last Sunday I
spaggy
in
British Heart Foundation
1 year ago
Steroids
My friend is on 65mg of pred. steroids. I read that he needs a low salt and low fat diet. Also he needs to eat foods with potassium and he should take Vitamin D. Should he speak to his GP even though the steroids are being managed by his neurologist? Or should he buy over the counter Vitamin D etc?
My friend is on 65mg of pred. steroids. I read that he needs a low salt and low fat diet. Also he needs to eat foods with potassium and he should take Vitamin D. Should he speak to his GP even though the steroids are being managed by his neurologist? Or should he buy over the counter Vitamin D etc?
Hope2024
in
PMRGCAuk
1 year ago
intermittent fasting - impact of delaying steroid intake
Hi has anyone tried the 16:8 version of this by delaying breakfast til c 11am . There are many health benefits including anti inflammatory and bone health in this process but I am wondering how my body might cope waiting for its steroids ? I guess it’s only 1 day out of kilter and then it’s just a new
Hi has anyone tried the 16:8 version of this by delaying breakfast til c 11am . There are many health benefits including anti inflammatory and bone health in this process but I am wondering how my body might cope waiting for its steroids ? I guess it’s only 1 day out of kilter and then it’s just a new
Sydney0503
in
PMRGCAuk
1 year ago
New diagnosis
After months of recurrent chest infections and after I asked for a CT scan I now know I have bronchiectasis. Not best pleased as already have asthma but more because a lot of my care and treatment has been reactive...have some more antibiotics and steroids that clearly weren't working! I see my Respiratory
After months of recurrent chest infections and after I asked for a CT scan I now know I have bronchiectasis. Not best pleased as already have asthma but more because a lot of my care and treatment has been reactive...have some more antibiotics and steroids that clearly weren't working! I see my Respiratory
Janny1
in
Bronchiectasis Support
1 year ago
Injections
Hi. Just a question,was wondering,if it is OK to have a injection,as got dentist Monday,have to have a filling.not on steroids,but am on leflunomide,been on these since August 2022.finished steroids March 2023..would like some advice please.thanks.
Hi. Just a question,was wondering,if it is OK to have a injection,as got dentist Monday,have to have a filling.not on steroids,but am on leflunomide,been on these since August 2022.finished steroids March 2023..would like some advice please.thanks.
Flosy
in
PMRGCAuk
1 year ago
Battle with GP’s
Felt some relief when latest GP said her mother had PMR but after yesterday’s appointment she seems as incompetent as the rest. Been back on 40mg three weeks and no better and GP seemed unsure what to do until I mentioned concerns GCA had been missed. She defended her colleague who tried to drop my
Felt some relief when latest GP said her mother had PMR but after yesterday’s appointment she seems as incompetent as the rest. Been back on 40mg three weeks and no better and GP seemed unsure what to do until I mentioned concerns GCA had been missed. She defended her colleague who tried to drop my
Body_bonkers
in
PMRGCAuk
1 year ago
Cracked tongue.
Right side of tongue is sore. Opened mouth to examine (blisters). and found that my tongue is cracked all over! Ugh! Worse to me than black face hair, bruised legs, moon face and bison hump. Anybody else experience cracked tongue w steroids?
Right side of tongue is sore. Opened mouth to examine (blisters). and found that my tongue is cracked all over! Ugh! Worse to me than black face hair, bruised legs, moon face and bison hump. Anybody else experience cracked tongue w steroids?
Merryfield
in
PMRGCAuk
1 year ago
Biopsy results
As I suspected given the delay the biopsy results came back negative. Most recent blood tests now show ESR and CRP completely normal, having been very raised at initial presentation three weeks ago , and the initial ultrasound showed no signs. So was it /is it GCA or not? Who knows.? Some initial symptoms
As I suspected given the delay the biopsy results came back negative. Most recent blood tests now show ESR and CRP completely normal, having been very raised at initial presentation three weeks ago , and the initial ultrasound showed no signs. So was it /is it GCA or not? Who knows.? Some initial symptoms
Menno1525
in
PMRGCAuk
1 year ago
Is there always a rash with vasculitis?
Hood morning everyone and thank you so much for your support so far. I’m still investigating how to try and get my my tested for vasculitis. She has a diagnosis of bronchocentric glanulomatosis currently but I would like her tested for vasculitis as she is currently just being treated with steroids
Hood morning everyone and thank you so much for your support so far. I’m still investigating how to try and get my my tested for vasculitis. She has a diagnosis of bronchocentric glanulomatosis currently but I would like her tested for vasculitis as she is currently just being treated with steroids
Muddywater100
in
Vasculitis UK
1 year ago
Lupkynis approved in Switzerland to treat adults with lupus nephritis
Approval specifically covers treatment of active class 3, 4, and 5 disease by Marisa Wexler, MS | May 8, 2023 [i]
lupusnewstoday.com/news/lupkynis-approved-switzerland-treat-adults-lupus-nephritis/
[/i] Lupkynis (voclosporin) is now approved in Switzerland to treat adults with active lupus
Approval specifically covers treatment of active class 3, 4, and 5 disease by Marisa Wexler, MS | May 8, 2023 [i]
lupusnewstoday.com/news/lupkynis-approved-switzerland-treat-adults-lupus-nephritis/
[/i] Lupkynis (voclosporin) is now approved in Switzerland to treat adults with active lupus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Advice and have you felt like this reducing pred ?
Hello folksLooking for some advicePlease have been trying to reduce my pred My doctor asked me to in order to get a rheumatologist appointment for them to see me. I have to reduce on my steroids doctor 1st asked me to drop from seven. 5 to 5 felt unwell doing this asked for advice here I have been Reducing
Hello folksLooking for some advicePlease have been trying to reduce my pred My doctor asked me to in order to get a rheumatologist appointment for them to see me. I have to reduce on my steroids doctor 1st asked me to drop from seven. 5 to 5 felt unwell doing this asked for advice here I have been Reducing
Staffieblue
in
PMRGCAuk
1 year ago
Rheumatoid Meningitis
Has anyone out there had rheumatoid meningitis? I was recently treated for it and am looking for others who have had this experience or just experience with recovering from aseptic meningitis in general. I was diagnosed with RF positive RA in 2012. My disease has been stable on Cimzia for 6+ years.
Has anyone out there had rheumatoid meningitis? I was recently treated for it and am looking for others who have had this experience or just experience with recovering from aseptic meningitis in general. I was diagnosed with RF positive RA in 2012. My disease has been stable on Cimzia for 6+ years.
ChiChiCo
in
FieryBones - RA Community
1 year ago
Steroids
Hi guys, are there any of you out there on only 5mg Pred., and feeling O.K. Thank you.
Hi guys, are there any of you out there on only 5mg Pred., and feeling O.K. Thank you.
tyncwmmarchhywel
in
NRAS
1 year ago
Cellulitis in foot and hands, leading to dramatic skin changes all over my body
I have primary lymphoedema in my left foot which has been well controlled through compression and daily creaming of the affected area. Despite showing no signs of any lesion I developed cellulitis which went un-diagnosed for a week or so as I was unaware of what it was. My foot and ankle were very swollen
I have primary lymphoedema in my left foot which has been well controlled through compression and daily creaming of the affected area. Despite showing no signs of any lesion I developed cellulitis which went un-diagnosed for a week or so as I was unaware of what it was. My foot and ankle were very swollen
walk
in
LSN
2 years ago
Prednisone and blurry vision
I was diagnosed in Jan after symptoms started in Sept 2022.Started on 20 mg prednisone and labs went down and no pain . March I was tapered to 15mg and labs in April labs were higher than at the start , but no increased pain etc. ( ESR 44 , CRP 19.7 . Rheumatologist said to stay on 15 until I see
I was diagnosed in Jan after symptoms started in Sept 2022.Started on 20 mg prednisone and labs went down and no pain . March I was tapered to 15mg and labs in April labs were higher than at the start , but no increased pain etc. ( ESR 44 , CRP 19.7 . Rheumatologist said to stay on 15 until I see
GMA74
in
PMRGCAuk
1 year ago
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