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MS Hug
I don't know if this is a MS Hug or not but I feel like I have a band around my ribs that is squeezing me. I have hurt all the way through from my back to my chest. I also have tenderness in my abdomen. I have just finished a round of steroids because of a flare caused by COVID and a secondary infection
I don't know if this is a MS Hug or not but I feel like I have a band around my ribs that is squeezing me. I have hurt all the way through from my back to my chest. I also have tenderness in my abdomen. I have just finished a round of steroids because of a flare caused by COVID and a secondary infection
cljones
in
My MSAA Community
1 year ago
Covid action plan, antivirals, steroids etc
Hi all -- I apologize for the frequent posts recently. May I ask whether your GP/Consultant gave you a covid action plan, or if this is available online? I.e. what to do in different scenarios, when (and whom) to ask for antivirals, when to start taking high steroids etc? Several of my colleagues
Hi all -- I apologize for the frequent posts recently. May I ask whether your GP/Consultant gave you a covid action plan, or if this is available online? I.e. what to do in different scenarios, when (and whom) to ask for antivirals, when to start taking high steroids etc? Several of my colleagues
runcyclexcski
in
Asthma Community Forum
1 year ago
Ibuprofen and steroids.
I would like to thank everyone very much for their response and useful advice about my question about Ibuprofen and my nerve pain. Thank goodness for this forum.
I would like to thank everyone very much for their response and useful advice about my question about Ibuprofen and my nerve pain. Thank goodness for this forum.
Washingup
in
PMRGCAuk
1 year ago
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any advice welcome…
I was diagnosed in January 2022, I had flares every couple of months. In December my pain started to get a lot worse I now have pain everyday in my hands and someday my knees, feet and shoulders. In somedays are a real struggle. I was given a steroid injection and prescribed hydroxychloroquine sulfate
I was diagnosed in January 2022, I had flares every couple of months. In December my pain started to get a lot worse I now have pain everyday in my hands and someday my knees, feet and shoulders. In somedays are a real struggle. I was given a steroid injection and prescribed hydroxychloroquine sulfate
Star307
in
NRAS
1 year ago
Controlling PMR with diet
Does anyone have info on trying to control PMR with diet? I am newly diagnosed but before taking the decision to use steroids (which freaks me out after reading some of the experiences people have had on here) I’d like to see if I can reduce my inflammation and symptoms by tweaking my diet and using
Does anyone have info on trying to control PMR with diet? I am newly diagnosed but before taking the decision to use steroids (which freaks me out after reading some of the experiences people have had on here) I’d like to see if I can reduce my inflammation and symptoms by tweaking my diet and using
Lclmlbls
in
PMRGCAuk
1 year ago
surgery or not
Hello everyone. As I have shared before my husband has a mets tumor on his spine at T9 around the front and some soft tissue was involved. He completed 5 treatments of radiation. He started lupron one week ago. He was in so much pain for a month. MO and the neurosurgeon treated him with several rounds
Hello everyone. As I have shared before my husband has a mets tumor on his spine at T9 around the front and some soft tissue was involved. He completed 5 treatments of radiation. He started lupron one week ago. He was in so much pain for a month. MO and the neurosurgeon treated him with several rounds
Granica4818
in
Advanced Prostate Cancer
1 year ago
EGPA Diagnosis today
Hi I'm a 24 M and have been diagnosed with EGPA today after 2 weeks in hospital. Started with shortness of breath and arm pain, got bought in for a Active TB looking lung from Xray and high Esophilias in blood. Kidney health was deteriorating so idea was to put me on Steroids ASAP prior to diagnosis
Hi I'm a 24 M and have been diagnosed with EGPA today after 2 weeks in hospital. Started with shortness of breath and arm pain, got bought in for a Active TB looking lung from Xray and high Esophilias in blood. Kidney health was deteriorating so idea was to put me on Steroids ASAP prior to diagnosis
s8lomon
in
Vasculitis UK
1 year ago
38 weeks planned c section - Steroid injection?
I’m currently 34+1 with our IVF miracle and having a planned c section at 38 weeks (had complicated emergency c section with first child) but they’ve said they offer an optional steroid injection if you deliver planned before 39 weeks which can apparently help with breathing for baby IF they have fluid
I’m currently 34+1 with our IVF miracle and having a planned c section at 38 weeks (had complicated emergency c section with first child) but they’ve said they offer an optional steroid injection if you deliver planned before 39 weeks which can apparently help with breathing for baby IF they have fluid
PrincessGurn1984
in
Fertility Network UK - Pregnancy Support
1 year ago
Steroids and Ibuprofen
I am currently on 7mg pred for PMR. I am also suffering from a trapped nerve in my back which I have had for six weeks now which has been VERY painful. My doctor has said under no circumstances to take any medication containing ibuprofen because of my steroids. Paracetomol does nothing to relieve
I am currently on 7mg pred for PMR. I am also suffering from a trapped nerve in my back which I have had for six weeks now which has been VERY painful. My doctor has said under no circumstances to take any medication containing ibuprofen because of my steroids. Paracetomol does nothing to relieve
Washingup
in
PMRGCAuk
1 year ago
In need of Reassurance
Hello to all you lovely hearties out there. My dad is a fellow hearty and has dilated cardiomyopathy, like myself but his symptoms manifest differently to my own and he additionally has a leaky mitral valve (has had it for many years - since before I was born). Before his diagnosis of cardiomyopathy
Hello to all you lovely hearties out there. My dad is a fellow hearty and has dilated cardiomyopathy, like myself but his symptoms manifest differently to my own and he additionally has a leaky mitral valve (has had it for many years - since before I was born). Before his diagnosis of cardiomyopathy
MummaSoap
in
British Heart Foundation
1 year ago
Arthritis, PMR or both.
I’ve been on this journey for nearly 3 years and am down to 1.5mg pred. I still get shoulder pain but it manifests in a different way to when I first got PMR. I had shoulder problems for some years before I got PMR. I found it difficult to tie up my blood parameters, which were fine, with the shoulder
I’ve been on this journey for nearly 3 years and am down to 1.5mg pred. I still get shoulder pain but it manifests in a different way to when I first got PMR. I had shoulder problems for some years before I got PMR. I found it difficult to tie up my blood parameters, which were fine, with the shoulder
Hughie1951
in
PMRGCAuk
1 year ago
Does anyone have any insight on how or if V +O treatment affects insulin sensitivity?
My husband is on V+O treatment, on cycle 7, he also is type 2 diabetic. Ever since starting treatment, he has had to add fast-acting insulin after meals to his regimen. We attributed this to the steroids given during O infusions, but those are now in the past, and he is not able to reduce his A1C and
My husband is on V+O treatment, on cycle 7, he also is type 2 diabetic. Ever since starting treatment, he has had to add fast-acting insulin after meals to his regimen. We attributed this to the steroids given during O infusions, but those are now in the past, and he is not able to reduce his A1C and
lisakc1
in
CLL Support
1 year ago
Piriformis
Hi everyone hope your well today. Okay so I've bern telling you about this episode of piriformis recently it's just not getting any better at all its disabling me and I'm crying all through the night. Cant cope much longer this is about 2 months now. My question is have any of you had a guided steroid
Hi everyone hope your well today. Okay so I've bern telling you about this episode of piriformis recently it's just not getting any better at all its disabling me and I'm crying all through the night. Cant cope much longer this is about 2 months now. My question is have any of you had a guided steroid
Betsy50
in
Pain Concern
1 year ago
Private IVF clinics Manchester / Best clinic abroad
Hi.. I’ve been off this site for a while struggling with my mood after my most recent miscarriage in October. I’ve had 3 rounds of ivf on the nhs, I feel like St Mary’s wasted my 3rd round. My consultant has now moved abroad. It’s time to give up on the nhs and go private. Does anybody have any experience
Hi.. I’ve been off this site for a while struggling with my mood after my most recent miscarriage in October. I’ve had 3 rounds of ivf on the nhs, I feel like St Mary’s wasted my 3rd round. My consultant has now moved abroad. It’s time to give up on the nhs and go private. Does anybody have any experience
JustAGirl21
in
Fertility Network UK
1 year ago
Not yet diagnosed....AN
Hi, I'm 37 and woke up 3 weeks ago with complete hearing loss in 1 ear, severe tinnitus and vertigo. I've been in the slow process of having hearing tests at ENT which show almost complete deafness 😔 The vertigo seems to have subsided which I am thankful for but am just hoping it's not an AN so I
Hi, I'm 37 and woke up 3 weeks ago with complete hearing loss in 1 ear, severe tinnitus and vertigo. I've been in the slow process of having hearing tests at ENT which show almost complete deafness 😔 The vertigo seems to have subsided which I am thankful for but am just hoping it's not an AN so I
KawasakiZ650
in
Acoustic Neuroma Support
1 year ago
DOMS or a flare?
Since stupidly messing up my steroid dose over Christmas I was just starting to fell a little better at the beginning of last week. As a result I did a little gardening over 3 consecutive days. Nothing strenuous just a bit of pruning and planting - the sun was out and it felt so good at the time.
Since stupidly messing up my steroid dose over Christmas I was just starting to fell a little better at the beginning of last week. As a result I did a little gardening over 3 consecutive days. Nothing strenuous just a bit of pruning and planting - the sun was out and it felt so good at the time.
Tiggy70
in
PMRGCAuk
1 year ago
Root Canal/steroids/antibiotics-avoid?
Hi folk, About 3 months ago. I had a tooth abscess. I was given a course of amoxicillin that dealt with the infection but gave me terrible Thrush that took quite a long time to get on top of. This was before I was diagnosed with PMR, but I was suffering really badly with it. My dentist is up a flight
Hi folk, About 3 months ago. I had a tooth abscess. I was given a course of amoxicillin that dealt with the infection but gave me terrible Thrush that took quite a long time to get on top of. This was before I was diagnosed with PMR, but I was suffering really badly with it. My dentist is up a flight
Bramble2000
in
PMRGCAuk
1 year ago
Have just been diagnosed with bronchomalacia on top of asthma and adrenal insufficiency
Hi, I was wondering if anyone else has the same conditions as me. Over the last 14 months I've been hospitalised 5 times and treated with 300mls of hydrocortisone and antibiotics intravenously. As I have acquired adrenal insufficiency my poor body takes ah awful blow and when I come down from the steroids
Hi, I was wondering if anyone else has the same conditions as me. Over the last 14 months I've been hospitalised 5 times and treated with 300mls of hydrocortisone and antibiotics intravenously. As I have acquired adrenal insufficiency my poor body takes ah awful blow and when I come down from the steroids
McMD
in
Asthma Community Forum
1 year ago
long awaited rheumy appointment
nearly a year, then appt just 15 minutes long…was booked as a 45 mins appt. Nobody went in before me, I was only one in waiting room, & I saw him go into his room 5 mins before my appt time. I then waited 35 minutes. He seemed angry because I’d been given a new patient appt when I’d been seen twice before
nearly a year, then appt just 15 minutes long…was booked as a 45 mins appt. Nobody went in before me, I was only one in waiting room, & I saw him go into his room 5 mins before my appt time. I then waited 35 minutes. He seemed angry because I’d been given a new patient appt when I’d been seen twice before
Pixix
in
PMRGCAuk
1 year ago
QOL Fostering a Puppy
Have had 2 sets spinal shots of steroids' to try and relieve pinched nerve in L-4&5. Has definitely been distracting. Still unable to lift right toes and my foot flops a little when I walk but making progress. . Coco and I have also been fostering a 5 month old Jack Russell Terrier with some medical
Have had 2 sets spinal shots of steroids' to try and relieve pinched nerve in L-4&5. Has definitely been distracting. Still unable to lift right toes and my foot flops a little when I walk but making progress. . Coco and I have also been fostering a 5 month old Jack Russell Terrier with some medical
Scout4answers
in
Advanced Prostate Cancer
1 year ago
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