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Snerd again, GCA to PMR?
following up on my last post half an hour ago, I should have also included that my rheumatologist just reduced me from 2 mg to 1 mg last week. As well, I had an adrenal cortisol test last week and it showed 2.6. The rheumatologist was concerned and he consulted the endocrinologist Who said that it
following up on my last post half an hour ago, I should have also included that my rheumatologist just reduced me from 2 mg to 1 mg last week. As well, I had an adrenal cortisol test last week and it showed 2.6. The rheumatologist was concerned and he consulted the endocrinologist Who said that it
Snerd
in
PMRGCAuk
1 year ago
Letter this mornings post,for 5th covid vaccine.
Just a quick question, has anybody had covid vaccine without having a flare. Last one for me set things back with PMR but also had flu one as well. Hopping I've to to up steroids after vaccine. X
Just a quick question, has anybody had covid vaccine without having a flare. Last one for me set things back with PMR but also had flu one as well. Hopping I've to to up steroids after vaccine. X
Harrywogan
in
PMRGCAuk
1 year ago
Could my new statins have upset the Apple cart?
I can see that this subject has been raised before but I’m feeling sorry for myself today and need the support of my forum friends and advisors. Just for a quick bit of background, I am six years into this PMR and struggling to taper below 7mg, maintaining 6.5mg but experiencing a lot of pain in my
I can see that this subject has been raised before but I’m feeling sorry for myself today and need the support of my forum friends and advisors. Just for a quick bit of background, I am six years into this PMR and struggling to taper below 7mg, maintaining 6.5mg but experiencing a lot of pain in my
Zebedee44
in
PMRGCAuk
1 year ago
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Hydroxychloroquine for FET?? Any experiences??
Hi all, I've just completed 2 courses of Humira/Adalimumab to try to bring down my cytokines, but unfortunately it didn't work and they went higher (46). I have one good quality day 3 embryo on ice from 5 years ago when i was 37. I won't be getting any more as I'm in full menopause now. I'm finally
Hi all, I've just completed 2 courses of Humira/Adalimumab to try to bring down my cytokines, but unfortunately it didn't work and they went higher (46). I have one good quality day 3 embryo on ice from 5 years ago when i was 37. I won't be getting any more as I'm in full menopause now. I'm finally
magda22
in
Fertility Network UK
1 year ago
update on Steroid Injection.
Just an update on my last post. As I mentioned I had the X-ray and scan done privately as there is a long wait for scans on NHS. They were both done and the results were sent straight through to the GP. I had Hoped to get the steroid injection within a couple of days again privately. I telephoned the
Just an update on my last post. As I mentioned I had the X-ray and scan done privately as there is a long wait for scans on NHS. They were both done and the results were sent straight through to the GP. I had Hoped to get the steroid injection within a couple of days again privately. I telephoned the
Macas
in
PMRGCAuk
1 year ago
Learning about GCA
I have been on steroids since February for PRM, properly unwell for quite a while before that. Over the weekend I had a period of very disturbed vision with headache and jaw pain. Now increased from 10mg to 60mg prednisone. Eye check isn’t showing any long term damage and I have a plan going forward
I have been on steroids since February for PRM, properly unwell for quite a while before that. Over the weekend I had a period of very disturbed vision with headache and jaw pain. Now increased from 10mg to 60mg prednisone. Eye check isn’t showing any long term damage and I have a plan going forward
Smellydog9
in
PMRGCAuk
1 year ago
steroid withdrawal
Hi fellow lungies I have posted before on the British Lung Website years ago about the steroids. This is the first time on this new sight. I have COPD and Bronchiectasis. I have been poorly with a chest infection or exacerbation since Feb 12th. It all started with a cold and after fighting it off
Hi fellow lungies I have posted before on the British Lung Website years ago about the steroids. This is the first time on this new sight. I have COPD and Bronchiectasis. I have been poorly with a chest infection or exacerbation since Feb 12th. It all started with a cold and after fighting it off
Bronchiectasislady69
in
Lung Conditions Community Forum
1 year ago
Update #5: Back to front
Hi all, Continuing on from my adrenals results… https://healthunlocked.com/thyroiduk/posts/149321002/update-4-adrenal-results I have spent some time researching and experimenting with adrenal support. This is what I understand. If I am off about any of this please do feel free to correct or challenge
Hi all, Continuing on from my adrenals results… https://healthunlocked.com/thyroiduk/posts/149321002/update-4-adrenal-results I have spent some time researching and experimenting with adrenal support. This is what I understand. If I am off about any of this please do feel free to correct or challenge
Hidden
in
Thyroid UK
1 year ago
steroid inhalers and oral thrush
hi I am really struggling with my steroid inhaler as I am constantly getting thrush at the back of my mouth ( I have it constantly under my top lip ) I have ME / CFS and have seen an immunologist ( some abnormal bloods but nothing specific found ! ) I take vits/ minerals : good diet I use a spacer
hi I am really struggling with my steroid inhaler as I am constantly getting thrush at the back of my mouth ( I have it constantly under my top lip ) I have ME / CFS and have seen an immunologist ( some abnormal bloods but nothing specific found ! ) I take vits/ minerals : good diet I use a spacer
Skydog70
in
Asthma Community Forum
1 year ago
PMR mentioned on TV
Hi. I was flicking channels last night and clicked onto "doctors behind closed doors". A mentally sharp 91 year old lady was describing pains in her arms which prevented her moving them above a certain point. The nurse or doctor said there is something called Polymyalgia we can do some tests to see
Hi. I was flicking channels last night and clicked onto "doctors behind closed doors". A mentally sharp 91 year old lady was describing pains in her arms which prevented her moving them above a certain point. The nurse or doctor said there is something called Polymyalgia we can do some tests to see
Animalover65
in
PMRGCAuk
1 year ago
Reducing pred while on antibiotics
My mum has been on 60mg pred for 4 weeks and her CRP levels are now down to 3 so our GP has said its ok to reduce to 50mg which we were happy to do.My mum has chest infection and terrible cough and just been given course of antibiotics for it. My question is should we wait till this has cleared up before
My mum has been on 60mg pred for 4 weeks and her CRP levels are now down to 3 so our GP has said its ok to reduce to 50mg which we were happy to do.My mum has chest infection and terrible cough and just been given course of antibiotics for it. My question is should we wait till this has cleared up before
Buchanan16
in
PMRGCAuk
1 year ago
Scared
Hi there, I'm 38 year old active, fit woman. I've been diagnosed with severe cervical stenosis at c6-7 with radiculopathy. Have had symptoms for 20+ years not realising what it was. Then last summer after having an appendectomy and 3 weeks rest, the pain behind left shoulder blade and in neck flared
Hi there, I'm 38 year old active, fit woman. I've been diagnosed with severe cervical stenosis at c6-7 with radiculopathy. Have had symptoms for 20+ years not realising what it was. Then last summer after having an appendectomy and 3 weeks rest, the pain behind left shoulder blade and in neck flared
Rewe
in
Cervical Myelopathy
1 year ago
Bruising like crazy.
Has anyone experienced frequent and easy bruising from being on steroids? My lower legs, esp my right leg, are covered with small and one a bit larger bruises. They are not painful and seem to pop up out of nowhere. Can it be the diabetes 2? Boy are they unsightful, along with my two knee surgery
Has anyone experienced frequent and easy bruising from being on steroids? My lower legs, esp my right leg, are covered with small and one a bit larger bruises. They are not painful and seem to pop up out of nowhere. Can it be the diabetes 2? Boy are they unsightful, along with my two knee surgery
Merryfield
in
PMRGCAuk
1 year ago
Hi all an update on my new rheumy
Hi everybody, yesterday evening I had an appointment with my new Rheumy. I was actually dreading it due to my last experience with the previous rheumatologist. Well I have to say he was brilliant listened to me, Then going on my symptoms and doing an ultrasound on my hands and looking at all my blood
Hi everybody, yesterday evening I had an appointment with my new Rheumy. I was actually dreading it due to my last experience with the previous rheumatologist. Well I have to say he was brilliant listened to me, Then going on my symptoms and doing an ultrasound on my hands and looking at all my blood
Wonderfullifeandmore
in
PMRGCAuk
1 year ago
Steroids and weak bones
Do any of you have osteoporosis due to steriods?Started dupilimab in January - it works well enough to get me off prednisolone ( it has unpleasant side effects - it plays hell with my sinuses - sneezing coughing and headaches). I have asked for a dexa scan as it is around five years since my last and
Do any of you have osteoporosis due to steriods?Started dupilimab in January - it works well enough to get me off prednisolone ( it has unpleasant side effects - it plays hell with my sinuses - sneezing coughing and headaches). I have asked for a dexa scan as it is around five years since my last and
Madbiker1
in
Asthma Community Forum
1 year ago
Brain shrinking
My husband has had encephalitis for 16 months now and no treatment has worked so far. He has had steroids, IVIG, plasma exchange and rituximab and hes been deteriorating since the day he was diagnosed. Doctors have now said his brain is shrinking but I have not heard this from anyone else with encephalitis
My husband has had encephalitis for 16 months now and no treatment has worked so far. He has had steroids, IVIG, plasma exchange and rituximab and hes been deteriorating since the day he was diagnosed. Doctors have now said his brain is shrinking but I have not heard this from anyone else with encephalitis
Kw55
in
Encephalitis International
1 year ago
Weaning steroids
Hello, thank you for having me. I don’t have PMRGC but I am experimenting with steroids for adrenal fatigue/insufficiency and just wanted to ask a question - I have been taking 25mg of steroids for 6 days: waking 10mg, noon 7.5mg, PM 5mg, bedtime 2.5mg I am nervous about developing adrenal shut
Hello, thank you for having me. I don’t have PMRGC but I am experimenting with steroids for adrenal fatigue/insufficiency and just wanted to ask a question - I have been taking 25mg of steroids for 6 days: waking 10mg, noon 7.5mg, PM 5mg, bedtime 2.5mg I am nervous about developing adrenal shut
Hidden
in
PMRGCAuk
1 year ago
predetermined!
I thought my appointment would be with a rheumatologist consultant but it was the final 4pm slot last Thursday (ie day before bank holiday) and the staff on duty looked far from enthusiastic to see me. I started to doubt it would go well when I saw quite a few urine samples including mine chucked
I thought my appointment would be with a rheumatologist consultant but it was the final 4pm slot last Thursday (ie day before bank holiday) and the staff on duty looked far from enthusiastic to see me. I started to doubt it would go well when I saw quite a few urine samples including mine chucked
AnniesRyder5
in
PMRGCAuk
1 year ago
mistake with steroids
After recent ups and downs I was taking 15mg per day but I have not been feeling at all well for the past few days. My head has felt peculiar and I have been feeling disorientated. This morning when I was about to take my medication I noticed that I did not have any more 5mg tablets left and I'm pretty
After recent ups and downs I was taking 15mg per day but I have not been feeling at all well for the past few days. My head has felt peculiar and I have been feeling disorientated. This morning when I was about to take my medication I noticed that I did not have any more 5mg tablets left and I'm pretty
caftan
in
PMRGCAuk
1 year ago
spring Covid vaccine
I’ve had all the necessary covid vaccinations but had my 2nd covid infection during the first week in March. I see in the news that the spring covid vaccine is available for those on steroids. I’m currently on 13mg of pred having started on 15mg in February. Is it likely that I will be asked to get
I’ve had all the necessary covid vaccinations but had my 2nd covid infection during the first week in March. I see in the news that the spring covid vaccine is available for those on steroids. I’m currently on 13mg of pred having started on 15mg in February. Is it likely that I will be asked to get
Lclmlbls
in
PMRGCAuk
1 year ago
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